Transition of childhood cancer survivors to adult care: The survivor perspective

2016 ◽  
Vol 64 (6) ◽  
pp. e26354 ◽  
Author(s):  
J. E. Fardell ◽  
C. E. Wakefield ◽  
C. Signorelli ◽  
R. Hill ◽  
J. Skeen ◽  
...  
Author(s):  
Giulia Zucchetti ◽  
Simona Bellini ◽  
Marina Bertolotti ◽  
Eleonora Biasin ◽  
Enrico Brignardello ◽  
...  

AbstractBackgroundTo provide successful transfer from childhood to adult-oriented healthcare is one of the priorities of survivorship care plans.PurposeThis study describes adolescent and young adult childhood cancer survivors’ conditions at the moment of the transition to adult care deepening their biological, psychological, social and assistant state and their associations with socio-demographic and clinical characteristics.MethodsA biopsychosocial check-list in four health domains (biological, psychological, social and assistant) was filled in by healthcare professionals (oncologists, psychologists, social workers and nurses) through qualitative interviews and clinical observations of 79 survivors (58% boys; Mage= 20 years old) at the moment of the transition from the Pediatric Oncology Unit to the Transition Unit of the Childhood Cancer Survivors.ResultsAt the moment of transition, 38% of survivors showed a positive condition in all the four health domains without any kind of impairment. Biological (37%) and psychological areas (44%) were found to be those with major incidence of impairments. Association phenomena were found between psychological and social condition (p < 0.05) and between social and assistant condition (p < 0.05). Biological condition was also significantly associated with the type of cancer (χ = 6,2414, p < 0.05).ConclusionAlthough many survivors entered in adult care system without any impairment, the biopsychosocial approach highlighted that there is a presence of impairments in at least one of the main health domains.


2018 ◽  
Vol 26 (8) ◽  
pp. 2743-2750 ◽  
Author(s):  
Beeshman S. Nandakumar ◽  
◽  
Joanna E. Fardell ◽  
Claire E. Wakefield ◽  
Christina Signorelli ◽  
...  

2016 ◽  
Vol 64 (2) ◽  
pp. 346-352 ◽  
Author(s):  
Lisa B. Kenney ◽  
Patrice Melvin ◽  
Laurie N. Fishman ◽  
Joanne O'Sullivan-Oliveira ◽  
Gregory S. Sawicki ◽  
...  

2016 ◽  
Vol 34 (1) ◽  
pp. 20-27 ◽  
Author(s):  
Joanne Quillen ◽  
Holli Bradley ◽  
Christina Calamaro

The aim of this study was to identify and describe barriers of young adult childhood cancer survivors transitioning to adult health care within 5 years of leaving a pediatric oncology practice. Several barriers have been identified in the literature, but other obstacles as to why this vulnerable population may be avoiding health care are unknown. This is a descriptive pilot study of a convenience sample of childhood cancer survivors, currently 20 to 25 years of age, who were diagnosed at less than 21 years of age. The Transition to Adult Care Survey assessing survivor barriers is an online survey consisting of 15 questions, with a drop-down menu for answers and 2 open-ended questions. The survey was accessible by smartphone or computer. Standard descriptive statistics were used to describe variables of interest. Our population consisted of 48 childhood cancer survivors. Their mean age was 23.21 years. Only 74% reported following through with annual preventive screening, and 57% reported that they consider themselves at risk for further medical problems as a result of their cancer treatment. Lack of knowledge of the importance of health screening may be a potential barrier to consistent follow-up care.


2017 ◽  
Vol 64 (10) ◽  
pp. e26544 ◽  
Author(s):  
Natasha N. Frederick ◽  
Sharon L. Bober ◽  
Lexie Berwick ◽  
Mary Tower ◽  
Lisa B. Kenney

2014 ◽  
Vol 32 (15_suppl) ◽  
pp. 10088-10088
Author(s):  
Lisa Brazzamano Kenney ◽  
Patrice Melvin ◽  
Laurie Fishman ◽  
Joanne O'Sullivan-Oliveira ◽  
Gregory S Sawicki ◽  
...  

2012 ◽  
Vol 6 (3) ◽  
pp. 260-269 ◽  
Author(s):  
Leeat Granek ◽  
Paul C. Nathan ◽  
Zahava R. S. Rosenberg-Yunger ◽  
Norma D’Agostino ◽  
Leila Amin ◽  
...  

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