Impact of high self-perceived burden to others with preferences for end-of-life care and its determinants for terminally ill cancer patients: a prospective cohort study

2016 ◽  
Vol 26 (1) ◽  
pp. 102-108 ◽  
Author(s):  
Siew Tzuh Tang ◽  
Chia-Hsun Hsieh ◽  
Ming-Chu Chiang ◽  
Jen-Shi Chen ◽  
Wen-Cheng Chang ◽  
...  
Keyword(s):  
Cohort Study ◽  
End Of Life ◽  
Cancer Patients ◽  
Prospective Cohort Study ◽  
End Of Life Care ◽  
Prospective Cohort ◽  
Terminally Ill ◽  
Life Care ◽  
Terminally Ill Cancer Patients ◽  
Perceived Burden

scholarly journals Associations between palliative chemotherapy and adult cancer patients' end of life care and place of death: prospective cohort study

BMJ ◽  
2014 ◽  
Vol 348 (mar04 4) ◽  
pp. g1219-g1219 ◽  
Author(s):  
A. A. Wright ◽  
B. Zhang ◽  
N. L. Keating ◽  
J. C. Weeks ◽  
H. G. Prigerson
Keyword(s):  
Cohort Study ◽  
End Of Life ◽  
Cancer Patients ◽  
Prospective Cohort Study ◽  
End Of Life Care ◽  
Prospective Cohort ◽  
Palliative Chemotherapy ◽  
Place Of Death ◽  
Life Care

Accurate prognostic awareness and preference states influence the concordance between terminally ill cancer patients’ states of preferred and received life-sustaining treatments in the last 6 months of life

2019 ◽  
Vol 33 (8) ◽  
pp. 1069-1079 ◽  
Author(s):  
Fur-Hsing Wen ◽  
Jen-Shi Chen ◽  
Wen-Cheng Chang ◽  
Wen-Chi Chou ◽  
Chia-Hsun Hsieh ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
End Of Life Care ◽  
Nutritional Support ◽  
Terminally Ill ◽  
Cardiac Massage ◽  
Life Care ◽  
Terminally Ill Cancer Patients ◽  
Life Sustaining Treatment ◽  
To Receive

Background: Factors facilitating/hindering concordance between preferred and received life-sustaining treatments may be distorted if preferences and predictors are measured long before death. Aim: To examine factors facilitating/hindering concordance between cancer patients’ preferred and received life-sustaining-treatment states in their last 6 months. Design: Longitudinal, observational design. Setting/participants: States of preferred and received life-sustaining treatments (cardio-pulmonary resuscitation, intensive care unit care, cardiac massage, intubation with mechanical ventilation, intravenous nutritional support, and nasogastric tube feeding) were examined in 218 Taiwanese cancer patients by a latent transition model with hidden Markov modeling. Multivariate logistic regression modeling was used to examine factors facilitating/hindering concordance between preferred and received life-sustaining-treatment states. Results: Concordance between preferred and received life-sustaining-treatment states was poor (40.8%, kappa value (95% confidence interval): 0.05 [–0.03, 0.14]). Patients who accurately understood their prognosis and preferred comfort care were significantly more likely to receive preferred life-sustaining treatments before death than those who did not know their prognosis but wanted to know, those who were uniformly uncertain about what life-sustaining treatments they preferred to receive, and those who preferred nutritional support but declined other life-sustaining treatments. Patient age, physician–patient end-of-life-care discussions, symptom distress, and functional dependence were not associated with concordance between preferred and received life-sustaining-treatment states. Conclusion: Prognostic awareness and preferred states of life-sustaining treatments were significantly associated with concordance between preferred and received life-sustaining-treatment states. Personalized interventions should be developed to cultivate terminally ill cancer patients’ accurate prognostic awareness, allowing them to formulate realistic life-sustaining-treatment preferences and facilitating their receiving value-concordant end-of-life care.

Associations between accurate prognostic understanding and end-of-life care preferences and its correlates among Taiwanese terminally ill cancer patients surveyed in 2011-2012

2014 ◽  
Vol 23 (7) ◽  
pp. 780-787 ◽  
Author(s):  
Siew Tzuh Tang ◽  
Tsang-Wu Liu ◽  
Jyh-Ming Chow ◽  
Chang-Fang Chiu ◽  
Ruey-Kuen Hsieh ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
End Of Life Care ◽  
Terminally Ill ◽  
Life Care ◽  
Terminally Ill Cancer Patients

scholarly journals Longitudinal Changes and Predictors of Caregiving Burden While Providing End-of-Life Care for Terminally Ill Cancer Patients

2013 ◽  
Vol 16 (6) ◽  
pp. 632-637 ◽  
Author(s):  
Kwo C. Lee ◽  
Wen-Cheng Chang ◽  
Wen-Chi Chou ◽  
Po-Jung Su ◽  
Chia-hsun Hsieh ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
End Of Life Care ◽  
Terminally Ill ◽  
Life Care ◽  
Caregiving Burden ◽  
Longitudinal Changes ◽  
Terminally Ill Cancer Patients
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