Improving Recurrence Capture in a National Breast Cancer Registry

2016 ◽  
Vol 223 (4) ◽  
pp. e79
Author(s):  
Elizabeth R. Berger ◽  
Jessica R. Schumacher ◽  
Amanda B. Francescatti ◽  
George J. Chang ◽  
Benjamin D. Kozower ◽  
...  
2015 ◽  
Vol 33 (15_suppl) ◽  
pp. e12653-e12653
Author(s):  
Mustafa Benekli ◽  
Kadri Altundag ◽  
Esra Dumanli ◽  
Abdurrahman Isikdogan ◽  
Aziz Karaoglu ◽  
...  

2015 ◽  
Vol 33 (15_suppl) ◽  
pp. e12657-e12657
Author(s):  
Ugur Coskun ◽  
Kadri Altundag ◽  
Mehmet Aliustaoglu ◽  
Dogan Uncu ◽  
Metin Ozkan ◽  
...  

2015 ◽  
Vol 33 (15_suppl) ◽  
pp. e12656-e12656
Author(s):  
Saadettin Kilickap ◽  
Kadri Altundag ◽  
Esra Dumanli ◽  
Mahmut Gumus ◽  
Ruchan Uslu ◽  
...  

2015 ◽  
Vol 33 (15_suppl) ◽  
pp. e12654-e12654
Author(s):  
Kadri Altundag ◽  
Esra Dumanli ◽  
Mehmet Aliustaoglu ◽  
Dogan Uncu ◽  
Metin Ozkan ◽  
...  

2016 ◽  
Vol 156 (3) ◽  
pp. 485-494 ◽  
Author(s):  
Takayuki Iwamoto ◽  
Hiraku Kumamaru ◽  
Hiroaki Miyata ◽  
Ai Tomotaki ◽  
Naoki Niikura ◽  
...  

2017 ◽  
Vol 77 (08) ◽  
pp. 870-878 ◽  
Author(s):  
Markus Wallwiener ◽  
Felix Heindl ◽  
Sara Brucker ◽  
Florin-Andrei Taran ◽  
Andreas Hartkopf ◽  
...  

Abstract Purpose Patient-reported outcomes (PROs) have been incorporated into clinical trials for many symptoms and medical conditions. A transition from paper-based capture of PROs to electronic PROs (ePROs) has recently started. This study reports on the feasibility of ePRO assessment in a prospective registry including molecular data for patients with advanced breast cancer. Methods As part of the PRAEGNANT network, patients were invited by clinical trial staff, physicians, and nurses to complete three standardized Internet-based questionnaires (EQ 5D 5 L, CES-D and IPAQ). Feasibility was assessed by the staff members who assigned the user accounts by the patients. The completeness of the questionnaires was also assessed. Results Fifteen of 17 patients who were asked agreed to participate to complete the PRO questionnaires (EQ-5D-5L and CES-D). However, the IPAQ (physical activity) questionnaire was only validly completed by 9 patients. Feasibility was ranked better by the physicians and dedicated clinical trial staff than by the nursing staff. Conclusions Incorporating ePRO questionnaires into an advanced breast cancer registry is feasible, and no major hurdles were reported. Involving stakeholders from the start, the application is tailored to the capacities and abilities of both patients and clinical staff. The patientsʼ compliance was better with some questionnaires, but others may present difficulties.


2012 ◽  
Vol 19 (2) ◽  
pp. 336-346 ◽  
Author(s):  
Anna Marie Mulligan ◽  
Irene Raitman ◽  
Linda Feeley ◽  
Dushanthi Pinnaduwage ◽  
Linh T. Nguyen ◽  
...  

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