scholarly journals A New Taxonomy for Stakeholder Engagement in Patient-Centered Outcomes Research

2012 ◽  
Vol 27 (8) ◽  
pp. 985-991 ◽  
Author(s):  
Thomas W. Concannon ◽  
Paul Meissner ◽  
Jo Anne Grunbaum ◽  
Newell McElwee ◽  
Jeanne-Marie Guise ◽  
...  
Keyword(s):  
Outcomes Research ◽  
Stakeholder Engagement ◽  
Patient Centered

scholarly journals FP02.08 Importance of Stakeholder Engagement in a Patient-Centered Outcomes Research Trial

2021 ◽  
Vol 16 (3) ◽  
pp. S192
Author(s):  
V. Musigdilok ◽  
B. Creekmur ◽  
E. Rozema ◽  
M. Gould
Keyword(s):  
Outcomes Research ◽  
Stakeholder Engagement ◽  
Patient Centered

scholarly journals Patient and Other Stakeholder Engagement in Patient-Centered Outcomes Research Institute Funded Studies of Patients with Kidney Diseases

2016 ◽  
Vol 11 (9) ◽  
pp. 1703-1712 ◽  
Author(s):  
Daniel Cukor ◽  
Lewis M. Cohen ◽  
Elizabeth L. Cope ◽  
Nasrollah Ghahramani ◽  
S. Susan Hedayati ◽  
...  
Keyword(s):  
Outcomes Research ◽  
Stakeholder Engagement ◽  
Kidney Diseases ◽  
Patient Centered ◽  
Research Institute

A Comprehensive Stakeholder Engagement Plan for the Patient Centered Outcomes Research Network (PCORnet) Bariatric Study

2016 ◽  
Vol 12 (7) ◽  
pp. S194-S195
Author(s):  
Karen Coleman ◽  
Neely Williams ◽  
Jane Anau ◽  
Caroline Apovian ◽  
Anita Courcoulas ◽  
...  
Keyword(s):  
Outcomes Research ◽  
Stakeholder Engagement ◽  
Research Network ◽  
Patient Centered

scholarly journals A Novel Stakeholder Engagement Approach for Patient-centered Outcomes Research

Medical Care ◽  
2018 ◽  
Vol 56 ◽  
pp. S41-S47 ◽  
Author(s):  
Katherine K. Kim ◽  
Dmitry Khodyakov ◽  
Kate Marie ◽  
Howard Taras ◽  
Daniella Meeker ◽  
...  
Keyword(s):  
Outcomes Research ◽  
Stakeholder Engagement ◽  
Patient Centered

Stakeholder engagement in patient-centered outcomes research: high-touch or high-tech?

2014 ◽  
Vol 14 (3) ◽  
pp. 335-344 ◽  
Author(s):  
Danielle C Lavallee ◽  
Paul Wicks ◽  
Rafael Alfonso Cristancho ◽  
C Daniel Mullins
Keyword(s):  
Outcomes Research ◽  
Stakeholder Engagement ◽  
High Tech ◽  
Patient Centered

scholarly journals A Systematic Review of Stakeholder Engagement in Comparative Effectiveness and Patient-Centered Outcomes Research

2014 ◽  
Vol 29 (12) ◽  
pp. 1692-1701 ◽  
Author(s):  
Thomas W. Concannon ◽  
Melissa Fuster ◽  
Tully Saunders ◽  
Kamal Patel ◽  
John B. Wong ◽  
...  
Keyword(s):  
Systematic Review ◽  
Outcomes Research ◽  
Stakeholder Engagement ◽  
Comparative Effectiveness ◽  
Patient Centered

scholarly journals So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research

2015 ◽  
Vol 2 (1) ◽  
pp. 43-49 ◽  
Author(s):  
Amanda Brodt, M.P.P. ◽  
Christine K. Norton, M.A. ◽  
Amy Kratchman
Keyword(s):  
Outcomes Research ◽  
Stakeholder Engagement ◽  
Patient Centered

scholarly journals Unanticipated Therapeutic Value of the Patient-Centered Outcomes Research Institute (PCORI) Stakeholder Engagement Project for Homebound Older Adults

2020 ◽  
Vol 21 (8) ◽  
pp. 1172-1173
Author(s):  
Orla C. Sheehan ◽  
Christine S. Ritchie ◽  
Sarah B. Garrett ◽  
Krista L. Harrison ◽  
Alexandria Mickler ◽  
...  
Keyword(s):  
Older Adults ◽  
Outcomes Research ◽  
Stakeholder Engagement ◽  
Patient Centered ◽  
Therapeutic Value ◽  
Homebound Older Adults ◽  
Research Institute

scholarly journals Methods guiding stakeholder engagement in planning a pragmatic study on changing stroke systems of care

2017 ◽  
Vol 1 (2) ◽  
pp. 121-128 ◽  
Author(s):  
Sabina B. Gesell ◽  
Karen Potvin Klein ◽  
Jacqueline Halladay ◽  
Janet Prvu Bettger ◽  
Janet Freburger ◽  
...  
Keyword(s):  
Outcomes Research ◽  
Stakeholder Engagement ◽  
Transitional Care ◽  
Systems Of Care ◽  
Hospital Readmissions ◽  
Pragmatic Trial ◽  
Stakeholder Involvement ◽  
Patient Centered ◽  
Research Activities ◽  
Research Institute

Background: The Comprehensive Post-Acute Stroke Services (COMPASS) Study is one of the first large pragmatic randomized-controlled clinical trials using comparative effectiveness research methods, funded by the Patient-Centered Outcomes Research Institute. In the COMPASS Study, we compare the effectiveness of a patient-centered, transitional care intervention versus usual care for stroke patients discharged home from acute care. Outcomes include stroke patient post-discharge functional status and caregiver strain 90 days after discharge, and hospital readmissions. A central tenet of Patient-Centered Outcomes Research Institute-funded research is stakeholder engagement throughout the research process. However, evidence on how to successfully implement a pragmatic trial that changes systems of care in combination with robust stakeholder engagement is limited. This combination is not without challenges. Methods: We present our approach for broad-based stakeholder engagement in the context of a pragmatic trial with the participation of patients, caregivers, community stakeholders, including the North Carolina Stroke Care Collaborative hospital network, and policy makers. To maximize stakeholder engagement throughout the COMPASS Study, we employed a conceptual model with the following components: (1) Patient and Other Stakeholder Identification and Selection; (2) Patient and Other Stakeholder Involvement Across the Spectrum of Research Activities; (3) Dedicated Resources for Patient and Other Stakeholder Involvement; (4) Support for Patient and Other Stakeholder Engagement Through Organizational Processes; (5) Communication with Patients and Other Stakeholders; (6) Transparent Involvement Processes; (7) Tracking of Engagement; and (8) Evaluation of Engagement. Conclusion: In this paper, we describe how each component of the model is being implemented and how this approach addresses existing gaps in the literature on strategies for engaging stakeholders in meaningful and useful ways when conducting pragmatic trials.

Sign in / Sign up

Export Citation Format

Share Document