scholarly journals Fetal Alcohol Spectrum Disorder service delivery: Exploring current systems of care from the caregivers’ perspective

2013 ◽  
Vol 2 (3) ◽  
pp. 87-92
Author(s):  
Lori Jane Walls ◽  
Jacqueline Pei
Keyword(s):  
Service Delivery ◽  
Fetal Alcohol Spectrum Disorder ◽  
Systems Of Care ◽  
Adoptive Parents ◽  
Spectrum Disorder ◽  
Fetal Alcohol ◽  
Urban Centers ◽  
Study Results ◽  
Fetal Alcohol Spectrum ◽  
Current Systems

Walls, L., & Pei, J. (2013). Fetal Alcohol Spectrum Disorder service delivery: Exploring current systems of care from the caregivers’ perspective. The International Journal Of Alcohol And Drug Research, 2(3), 87-92. doi:10.7895/ijadr.v2i3.75 (http://dx.doi.org/10.7895/ijadr.v2i3.75)Aims: The goals of this study were to: (1) gain improved understanding of the needs of caregivers caring for individuals with FASD; (2) gain improved understanding of the experiences of these caregivers as they attempt to access and implement supports in daily functioning; and (3) gain improved understanding of caregivers’ perceptions of strengths and challenges in systems of care for individuals with FASD.Design: Information for this study was gathered using a phenomenological in-depth interviewing method, allowing the researchers to explore existing services, policies, and local knowledge from the perspective of the caregivers who were accessing services. Participants: A total of eight participants (N = 8) met the criteria for participation.  Six of the participants in the study were adoptive parents and two were foster parents.  Of the eight participants, seven were female and one was male.  Three of the study participants resided in rural locations and five in urban centers. Findings: Results indicated that caregivers pass through four stages of caregiving, with each stage having a distinct primary need and requiring supports and services that best address that need.  Three additional themes related to service delivery also emerged: caregiver considerations, program factors, and building on strengths. Conclusions: Study results emphasize the need for further research exploring the concept that caregivers experience specific caregiving stages, and that programming factors should align with caregivers’ needs in each of these stages.  Participants’ narratives also suggest that the results of this study may be relevant beyond its regional specificity and limited sample size, and may in fact reflect the experiences of caregivers across jurisdictions.

Educational advocacy among adoptive parents of adolescents with fetal alcohol spectrum disorder

2012 ◽  
Vol 16 (11) ◽  
pp. 1203-1221 ◽  
Author(s):  
Cheryll Ann Duquette ◽  
Emma J. Stodel ◽  
Stephanie Fullarton ◽  
Karras Hagglund
Keyword(s):  
Fetal Alcohol Spectrum Disorder ◽  
Adoptive Parents ◽  
Spectrum Disorder ◽  
Fetal Alcohol ◽  
Educational Advocacy ◽  
Fetal Alcohol Spectrum

142 Costs Associated with Fetal Alcohol Spectrum Disorder: A comparison of Indigenous and Non-Indigenous Children

2021 ◽  
Vol 26 (Supplement_1) ◽  
pp. e98-e98
Author(s):  
Brenda Stade ◽  
James Gideon ◽  
Joey (Herbert) Bonifacio ◽  
Douglas Campbell ◽  
Michael Sgro
Keyword(s):  
Fetal Alcohol Spectrum Disorder ◽  
Indirect Costs ◽  
Spectrum Disorder ◽  
Stepwise Multiple Regression ◽  
Significant Determinant ◽  
Fetal Alcohol ◽  
Indigenous Group ◽  
Study Results ◽  
Indigenous Children ◽  
Fetal Alcohol Spectrum

Abstract Primary Subject area Developmental Paediatrics Background The incidence of Fetal Alcohol Spectrum Disorder (FASD) is estimated to be 1 in 100 live births. Caused by prenatal exposure to alcohol, FASD is the leading cause of developmental and cognitive disabilities among Ontario’s children. No study has conducted a comparison of the costs associated with FASD among Indigenous children, and Non-Indigenous children. Objectives To calculate and compare an estimate of direct and indirect costs associated with FASD at the patient level among Indigenous children and Non-Indigenous children living in Ontario. Design/Methods A cross-sectional study design was used. Eight-hundred and thirty (830) participants completed the study tool. Participants included caregivers of children aged 3 months to 17.5 years, living in urban and rural communities throughout Ontario. Four-hundred and twelve (412) participants were Indigenous Ontarians, and 418 participants were Non-Indigenous Ontarians. Participants completed the Health Services Utilization Inventory (HSUI). Key cost components were elicited: direct costs (medical, education, social services, out-of-pocket costs); and indirect costs (productivity losses). Total average costs per child with FASD were calculated by summing the costs for each, in each cost component, and dividing by the sample size. Costs were extrapolated to one year. A t-test was used to compare costs associated with FASD in the two groups. A stepwise multiple regression analysis was used to identify significant determinants of costs. Results Total adjusted annual costs associated with FASD at the individual level was $51,543 (95% CI $46,825; $56,642) among Indigenous children compared to $36,435 (95% CI $31,935; $42,245), among Non-Indigenous children (p<0.01). Severity of the child’s condition and relationship of the child to the caregiver (biological, adoptive, foster) were significant determinants of costs in both groups (p < 0 .01). Age of diagnosis was a significant determinant of costs among the Indigenous group (p < 0.001) but was not a significant determinant in the Non-Indigenous group. On average, Indigenous children were diagnosed with FASD 3.9 years later than Non-Indigenous children. Conclusion Study results demonstrated the cost associated with FASD in Ontario was significantly greater among Indigenous children compared to Non-Indigenous children. Implications for practice, policy, and research are discussed.

Testing two models of stigma for birth mothers of a child with fetal alcohol spectrum disorder.

2019 ◽  
Vol 4 (2) ◽  
pp. 196-203 ◽  
Author(s):  
Karen D. Key ◽  
Haley N. Ceremony ◽  
Allison A. Vaughn
Keyword(s):  
Fetal Alcohol Spectrum Disorder ◽  
Spectrum Disorder ◽  
Fetal Alcohol ◽  
Birth Mothers ◽  
Fetal Alcohol Spectrum

Social perception in children with fetal alcohol spectrum disorder

2016 ◽  
Vol 23 (8) ◽  
pp. 980-993 ◽  
Author(s):  
Sara A. Stevens ◽  
Hayyah Clairman ◽  
Kelly Nash ◽  
Joanne Rovet
Keyword(s):  
Social Perception ◽  
Fetal Alcohol Spectrum Disorder ◽  
Spectrum Disorder ◽  
Fetal Alcohol ◽  
Fetal Alcohol Spectrum
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