At the Intersection of Digital Research and Sexual Violence: Insights on Gaining Informed Consent from Vulnerable Participants

The Ethics of Digital Research

The Oxford Handbook of Networked Communication ◽

10.1093/oxfordhb/9780190460518.013.25 ◽

2019 ◽

pp. 512-519

Author(s):

Jeffrey T. Hancock

Keyword(s):

Informed Consent ◽

Emotional Contagion ◽

Legal Issues ◽

Heterogeneous Populations ◽

Key Issues ◽

The Many ◽

Ecosystem Changes ◽

Digital Research

With all the important changes to methodology that research on networked communication brings, a key dimension that must be addressed is how to conduct research ethically. This chapter introduces section VI of the Handbook and reviews some of the key challenges that arise when doing digital research. This introduction draws from the many conversations the author had with various stakeholders about the the key issues surrounding the Facebook Emotional Contagion study, and it uses that discussion to highlight the main contributions of the chapters in this section. Some of the challenges considered include the evolving research ecosystem, changes in privacy practices, informed consent, heterogeneous populations and cultures, and technical and legal issues.

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Equipoise, Informed Consent and Clinical Research

Perspectives on Swallowing and Swallowing Disorders (Dysphagia) ◽

10.1044/sasd11.2.22 ◽

2002 ◽

Vol 11 (2) ◽

pp. 22-23

Author(s):

Lynne C. Brady Wagner

Keyword(s):

Informed Consent ◽

Clinical Research

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Tools and Resources: Web Sites of Interest

Guides Newsletter ◽

10.1001/amaguidesnewsletters.2001.marapr03 ◽

2001 ◽

Vol 6 (2) ◽

pp. 6-8

Author(s):

Christopher R. Brigham

Keyword(s):

Informed Consent ◽

Physical Examination ◽

Functional Status ◽

Web Sites ◽

Satisfaction Survey ◽

High Quality ◽

Diagnostic Studies ◽

Physician Relationship ◽

Complete History

Abstract The AMA Guides to the Evaluation of Permanent Impairment (AMA Guides), Fifth Edition, explains that independent medical evaluations (IMEs) are not the same as impairment evaluations, and the evaluation must be designed to provide the data to answer the questions asked by the requesting client. This article continues discussions from the September/October issue of The Guides Newsletter and examines what occurs after the examinee arrives in the physician's office. First are orientation and obtaining informed consent, and the examinee must understand that there is no patient–physician relationship and the physician will not provide treatment bur rather will send a report to the client who requested the IME. Many physicians ask the examinee to complete a questionnaire and a series of pain inventories before the interview. Typical elements of a complete history are shown in a table. An equally detailed physical examination follows a meticulous history, and standardized forms for reporting these findings are useful. Pain and functional status inventories may supplement the evaluation, and the examining physician examines radiographic and diagnostic studies. The physician informs the interviewee when the evaluation is complete and, without discussing the findings, asks the examinee to complete a satisfaction survey and reviews the latter to identify and rectify any issues before the examinee leaves. A future article will discuss high-quality IME reports.

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Informed Consent: Exceptions to Disclosure

Internal Medicine News ◽

10.1016/s1097-8690(10)70492-3 ◽

2010 ◽

Vol 43 (9) ◽

pp. 48

Author(s):

S.Y. TAN

Keyword(s):

Informed Consent

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FDA Reviews One Informed Consent Rule

Rheumatology News ◽

10.1016/s1541-9800(06)71614-3 ◽

2006 ◽

Vol 5 (12) ◽

pp. 62

Author(s):

ELIZABETH MECHCATIE

Keyword(s):

Informed Consent

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Informed Consent

10.1017/cbo9781139057523 ◽

2011 ◽

Cited By ~ 5

Author(s):

Deborah Bowman ◽

John Spicer ◽

Rehana Iqbal

Keyword(s):

Informed Consent

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Autonomy, Privacy and the Implementation of the Principle of Informed Consent with regard to the Nursing Interventions from the View of elderly People

Pflege ◽

10.1024/1012-5302.14.1.29 ◽

2001 ◽

Vol 14 (1) ◽

pp. 29-37 ◽

Cited By ~ 1

Author(s):

Anja Schopp ◽

Theo Dassen ◽

Maritta Välimäki ◽

Helena Leino-Kilpi ◽

Gerd Bansemir ◽

...

Keyword(s):

Informed Consent ◽

Elderly People ◽

Ältere Menschen ◽

Nursing Interventions ◽

Patient’S Autonomy

Ziel dieser Untersuchung war die Autonomie, Privatheit und die Umsetzung des Prinzips der «informierten Zustimmung» aus der Perspektive des institutionell zu betreuenden, älteren Menschen zu beschreiben. Die Untersuchung ist ein Teil des durch die EU-Kommission unterstützten BIOMED 2 Projektes «Patient’s autonomy and privacy in nursing interventions»1. Interviewdaten (n = 95) wurden in deutschen Kliniken der Geriatrie und Pflegeheimen gesammelt. Ergebnisse zeigten, dass die Teilnehmer in geringem Maß selbstbestimmte Entscheidungen treffen konnten. Das Prinzip der «informierten Zustimmung» wurde wenig umgesetzt. Ihre Privatheit sahen die Teilnehmer in Mehrbettzimmern sowie in Situationen des Ankleidens und bei der Verrichtung der Ausscheidungen nicht respektiert. Es ist anzunehmen, dass ältere Menschen wegen Informationsdefiziten, durch ihren Hilfsbedarf und durch die festgelegten Organisationsstrukturen der Pflegeeinrichtungen eine passive Krankenrolle übernehmen. Es wäre denkbar, dass die Autonomie der älteren Menschen gefördert werden könnte, wenn die Pflegekräfte sie in der Rolle des Fürsprechers bei selbstbestimmten Entscheidungen unterstützen würden. Bei den pflegerischen Interventionen würde die Umsetzung des Prinzips der «informierten Zustimmung» sowohl die Autonomie als auch die Respektierung der Privatheit fördern. Es ist außerdem anzunehmen, dass durch Flexibilisierung der Organisationsstrukturen der Pflegeeinrichtungen die Autonomie und Lebensqualität der älteren Menschen gefördert werden könnte.

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