Special Supplement: Ethical Challenges of Chronic Illness

1988 ◽  
Vol 18 (1) ◽  
pp. 1 ◽  
Author(s):  
Bruce Jennings ◽  
Daniel Callahan ◽  
Arthur L. Caplan
2022 ◽  
Author(s):  
Todd Meyers

While studying caregiving and chronic illness in families living in situations of economic and social insecurity in Baltimore, anthropologist Todd Meyers met a woman named Beverly. In All That Was Not Her Meyers presents an intimate ethnographic portrait of Beverly, stitching together small moments they shared scattered over months and years and, following her death, into the present. He meditates on the possibilities of writing about someone who is gone—what should be represented, what experiences resist rendering, what ethical challenges exist when studying the lives of others. Meyers considers how chronic illness is bound up in the racialized and socioeconomic conditions of Beverly’s life and explores the stakes of the anthropologist’s engagement with one subject. Even as Meyers struggles to give Beverly the final word, he finds himself unmade alongside her. All That Was Not Her captures the complexity of personal relationships in the field and the difficulty of their ending.


2015 ◽  
Vol 20 (3) ◽  
pp. 72-84 ◽  
Author(s):  
Paula Leslie ◽  
Mary Casper

“My patient refuses thickened liquids, should I discharge them from my caseload?” A version of this question appears at least weekly on the American Speech-Language-Hearing Association's Community pages. People talk of respecting the patient's right to be non-compliant with speech-language pathology recommendations. We challenge use of the word “respect” and calling a patient “non-compliant” in the same sentence: does use of the latter term preclude the former? In this article we will share our reflections on why we are interested in these so called “ethical challenges” from a personal case level to what our professional duty requires of us. Our proposal is that the problems that we encounter are less to do with ethical or moral puzzles and usually due to inadequate communication. We will outline resources that clinicians may use to support their work from what seems to be a straightforward case to those that are mired in complexity. And we will tackle fears and facts regarding litigation and the law.


PsycCRITIQUES ◽  
2012 ◽  
Vol 57 (18) ◽  
Author(s):  
James H. Korn
Keyword(s):  

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