Treatment Acceptability of Healthcare Services for Children with Cerebral Palsy

Background & Aim: Mothers with children with cerebral palsy experience various problems during the care process, especially after surgery. Since these problems of parents directly affect the care provided to the child, it is essential to evaluate the problems that families experience in this process. This study aims to explore the experiences of mothers of children with cerebral palsy and to find out how these mothers care for their children that underwent single-event multilevel orthopedic surgery due to cerebral palsy. Methods & Materials: A descriptive phenomenological study was used to explore the life experiences of 24 participants who had children with CP. This study was performed in the Department of Orthopedics at a Training and Research Hospital in Turkey, between March and July 2015. The study was completed with the participation of 24 mothers who had children with cerebral palsy. A qualitative, face-to-face and in-depth interview technique were used for data collection. Colaizzi’s method and Professional Software for Qualitative and Mixed Methods Research 11 software were used for analysis. Results: The mean age was 37.29±6.86. Based on the mothers’ care experiences data, three main themes were identified, namely “Be concern about the process,” “Facing the Difficulties and Coping,” “Adaptations the changing family lifestyle.” Conclusions: The findings demonstrated that CP affects intra-family relations and functions, and contributes to various physical and mental health problems, and financial statement. We believe that the findings may help healthcare professionals to provide and plan education in the field of healthcare services in a way that helps families cope with the process successfully.

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Delivering healthcare services to children with cerebral palsy and their families: a narrative review

Health & Social Care in the Community ◽

10.1111/hsc.12121 ◽

2014 ◽

Vol 23 (3) ◽

pp. 242-251 ◽

Cited By ~ 6

Author(s):

Emily Hayles ◽

Anne Jones ◽

Desley Harvey ◽

David Plummer ◽

Sally Ruston

Keyword(s):

Cerebral Palsy ◽

Healthcare Services ◽

Narrative Review ◽

Children With Cerebral Palsy

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Prevalence of Speech Problems and the Use of Augmentative and Alternative Communication in Children With Cerebral Palsy: A Registry-Based Study in Norway

Perspectives on Augmentative and Alternative Communication ◽

10.1044/aac19.1.12 ◽

2010 ◽

Vol 19 (1) ◽

pp. 12-20 ◽

Cited By ~ 29

Author(s):

Guro Andersen ◽

Tone R. Mjøen ◽

Torstein Vik

Keyword(s):

Cerebral Palsy ◽

Motor Function ◽

Gestational Age ◽

Augmentative And Alternative Communication ◽

Alternative Communication ◽

Gross Motor ◽

Gross Motor Function ◽

Children With Cerebral Palsy ◽

Communicative Abilities ◽

Normal Speech

Abstract This study describes the prevalence of speech problems and the use of augmentative and alternative communication (AAC) in children with cerebral palsy (CP) in Norway. Information on the communicative abilities of 564 children with CP born 1996–2003, recorded in the Norwegian CP Registry, was collected. A total of 270 children (48%) had normal speech, 90 (16%) had slightly indistinct speech, 52 (9%) had indistinct speech, 35 (6%) had very indistinct speech, 110 children (19%) had no speech, and 7 (1%) were unknown. Speech problems were most common in children with dyskinetic CP (92 %), in children with the most severe gross motor function impairments and among children being totally dependent on assistance in feeding or tube-fed children. A higher proportion of children born at term had speech problems when compared with children born before 32 weeks of gestational age 32 (p > 0.001). Among the 197 children with speech problems only, 106 (54%) used AAC in some form. Approximately 20% of children had no verbal speech, whereas ~15% had significant speech problems. Among children with either significant speech problems or no speech, only 54% used AAC in any form.

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