Transboundary Data Sharing and Resilience Scenarios: Harnessing the Role of Regional Organizations for Environmental Security

2016 ◽  
pp. 121-139
Author(s):  
Saleem H. Ali ◽  
Asim Zia
Keyword(s):  
Data Sharing ◽  
Environmental Security ◽  
Regional Organizations

Formal and Informal Groups

2018 ◽  
pp. 331-345
Author(s):  
Monica Herz
Keyword(s):  
Human Rights ◽  
International System ◽  
Regional Governance ◽  
Democratic Governance ◽  
International Governance ◽  
Regional Organizations ◽  
Regional Interaction ◽  
Governance Practices ◽  
Informal Groups

The chapter examines the idea and practice of regional governance during the last twenty years. Intergovernmental regional organizations provide the focus of the analysis as they often are the hub of regional interaction leading to the generation of rules. In order to understand the idea of regional governance, the chapter looks into the relation between this idea and three other processes taking place in the international system: the changing nature of sovereignty, globalization, and the challenges to nationally based representative democracy. The role of regional multidimensional organizations that perform similar tasks in the human rights is a focus in the humanitarian, democratic governance, development, and security spheres as a result of the diffusion of international governance practices.

Biobank Participants’ Attitudes Toward Data Sharing and Privacy: The Role of Trust in Reducing Perceived Risks

2021 ◽  
pp. 155626462110552
Author(s):  
T.J. Kasperbauer ◽  
Colin Halverson ◽  
Abby Garcia ◽  
Peter H. Schwartz
Keyword(s):  
Health Information ◽  
Data Sharing ◽  
Healthcare System ◽  
Close Reading ◽  
Structured Interviews ◽  
Knowledge Test ◽  
Consent Forms ◽  
Perceived Risks ◽  
Participant Understanding

Biobank participants are often unaware of possible uses of their genetic and health information, despite explicit descriptions of those uses in consent forms. To explore why this misunderstanding persists, we conducted semi-structured interviews and knowledge tests with 22 participants who had recently enrolled in a research biobank. Results indicated that participants lacked understanding of privacy and data-sharing topics but were mostly unconcerned about associated risks. Participants described their answers on the knowledge test as largely driven by their trust in the healthcare system, not by a close reading of the information presented to them. This finding may help explain the difficulties in increasing participant understanding of privacy-related topics, even when such information is clearly presented in biobank consent forms.

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