scholarly journals Conducting public involvement in dementia research: The contribution of the European Working Group of People with Dementia to the ROADMAP project

2021 ◽  
Author(s):  
Ana Diaz ◽  
Dianne Gove ◽  
Mia Nelson ◽  
Michael Smith ◽  
Claire Tochel ◽  
...  
Keyword(s):  
Working Group ◽  
Public Involvement ◽  
European Working Group ◽  
People With Dementia ◽  
European Working ◽  
Dementia Research

scholarly journals Motivation for people living with dementia to engage in research advisory boards

2021 ◽  
Vol 5 (Supplement_1) ◽  
pp. 151-151
Author(s):  
Dianne Gove ◽  
Ana Diaz ◽  
Martina Roes
Keyword(s):  
Working Group ◽  
Public Involvement ◽  
Research Projects ◽  
Strategic Research ◽  
Advisory Boards ◽  
Research Activities ◽  
People With Dementia ◽  
European Working ◽  
Dementia Research ◽  
Set Up

Abstract The importance of Public Involvement (PI) is increasingly being recognized in the field of dementia research. In 2012, Alzheimer Europe set up the European Working Group of People with Dementia (EWGPWD) which provides advice and input for all activities of the organization including several large European-funded research projects. The German Center for Neurodegenerative Diseases (DZNE) created a research advisory patient board in 2020 with the intention of supporting the board in strategic research decisions. Both groups are composed of people with dementia and act independently. With the aim of finding out whether PI in research is mutually rewarding and beneficial, members of both groups were asked about their motivation to be involved in PI research activities and the value this had for them. This was collected either through narrative interviews or during meetings. People with dementia described several reasons for being involved in PI activities in dementia research.

Our reflections of Patient and Public Involvement in research as members of the European Working Group of People with Dementia

Dementia ◽  
2019 ◽  
Vol 19 (1) ◽  
pp. 10-17 ◽  
Author(s):  
Chris Roberts ◽  
Helen Rochford-Brennan ◽  
Jayne Goodrick ◽  
Dianne Gove ◽  
Ana Diaz-Ponce ◽  
...  
Keyword(s):  
Working Group ◽  
Public Involvement ◽  
Patient And Public Involvement ◽  
European Working Group ◽  
People With Dementia ◽  
European Working

Legionellose, ein Tourismusproblem?

Praxis ◽  
2002 ◽  
Vol 91 (31) ◽  
pp. 1241-1245
Author(s):  
Kistler ◽  
Fleisch ◽  
Reinhart ◽  
Wieland
Keyword(s):  
Working Group ◽  
European Working Group ◽  
European Working

La légionellose, un problème de tourisme? La légionellose est une maladie assez rare, mais elle suit souvent un cours prolongé et compliqué, même chez des patients immunocompétents. Le diagnostic est important pour des raisons thérapeutiques et épidémiologiques. De 1998 à 2001 on a observé à l'hôpital cantonal de Coire six cas de légionellose, dont quatre étaient associés aux voyages et un autre concernait un employé d'un hôtel local. Par suite de l'augmentation de la mobilité internationale les recherches épidémiologiques sur la localisation de la source infectieuse et les procédés hygiéniques deviennent plus difficiles. Une organisation européenne, le «European Working Group for Legionella Infections» (EWGLI/www.ewgli.org) a étudié ce problème. La question de la forme sous laquelle le public doit être informé des sources de légionelles fait l'object d'une discussion.

scholarly journals Home care in dementia: The views of informal carers from a co-designed consultation

Dementia ◽  
2021 ◽  
pp. 147130122199050
Author(s):  
Elizabeth L Dalgarno ◽  
Vincent Gillan ◽  
Amy Roberts ◽  
Jean Tottie ◽  
David Britt ◽  
...  
Keyword(s):  
Home Care ◽  
Working Conditions ◽  
Public Involvement ◽  
Framework Analysis ◽  
Electronic Survey ◽  
The United Kingdom ◽  
People With Dementia ◽  
Dementia Research ◽  
Informal Carers ◽  
A Current

Background In the United Kingdom, there is a current priority for high-quality dementia care provided at home. However, home care or domiciliary care is an area where problems have been reported, in terms of a lack of consistency, coordination and appropriate responses to the specific needs of those with dementia. The views of informal carers, who often must respond to these problems when supporting relatives, are crucial in shedding light on the issues and in seeking to promote solutions. Methods This study explored the views of informal carers of those with dementia concerning home care, through a consultation using an electronic survey. The survey questions were designed by informal carers, through a public involvement group within an existing programme of dementia research. The survey elicited responses from 52 informal carers in 2017/18. The data were analysed qualitatively using framework analysis. Findings Carers’ views focused on the need for investment into meaningful personalisation, recognising the value of providing care and valuing formal carers, systemic failings of care coordination and provision and the importance of ongoing collaboration and care planning. Conclusion Based on a framework drawn from the views of informal carers themselves, this study articulated issues of concern for home care and its delivery for people with dementia. Attempts should be made to make dementia home care more consistently personalised, inclusive and collaborative with informal carers and key others involved. Further areas to explore include working conditions of formal carers and current models utilised in homecare provision.

European Working Group on Cardiac Pacing (EWGCP)

1980 ◽  
Vol 3 (4) ◽  
pp. 496-498
Author(s):  
HILBERT J. TH. THALEN
Keyword(s):  
Working Group ◽  
Cardiac Pacing ◽  
European Working Group ◽  
European Working

The International Comparison of Court Caseloads: The Experience of the European Working Group

1990 ◽  
Vol 24 (2) ◽  
pp. 571 ◽  
Author(s):  
Heleen F. P. Ietswaart
Keyword(s):  
International Comparison ◽  
Working Group ◽  
European Working Group ◽  
European Working

Development of an Online Tool for European Working Group for Legionella Infections Sequence-Based Typing, Including Automatic Quality Assessment and Data Submission

Legionella ◽  
2014 ◽  
pp. 163-166 ◽  
Author(s):  
Anthony P. Underwood ◽  
William Bellamy ◽  
Baharak Afshar ◽  
Norman K. Fry ◽  
Timothy G. Harrison
Keyword(s):  
Quality Assessment ◽  
Working Group ◽  
Online Tool ◽  
Data Submission ◽  
European Working Group ◽  
European Working

scholarly journals Travel associated legionnaires’disease in Europe: 1997 and 1998

1999 ◽  
Vol 4 (11) ◽  
pp. 120-124 ◽  
Author(s):  
E Slaymaker ◽  
C Joseph ◽  
C L R Bartlett
Keyword(s):  
Working Group ◽  
European Working Group ◽  
European Working ◽  
Returning Travellers ◽  
Legionnaires Disease ◽  
Set Up ◽  
Surveillance Scheme

The European Surveillance Scheme for Travel Associated Legionnaires’ Disease was set up by the European Working Group on Legionella Infections (EWGLI) in 1987 to identify cases of legionella infection in returning travellers and to detect outbreaks and cl

scholarly journals Travel associated legionellosis among European tourists in Spain - a comment from the EWGLI coordinating centre

1997 ◽  
Vol 2 (6) ◽  
pp. 47-47
Author(s):  
C Joseph
Keyword(s):  
Working Group ◽  
Surveillance System ◽  
European Working Group ◽  
Interesting Paper ◽  
European Working

This interesting paper has analysed the data on cases of legionellosis associated with travel to Spain and highlighted some issues which are relevant to the European Working Group for Legionella Infections (EWGLI) surveillance system, eg the reporting of

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