Prospective evaluation of patient reported swallow function with the Functional Assessment of Cancer Therapy (FACT), MD Anderson Dysphagia Inventory (MDADI) and the Sydney Swallow Questionnaire (SSQ) in head and neck cancer patients

Oral Oncology ◽  
2018 ◽  
Vol 84 ◽  
pp. 25-30 ◽  
Author(s):  
Luke C. Peng ◽  
Xuan Hui ◽  
Zhi Cheng ◽  
Michael R. Bowers ◽  
Joseph Moore ◽  
...  
Keyword(s):  
Head And Neck Cancer ◽  
Cancer Therapy ◽  
Cancer Patients ◽  
Functional Assessment ◽  
Prospective Evaluation ◽  
Patient Reported ◽  
Sydney Swallow Questionnaire ◽  
Md Anderson ◽  
Anderson Dysphagia Inventory ◽  
Swallow Function

Patient-Reported Outcomes Integrated Within an Electronic Medical Record in Patients With Head and Neck Cancer

2021 ◽  
pp. 842-848
Author(s):  
Stephanie Ossowski ◽  
Amy Kammerer ◽  
Douglas Stram ◽  
Lisa Piazza-DeLap ◽  
Ethan Basch ◽  
...  
Keyword(s):  
Head And Neck Cancer ◽  
Cancer Therapy ◽  
Head And Neck ◽  
Medical Record ◽  
Electronic Medical Record ◽  
Neck Cancer ◽  
Functional Assessment ◽  
Primary Language ◽  
Patient Reported ◽  
Pro Tools

PURPOSE Patient-reported outcome (PRO) tools lead to clinical benefits, including improved overall survival for patients with cancer. However, routine implementation of PROs in clinical practice within the electronic medical record (EMR) by integrated health care delivery systems remains limited. We studied the use of a PRO tool for patients with head and neck cancer (HNC) integrated in an EMR at Kaiser Permanente in Northern California. METHODS Between August 2017 and December 2019, patients with newly diagnosed HNC were surveyed at baseline, then every 3 months using the Functional Assessment of Cancer Therapy–General 7 and Functional Assessment of Cancer Therapy–Head and Neck (version 4). A medical assistant performed a baseline survey on diagnosis and then notified patients electronically per surveillance protocol. Patients who did not respond to online PRO surveys could complete them via telephone or in-person appointments with medical assistants. Abnormal findings on PRO surveys were referred to appropriate members of the care team or the treating Otolaryngology-Head and Neck Surgery physicians. RESULTS Two hundred ninety patients received baseline surveys. Patients received up to a maximum of eight subsequent surveys. Of a total of 597 electronic surveys, 585 (97.9%) were completed. The percentage of patients completing each interval survey ranged from 92% to 100%. Multivariate Poisson regression analysis showed patients with English as their primary language and an online secure account were the most likely to complete surveys compared with those patients with non-English as a primary language and without an online account. CONCLUSION PRO tools can be effectively used within the EMR for patients with HNC with a high response rate provided there is strong engagement from a dedicated member of the care team. This has important implications for designing clinical trials and symptom monitoring in clinical practices that incorporate EMRs.

Translation and Linguistic Validation of the Simplified Chinese Brain Cancer Patient-Reported Outcomes Evaluation System

2020 ◽  
Author(s):  
Chaohong Zhan ◽  
Honghui Yao ◽  
Gelei Xiao ◽  
Zhi Tang ◽  
Ye Liang ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Therapy ◽  
Cancer Patients ◽  
Functional Assessment ◽  
Brain Cancer ◽  
Evaluation System ◽  
Measurement Theory ◽  
Patient Reported ◽  
Conceptual Equivalence

Abstract BackgroundThe Functional Assessment of Cancer Therapy Scale Brain Cancer-Specific Module (FACT-Br) was developed by a standard measurement theory and used to assess the symptoms, functions, and quality of life among brain cancer patients in English spoken countries. However, this instrument has not been translated into Chinese.ObjectiveThis study aimed to develop the Chinese version of the Functional Assessment of Cancer Therapy Scale Brain Cancer-Specific Module (C-FACT-Br).MethodsC-FACT-Br was translated following the standard Functional Assessment of Chronic Illness Therapy Translation (FACIT) methodology. Then, the cognitive briefing interviews were done to ensure the conceptual equivalence by probing 10 native Chinese-speaking brain cancer patients.ResultsThe translation was finished by bilingual teams with the help of the FACIT organization. All items in C-FACT-Br were understandable to patients, and they also gave some comments in adjusting items in scale.ConclusionsC-FACIT-Br items had the equivalence meaning, same structure, and harmonization with the English version. Brain cancer patients over 18 years old can understand the scale and express their symptoms, function, and quality of life by these measures.

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