scholarly journals A typology of transition readiness for adolescents with congenital heart disease in preparation for transfer from pediatric to adult care

2021 ◽  
Vol 60 ◽  
pp. 267-274
Author(s):  
Steffany Charles ◽  
Andrew S. Mackie ◽  
Laura G. Rogers ◽  
Brian W. McCrindle ◽  
Adrienne H. Kovacs ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Adult Care ◽  
Transition Readiness

scholarly journals Ready for Transfer to Adult Care? A Triadic Evaluation of Transition Readiness in Adolescents With Congenital Heart Disease and Their Parents

2019 ◽  
Vol 25 (3) ◽  
pp. 447-468 ◽  
Author(s):  
Åsa Burström ◽  
Mariela Acuña Mora ◽  
Maria Öjmyr-Joelsson ◽  
Carina Sparud-Lundin ◽  
Annika Rydberg ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Parental Involvement ◽  
Chronic Conditions ◽  
Congenital Heart ◽  
Adult Care ◽  
Mothers And Fathers ◽  
Negatively Associated ◽  
Transition Readiness ◽  
Multivariable Analyses

Transfer to adult care for adolescents with chronic conditions ought to be determined by transition readiness. The aims of this study were (a) to describe the level of readiness for transition in adolescents with congenital heart disease, (b) to compare adolescents’ assessment of transition readiness with their parents’ assessments, and (c) to study potential correlates of transition readiness. A total of 157 triads of adolescents aged 14 to 18 years and their parents completed the Readiness for Transition Questionnaire. Adolescents scored higher on overall readiness than their parents. Multivariable analyses revealed that higher levels of adolescents’ overall readiness were associated with a less threatening view of the illness, a higher level of empowerment, and with higher mothers’ and fathers’ overall readiness scores. Adolescents’ responsibility scores were positively associated with age and parental adolescent responsibility scores. Parental involvement scores were negatively associated with adolescents’ age and positively with the mothers’ parental involvement scores. By using a triadic evaluation, the results of the present study significantly extend what is currently known about this population.

Transition and transfer from pediatric to adult care of young adults with complex congenital heart disease

2009 ◽  
Vol 11 (4) ◽  
pp. 291-297 ◽  
Author(s):  
Alison Knauth Meadows ◽  
Valerie Bosco ◽  
Elizabeth Tong ◽  
Susan Fernandes ◽  
Arwa Saidi
Keyword(s):  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Congenital Heart ◽  
Complex Congenital Heart Disease ◽  
Adult Care

Transition Readiness in Teens and Young Adults with Congenital Heart Disease: Can We Make a Difference?

2020 ◽  
Vol 221 ◽  
pp. 201-206.e1
Author(s):  
Karen Uzark ◽  
Sunkyung Yu ◽  
Ray Lowery ◽  
Katherine Afton ◽  
Anji T. Yetman ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Young Adults ◽  
Heart Disease ◽  
Congenital Heart ◽  
Transition Readiness

scholarly journals ADULTS WITH CONGENITAL HEART DISEASE: THE CRITICAL TRANSITION FROM PAEDIATRICS TO ADULT CARE

2019 ◽  
Vol 35 (10) ◽  
pp. S204-S205
Author(s):  
A. Suliman ◽  
R. Ducas ◽  
B. Hiebert ◽  
J. Tam ◽  
A. Shah ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Critical Transition ◽  
Adult Care

scholarly journals Transition from paediatric to adult care of adolescent patients with congenital heart disease: a pathway to optimal care

2016 ◽  
Vol 24 (11) ◽  
pp. 682-690 ◽  
Author(s):  
A. M. M. Strijbosch ◽  
R. Zwart ◽  
N. A. Blom ◽  
B. J. Bouma ◽  
M. Groenink ◽  
...  
Keyword(s):  
Congenital Heart Disease ◽  
Heart Disease ◽  
Congenital Heart ◽  
Adult Care ◽  
Optimal Care ◽  
Adolescent Patients
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