Enhanced threat or therapeutic benefit? Risk and benefit perceptions of human gene editing by purpose and heritability of edits

2020 ◽  
pp. 1-17
Author(s):  
Emily L. Howell ◽  
Patrice Kohl ◽  
Dietram A. Scheufele ◽  
Sarah Clifford ◽  
Anqi Shao ◽  
...  
2017 ◽  
Vol 39 (2) ◽  
pp. 250-277 ◽  
Author(s):  
Kathleen M. Rose ◽  
Kaine Korzekwa ◽  
Dominique Brossard ◽  
Dietram A. Scheufele ◽  
Laura Heisler

Theoretically and methodologically sound research on the reach and impact of public engagement practices continues to lag behind. Using the 2015 Wisconsin Science Festival as context, we empirically investigate the impacts of a public engagement activity about a nascent and controversial scientific issue, human gene editing. Overall, we find the panel increased participants’ understanding of the complexities of human gene editing, as demonstrated by increases in knowledge and the moral acceptability of the technology among respondents, as well as the associated risk and benefit perceptions. Practical and theoretical implications for science festivals and public engagement with science activities are discussed.


2018 ◽  
Vol 1 (6) ◽  
pp. 351-354 ◽  
Author(s):  
Eric T. Juengst ◽  
Gail E. Henderson ◽  
Rebecca L. Walker ◽  
John M. Conley ◽  
Douglas MacKay ◽  
...  
Keyword(s):  

Author(s):  
John H. Evans

This chapter begins with the discovery of human gene editing, and how the immediate ethical response used the existing weakened barriers. The chapter then turns to a detailed analysis of how an influential report by the National Academies of Science, Engineering, and Medicine advocated taking down the somatic/germline barrier. The replacement barrier proposed by the National Academies is deemed unstable, and in its place this chapter describes a strong barrier located at the median trait in a population. That is, people could modify their children to take them up to the median value on any trait but not above the median. This would satisfy the dominant contemporary value of justice or fairness, which would require the genetically disadvantaged to overcome their disadvantage, but not allow anyone to use genetics to gain advantage over others.


Nature ◽  
2019 ◽  
Vol 566 (7745) ◽  
pp. 455-455 ◽  
Author(s):  
Guillermo Aquino-Jarquin
Keyword(s):  

Nature ◽  
2019 ◽  
Vol 566 (7745) ◽  
pp. 440-442 ◽  
Author(s):  
David Cyranoski
Keyword(s):  

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