Perception Gap in Health-Related Quality of Life Between Young Adult Survivors of Childhood Cancer and Their Family

2021 ◽  
Author(s):  
Tappei Morino ◽  
Yuki Shinohara ◽  
Qian Niu ◽  
Kanako Shimoura ◽  
Ami Tabata ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors ◽  
Perception Gap ◽  
Survivors Of Childhood Cancer

scholarly journals Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies

2011 ◽  
Vol 1 (3) ◽  
pp. 124-132 ◽  
Author(s):  
Chandylen L. Nightingale ◽  
Gwendolyn P. Quinn ◽  
Elizabeth A. Shenkman ◽  
Barbara A. Curbow ◽  
Bradley J. Zebrack ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Childhood Cancer ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer

scholarly journals Missing content from health-related quality of life instruments: interviews with young adult survivors of childhood cancer

2012 ◽  
Vol 22 (1) ◽  
pp. 111-118 ◽  
Author(s):  
Gwendolyn P. Quinn ◽  
I-Chan Huang ◽  
Devin Murphy ◽  
Katie Zidonik-Eddelton ◽  
Kevin R. Krull
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer ◽  
Quality Of Life Instruments

scholarly journals Using three legacy measures to develop a health-related quality of life tool for young adult survivors of childhood cancer

2011 ◽  
Vol 21 (8) ◽  
pp. 1437-1450 ◽  
Author(s):  
I-Chan Huang ◽  
Gwendolyn P. Quinn ◽  
Pey-Shan Wen ◽  
Elizabeth A. Shenkman ◽  
Dennis A. Revicki ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Life Tool ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer

scholarly journals A predictive model of health-related quality of life in young adult survivors of childhood cancer

2009 ◽  
Vol 18 (4) ◽  
pp. 339-349 ◽  
Author(s):  
H. MAURICE-STAM ◽  
F.J. OORT ◽  
B.F. LAST ◽  
M.A. GROOTENHUIS
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Predictive Model ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer

Health-related quality-of-life and psychological distress of young adult survivors of childhood cancer in Hong Kong

2013 ◽  
Vol 23 (2) ◽  
pp. 229-236 ◽  
Author(s):  
Carmen W. H. Chan ◽  
Kai Chow Choi ◽  
Wai Tong Chien ◽  
Karis K. F. Cheng ◽  
William Goggins ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Young Adult ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer

scholarly journals Health-related quality of life of adolescent and young adult survivors of childhood brain tumors

2014 ◽  
Vol 24 (7) ◽  
pp. 804-811 ◽  
Author(s):  
Lamia P. Barakat ◽  
Yimei Li ◽  
Wendy L. Hobbie ◽  
Sue K. Ogle ◽  
Thomas Hardie ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Adult Survivors ◽  
Adolescent And Young Adult ◽  
Health Related Quality ◽  
Childhood Brain Tumors ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors

Health related quality of life in adolescent and young adult survivors of lower extremity bone tumors

2011 ◽  
Vol 58 (2) ◽  
pp. 265-273 ◽  
Author(s):  
Maru Barrera ◽  
Tanya Teall ◽  
Ronald Barr ◽  
Mariana Silva ◽  
Mark Greenberg
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Bone Tumors ◽  
Adult Survivors ◽  
Adolescent And Young Adult ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors

scholarly journals Health-related quality of life and psychological distress in young adult survivors of childhood cancer and their association with treatment, education, and demographic factors

2017 ◽  
Vol 27 (2) ◽  
pp. 529-537 ◽  
Author(s):  
Janne F. Halvorsen ◽  
Anne Mari Sund ◽  
Lonnie Zeltzer ◽  
Marian Ådnanes ◽  
Heidi Jensberg ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer ◽  
Treatment Education

scholarly journals Association Between the Prevalence of Symptoms and Health-Related Quality of Life in Adult Survivors of Childhood Cancer: A Report From the St Jude Lifetime Cohort Study

2013 ◽  
Vol 31 (33) ◽  
pp. 4242-4251 ◽  
Author(s):  
I-Chan Huang ◽  
Tara M. Brinkman ◽  
Kelly Kenzik ◽  
James G. Gurney ◽  
Kirsten K. Ness ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cohort Study ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Survivors Of Childhood Cancer ◽  
Head Neck ◽  
Cumulative Prevalence

Purpose We investigated the association between prevalence of symptoms and health-related quality of life (HRQOL) in adult survivors of childhood cancer enrolled in the St Jude Lifetime Cohort study. Methods Eligibility criteria include childhood malignancy treated at St Jude, survival ≥ 10 years from diagnosis, and current age ≥ 18 years. Study participants were 1,667 survivors (response rate = 65%). Symptoms were self-reported by using a comprehensive health questionnaire and categorized into 12 classes: cardiac; pulmonary; motor/movement; pain in head; pain in back/neck; pain involving sites other than head, neck, and back; sensation abnormalities; disfigurement; learning/memory; anxiety; depression; and somatization. HRQOL was measured by using physical/mental component summary (PCS/MCS) and six domain scores of the Medical Outcomes Study 36-Item Short-Form Health Survey. Multivariable regression analysis was performed to investigate associations between symptom classes and HRQOL. Cumulative prevalence of symptom classes in relation to time from diagnosis was estimated. Results Pain involving sites other than head, neck and back, and disfigurement represented the most frequent symptom classes, endorsed by 58.7% and 56.3% of survivors, respectively. Approximately 87% of survivors reported multiple symptom classes. Greater symptom prevalence was associated with poorer HRQOL. In multivariable analysis, symptom classes explained up to 60% of the variance in PCS and 56% of the variance in MCS; demographic and clinical variables explained up to 15% of the variance in PCS and 10% of the variance in MCS. Longer time since diagnosis was associated with higher cumulative prevalence in all symptom classes. Conclusion A large proportion of survivors suffered from many symptom classes, which was associated with HRQOL impairment.

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