Person-centred end-of-life care for individuals living with dementia in the United Kingdom

2018 ◽  
pp. 58-88
Author(s):  
Jane Chatterjee ◽  
Murna Downs
Keyword(s):  
United Kingdom ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
The United Kingdom

scholarly journals Systematic Review of the Primary Research on Minority Ethnic Groups and End-of-Life Care From the United Kingdom

2012 ◽  
Vol 43 (2) ◽  
pp. 261-286 ◽  
Author(s):  
Natalie Evans ◽  
Arantza Meñaca ◽  
Erin V.W. Andrew ◽  
Jonathan Koffman ◽  
Richard Harding ◽  
...  
Keyword(s):  
Systematic Review ◽  
United Kingdom ◽  
End Of Life ◽  
Ethnic Groups ◽  
End Of Life Care ◽  
Life Care ◽  
Primary Research ◽  
The United Kingdom ◽  
Minority Ethnic Groups ◽  
Minority Ethnic

scholarly journals Challenges in dementia care: comparing key issues from Brazil and the United Kingdom

2020 ◽  
Vol 14 (3) ◽  
pp. 216-222
Author(s):  
Helen Durgante ◽  
Milena Lucía Contreras ◽  
Tamara Backhouse ◽  
Angelique Mavrodaris ◽  
Michele Gomes Ferreira ◽  
...  
Keyword(s):  
United Kingdom ◽  
End Of Life ◽  
End Of Life Care ◽  
Public Perception ◽  
Life Care ◽  
Related Services ◽  
The United Kingdom ◽  
People With Dementia ◽  
Key Issues ◽  
Belo Horizonte

ABSTRACT. The United Kingdom-Brazil Dementia Workshop took place in July 2019 in the city of Belo Horizonte, MG, Brazil, with an interdisciplinary group of health and care professionals from the United Kingdom and from Brazil to address challenges in diagnosis, public perception and care of dementia. The aim of this article is to present the results identified in relation to challenges in the care of dementia, including recommendations that could potentially guide local and State/Municipal authorities and care services for people with dementia in the future. Four key issues were prioritised to identify challenges and generate possible solutions in Brazil and the United Kingdom: I) limitations of current health systems; II) continuous and long-term support for family carers (pre-diagnosis, mourning); III) support for people with advanced dementia and end-of-life care; IV) support for people with young-onset dementia. In both countries, carers feel left without post-diagnostic support; information on the progression of dementia is lacking and some people do not even have a specific diagnosis; encouraging and providing training for carers best manage some of the symptoms is imperative; preparation for end of life care and support carers after the death of their loved ones remains highly needed; strengthening services and qualification of health professionals, also creating protocols to guide dementia-related services represent a common challenge to overcome. The authors outline recommendations according to the issues identified to assist future formulation of adequate policies and services for people with dementia and carers.

scholarly journals Missing the human connection: A rapid appraisal of healthcare workers’ perceptions and experiences of providing palliative care during the COVID-19 pandemic

2021 ◽  
pp. 026921632110042
Author(s):  
Lucy Mitchinson ◽  
Anna Dowrick ◽  
Caroline Buck ◽  
Katarina Hoernke ◽  
Sam Martin ◽  
...  
Keyword(s):  
Social Media ◽  
United Kingdom ◽  
End Of Life ◽  
End Of Life Care ◽  
Healthcare Workers ◽  
Care Delivery ◽  
Life Care ◽  
The United Kingdom ◽  
Rapid Appraisal ◽  
Traditional Care

Background: During infectious epidemics, healthcare workers are required to deliver traditional care while facing new pressures. Time and resource restrictions, a focus on saving lives and new safety measures can lead to traditional aspects of care delivery being neglected. Aim: Identify barriers to delivering end-of-life care, describe attempts to deliver care during the COVID-19 pandemic, and understand the impact this had on staff. Design: A rapid appraisal was conducted incorporating a rapid review of policies from the United Kingdom, semi-structured telephone interviews with healthcare workers, and a review of mass print media news stories and social media posts describing healthcare worker’s experiences of delivering care during the pandemic. Data were coded and analysed using framework analysis. Setting/Participants: From a larger ongoing study, 22 interviews which mentioned death or caring for patients at end-of-life, eight government and National Health Service policies affecting end-of-life care delivery, eight international news media stories and 3440 publicly available social media posts were identified. The social media analysis centred around 274 original tweets with the highest reach, engagement and relevance. Incorporating multiple workstreams provided a broad perspective of end-of-life care during the COVID-19 pandemic in the United Kingdom. Results: Three themes were developed: (1) restrictions to traditional care, (2) striving for new forms of care and (3) establishing identity and resilience. Conclusions: The COVID-19 pandemic prohibited the delivery of traditional care as practical barriers restricted human connections. Staff prioritised communication and comfort orientated tasks to re-establish compassion at end-of-life and displayed resilience by adjusting their goals.

scholarly journals 333 A Transnational Effectiveness-Implementation Study of the Family Carer Decision Support Intervention to Improve End of Life Care in Long-Term Care

2019 ◽  
Vol 48 (Supplement_3) ◽  
pp. iii17-iii65
Author(s):  
Irene Hartigan ◽  
Kevin Brazil ◽  
Sharon Kaasalainen ◽  
Tamara Sussman ◽  
Jenny Van Der Steen ◽  
...  
Keyword(s):  
United Kingdom ◽  
Decision Support ◽  
End Of Life ◽  
End Of Life Care ◽  
Care Homes ◽  
Life Care ◽  
Family Carer ◽  
The United Kingdom ◽  
The Family ◽  
Web Learning

Abstract Background The Family Carer Decision Support (FCDS) intervention has been designed to inform family carers about end of life care options available to a person living with advanced dementia. The FCDS intervention demonstrated a statistically significant impact in reducing family carer decision uncertainty on establishing goals of care at the end of life and, improved family carer satisfaction on quality of care in a study conducted in the United Kingdom. Methods The aim of this research is to adapt the application of the FCDS for use in different countries. Funding supported through the EU Joint Programme – Neurodegenerative Disease Research (JPND) project has supported the scaling up of the FCDS transnationally in the United Kingdom; Republic of Ireland; Netherlands; Canada; Czech Republic ; and, Italy. Launched in April 2019, this presentation will report on present activities including: a) description of the FCDS intervention; b) strategy for implementing the FCDS in care homes; c) study design employed for the evaluation of the FCDS; and d) work packages and that will be deployed to achieve intended outcomes Results Expected project outcomes of this work will include a) develop guidelines to facilitate transnational use of the FCDS within care homes; (b) staff education material including web learning resources; (c) family carer informational material including web learning resources; (d) measures and tools to evaluate the uptake and outcome of the FCDS intervention; (e) establish a transnational FCDS community of practice across study care homes; (f) estimated costs of providing the FCDS intervention; (g) evidence of enhancing decision making among family members regarding resident care and satisfaction with care. Conclusion Recent research revealed that care home structures and staff play an important role in the successful implementation and adoption of innovations such as the FCDS intervention, this is further examined in this transnational study.

scholarly journals An overview of the spiritual importances of end-of-life care among the five major faiths of the United Kingdom

2018 ◽  
Vol 18 (1) ◽  
pp. 23-31 ◽  
Author(s):  
Mohsin Choudry ◽  
Aishah Latif ◽  
Katharine G Warburton
Keyword(s):  
United Kingdom ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
The United Kingdom
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