Facilitators and barriers for Thai children with cerebral palsy in caregivers’ perspective: in-depth interview

2016 ◽  
Vol 58 ◽  
pp. 59-59
Keyword(s):  
Cerebral Palsy ◽  
Depth Interview ◽  
Children With Cerebral Palsy ◽  
Facilitators And Barriers

scholarly journals Titles: Caregiver's perspectives on facilitators and barriers of active participation in cerebral palsy rehabilitation in North West Nigeria: a qualitative study

2020 ◽  
Author(s):  
Auwal Isah ◽  
Auwal Abdullahi
Keyword(s):  
Cerebral Palsy ◽  
Active Participation ◽  
Matrix Analysis ◽  
North West ◽  
Number Of Children ◽  
Depth Interview ◽  
Facilitators And Barriers ◽  
Constant Comparative Analysis ◽  
Theoretical Saturation

Abstract Background: Cerebral Palsy (CP) is a group of permanent disorders of movement and posture, attributed to non-progressive disturbance that occurred in the developing fetal or infant brain. The condition results in long-term disability in carrying out activities of daily living (ADL). Thus, active participation of caregivers in the rehabilitation of their children with CP is required. Objective: The aim of this study is to explore the facilitators and barriers of active participation of caregivers in the rehabilitation of children with CP in Kano, Nigeria. Materials and Methods: The study design used was qualitative in-depth interview. The participants consisted of caregivers of children with CP attending Hasiya Bayero Paediatric Specialists Hospital, Kano. The caregivers were sampled and interviewed by one of the researchers until theoretical saturation was attained. Responses of the participants were audio-recorded with a tape recorder, supplemented with note taking. The data generated from the interview was then transcribed, coded and analyzed using matrix analysis, using constant comparative analysis. Results: Forty caregivers with mean age, 27.17±4.46 years participated in the study. The results of the study showed factors that facilitate active participation of caregivers of children with CP in the rehabilitation of their children are improvement in the child’s condition, family support, improvement in the conditions of other children with CP, encouragement from the therapist managing the child, empathy, and cooperation of the child during home programs. The barriers identified are number of children the caregiver has, caregiver’s occupation and financial resources. Conclusion: Therapists need to help reinforce these facilitators, and devise strategies to help caregivers overcome barriers during rehabilitation of children with CP. Economically sustainable and accessible rehabilitation services are needed for all children with CP. Similarly, sharing caregiving rehabilitation tasks amongst family members could facilitate caregiver active participation.

scholarly journals The Economic Burden and Determinant Factors of Parents/Caregivers of Children with Cerebral Palsy in Malaysia: A Mixed Methods Study

2022 ◽  
Vol 19 (1) ◽  
pp. 475
Author(s):  
Aniza Ismail ◽  
Ruhana Sk Abd Razak ◽  
Leny Suzana Suddin ◽  
Aidalina Mahmud ◽  
Sazlina Kamaralzaman ◽  
...  
Keyword(s):  
Cerebral Palsy ◽  
Healthcare Cost ◽  
Economic Burden ◽  
Annual Household Income ◽  
Depth Interview ◽  
Children With Cerebral Palsy ◽  
Sequential Explanatory Mixed Method ◽  
The Cost ◽  
Qualitative Part ◽  
Gmfcs Level

The economic burden is a major concern for parents/caregivers of children with cerebral palsy (CP). This study used the sequential explanatory mixed-method approach to explorethe economic burden on parents/caregivers with a CP child in Malaysia and the factors associated with the economic burden. The study period spanned April 2020 and December 2020. A total of 106 questionnaire respondents were selected for the quantitative part, and 15 were interviewed to obtain qualitative input. A retrospective costing analysis was conducted based on the cost data obtained from the questionnaire. The majority of the children were GrossMotor Function Classification System (GMFCS) Level 5 (71%), quadriplegic (63%), and aged >4 years (90%). The estimated annual median total economic burden on the parents/caregivers per child in 2020 was RM52,540.00 (~USD12,515.03), with indirect cost being the greatest cost (RM28,800.00, ~USD6860.16), followed by developmental cost (RM16,200.00, ~USD3858.84), direct healthcare cost (RM4540.00, ~USD1081.43) and direct non-healthcare cost (RM3000.00, ~USD714.60). The annual household income was identified as a significant determinant factor (p=0.019, 95% CI: 0.04, 0.40) of the economic burden. The participants’ responses during the in-depth interview in the qualitative part of the study supported the premise that socioeconomic factors play a substantial role in determining the total economic burden. Our findings may aid local policymakers when planning the greater provision of support to the affected families in the future, especially for the parents/caregivers of children with CP, who are facing socioeconomic challenges.

Facilitators and Barriers to Performing Activities and Participation in Children With Cerebral Palsy

2018 ◽  
Vol 30 (1) ◽  
pp. 27-32 ◽  
Author(s):  
Pinailug Tantilipikorn Earde ◽  
Aina Praipruk ◽  
Phanlerd Rodpradit ◽  
Parichad Seanjumla
Keyword(s):  
Cerebral Palsy ◽  
Children With Cerebral Palsy ◽  
Facilitators And Barriers

Prevalence of Speech Problems and the Use of Augmentative and Alternative Communication in Children With Cerebral Palsy: A Registry-Based Study in Norway

2010 ◽  
Vol 19 (1) ◽  
pp. 12-20 ◽  
Author(s):  
Guro Andersen ◽  
Tone R. Mjøen ◽  
Torstein Vik
Keyword(s):  
Cerebral Palsy ◽  
Motor Function ◽  
Gestational Age ◽  
Augmentative And Alternative Communication ◽  
Alternative Communication ◽  
Gross Motor ◽  
Gross Motor Function ◽  
Children With Cerebral Palsy ◽  
Communicative Abilities ◽  
Normal Speech

Abstract This study describes the prevalence of speech problems and the use of augmentative and alternative communication (AAC) in children with cerebral palsy (CP) in Norway. Information on the communicative abilities of 564 children with CP born 1996–2003, recorded in the Norwegian CP Registry, was collected. A total of 270 children (48%) had normal speech, 90 (16%) had slightly indistinct speech, 52 (9%) had indistinct speech, 35 (6%) had very indistinct speech, 110 children (19%) had no speech, and 7 (1%) were unknown. Speech problems were most common in children with dyskinetic CP (92 %), in children with the most severe gross motor function impairments and among children being totally dependent on assistance in feeding or tube-fed children. A higher proportion of children born at term had speech problems when compared with children born before 32 weeks of gestational age 32 (p > 0.001). Among the 197 children with speech problems only, 106 (54%) used AAC in some form. Approximately 20% of children had no verbal speech, whereas ~15% had significant speech problems. Among children with either significant speech problems or no speech, only 54% used AAC in any form.

Influence of gait pattern on the body's centre of mass displacement in children with cerebral palsy

2004 ◽  
Vol 46 (10) ◽  
Author(s):  
Firas Massaad ◽  
Frédéric Dierick ◽  
Adélaïde van den Hecke ◽  
Christine Detrembleur
Keyword(s):  
Cerebral Palsy ◽  
Gait Pattern ◽  
Centre Of Mass ◽  
Children With Cerebral Palsy ◽  
Mass Displacement
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