Existential Issues in Palliative Care: Interviews of Patients with Amyotrophic Lateral Sclerosis

2001 ◽  
Vol 4 (4) ◽  
pp. 499-505 ◽  
Author(s):  
Ingrid Bolmsjö
Keyword(s):  
Palliative Care ◽  
Amyotrophic Lateral Sclerosis ◽  
Existential Issues ◽  
Lateral Sclerosis

The Role of Specialty Palliative Care for Amyotrophic Lateral Sclerosis

2021 ◽  
pp. 104990912110493
Author(s):  
Anish Sethi ◽  
Elyse Everett ◽  
Ambereen Mehta ◽  
Jessica Besbris ◽  
Christa Burke ◽  
...  
Keyword(s):  
Palliative Care ◽  
Amyotrophic Lateral Sclerosis ◽  
Motor Neurons ◽  
Symptom Management ◽  
Medical Specialty ◽  
Care Needs ◽  
Discussion Section ◽  
Caregiver Support ◽  
Hard Times ◽  
Lateral Sclerosis

Amyotrophic Lateral Sclerosis (ALS) is a progressive and incurable neurodegenerative disease resulting in the loss of motor neurons, eventually leading to death. ALS results in complex physical, emotional, and spiritual care needs. Specialty Palliative Care (SPC) is a medical specialty for patients with serious illness that provides an extra layer of support through complicated symptom management, goals of care conversations, and support to patients and families during hard times. Using MEDLINE, APA Psychinfo, and Dynamed databases, we reviewed the literature of SPC in ALS to inform and support an expert opinion perspective on this topic. This manuscript focuses on several key areas of SPC for ALS including insurance and care models, advance care planning, symptom management, quality of life, caregiver support, and end-of-life care. Recommendations to improve specialty palliative care for patients with ALS are reviewed in the discussion section.

Integration of a palliative care specialist in an amyotrophic lateral sclerosis clinic: Observations from one center

2019 ◽  
Vol 60 (2) ◽  
pp. 137-140 ◽  
Author(s):  
Kate Brizzi ◽  
Sabrina Paganoni ◽  
April Zehm ◽  
Fabiola De Marchi ◽  
James D. Berry
Keyword(s):  
Palliative Care ◽  
Amyotrophic Lateral Sclerosis ◽  
Palliative Care Specialist ◽  
Care Specialist ◽  
Lateral Sclerosis

scholarly journals Palliative care in amyotrophic lateral sclerosis: a review of current international guidelines and initiatives

2011 ◽  
Vol 1 (3) ◽  
pp. 343-348 ◽  
Author(s):  
P. Bede ◽  
D. Oliver ◽  
J. Stodart ◽  
L. van den Berg ◽  
Z. Simmons ◽  
...  
Keyword(s):  
Palliative Care ◽  
Amyotrophic Lateral Sclerosis ◽  
International Guidelines ◽  
Lateral Sclerosis

scholarly journals Palliative care in amyotrophic lateral sclerosis: a review of current international guidelines and initiatives

2011 ◽  
Vol 82 (4) ◽  
pp. 413-418 ◽  
Author(s):  
P. Bede ◽  
D. Oliver ◽  
J. Stodart ◽  
L. van den Berg ◽  
Z. Simmons ◽  
...  
Keyword(s):  
Palliative Care ◽  
Amyotrophic Lateral Sclerosis ◽  
International Guidelines ◽  
Lateral Sclerosis
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