The challenge of performing effective medical research in the era of healthcare data protection

2014 ◽  
Vol 177 (2) ◽  
pp. 510-511 ◽  
Author(s):  
Giuseppe Rosano ◽  
Francesco Pelliccia ◽  
Carlo Gaudio ◽  
Andrew J. Coats
Keyword(s):  
Medical Research ◽  
Data Protection ◽  
Healthcare Data

6. Medical Confidentiality

2019 ◽  
pp. 162-200
Author(s):  
G. T. Laurie ◽  
S. H. E. Harmon ◽  
E. S. Dove
Keyword(s):  
Medical Research ◽  
Data Protection ◽  
Medical Records ◽  
Legal Aspects ◽  
Patient Access ◽  
Legal Process ◽  
Medical Confidentiality ◽  
Data Protection Law ◽  
The Relationship

This chapter discusses ethical and legal aspects of medical confidentiality. It covers the relationship between confidentiality and data protection law; the possible exceptions to the confidentiality rule; confidentiality and the legal process; confidentiality for the purposes of medical research; patient access to medical records; remedies for breach of confidentiality; and confidentiality and death.

scholarly journals Freedom of Information and Healthcare Data — The First UK Appeal: Common Services Agency v the Scottish Information Commissioner

2007 ◽  
Vol 14 (2) ◽  
pp. 189-195 ◽  
Author(s):  
Renate Gertz
Keyword(s):  
Data Protection ◽  
Childhood Leukemia ◽  
Health Data ◽  
Freedom Of Information ◽  
Healthcare Data

AbstractOn the 1st of December 2006, the Court of Session in Edinburgh issued the first decision on Freedom of Information and health data regarding a request for information on incidences of childhood leukemia, in the range of 0 - 14 years, by year and census ward from 1990 to 2003 for the Dumfries and Galloway postal areas. The case, which provides an example for the collision course between the Freedom of Information and Data Protection regime, had been anticipated as a landmark decision, however, due to several problems and inconsistencies it sadly failed to meet those expectations.

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