Response to anakinra in new-onset refractory status epilepticus: A clinical case

Seizure ◽  
2022 ◽  
Vol 94 ◽  
pp. 92-94
Author(s):  
Michael Palacios-Mendoza ◽  
Ana Gómez ◽  
Julio Prieto ◽  
Juan Camilo Barrios ◽  
María Orera ◽  
...  
Keyword(s):  
Status Epilepticus ◽  
Clinical Case ◽  
Refractory Status Epilepticus ◽  
Refractory Status ◽  
New Onset

scholarly journals New-Onset Refractory Status Epilepticus (NORSE): literature review and clinical case description

2020 ◽  
Vol 12 (3) ◽  
pp. 169-176
Author(s):  
S. G. Burd ◽  
M. B. Mironov ◽  
E. R. Moizykevich ◽  
Yu. V. Rubleva ◽  
M. A. Bogomazova ◽  
...  
Keyword(s):  
Status Epilepticus ◽  
Literature Review ◽  
Clinical Case ◽  
Refractory Status Epilepticus ◽  
Case Description ◽  
Refractory Status ◽  
New Onset

scholarly journals Refractory status epilepticus syndrome FIRES (febrile infection-related epilepsy syndrome) + NORSE (new-onset refractory status epilepticus): description of a rare clinical case

2019 ◽  
Vol 11 (4) ◽  
pp. 153-155
Author(s):  
L. R. Akhmadeeva ◽  
A. G. Vashkevich ◽  
K. V. Bulygin ◽  
D. R. Teregulova
Keyword(s):  
Cognitive Impairment ◽  
Status Epilepticus ◽  
Clinical Case ◽  
Subsequent Development ◽  
Refractory Status Epilepticus ◽  
Acute Onset ◽  
Epilepsy Syndrome ◽  
Refractory Status ◽  
Motor Deficiency ◽  
New Onset

The paper describes a clinical case of the rare status epilepticus syndrome FIRES (febrile infection responsive encephalopathy) + NORSE (new-onset refractory status epilepticus). The difficulty of diagnosing this condition is due to the fact that it occurs extremely rarely and the laboratory and instrumental findings are nonspecific. The disease is characterized by acute onset, fever, and subsequent development of status epilepticus, cognitive impairment, and pharmacotherapy-resistant epilepsy. The paper describes a 19-year-old male patient who was observed to have a favorable course of FIRES + NORSE syndrome without pharmacotherapy-resistant epilepsy, motor deficiency, and with the preservation of self-care skills.

scholarly journals How to Help Your Patients Enroll in the New-Onset Refractory Status Epilepticus (NORSE) and Febrile Infection-Related Epilepsy Syndrome (FIRES) Family Registry, and Other Rare Epilepsy Registries

2021 ◽  
pp. 153575972199832
Author(s):  
Karnig Kazazian ◽  
Marissa Kellogg ◽  
Nora Wong ◽  
Krista Eschbach ◽  
Raquel Farias Moeller ◽  
...  
Keyword(s):  
Status Epilepticus ◽  
Refractory Status Epilepticus ◽  
Epilepsy Syndrome ◽  
Neurologic Disorder ◽  
Mortality And Morbidity ◽  
Refractory Status ◽  
Rigorous Research ◽  
Active Epilepsy ◽  
New Onset

New-onset refractory status epilepticus (NORSE) is a rare clinical presentation of refractory status epilepticus (RSE) that occurs in people without active epilepsy or preexisting neurologic disorder. Febrile infection-related epilepsy syndrome (FIRES) is a subcategory of NORSE. New-onset refractory status epilepticus/FIRES are becoming increasingly recognized; however, information pertaining to disease course, clinical outcomes, and survivorship remains limited, and mortality and morbidity are variable, but often high. The objective of the NORSE/FIRES Family Registry is to (1) provide an easily accessible and internationally available multilingual registry into which survivors or NORSE/FIRES surrogates or family members of people affected by NORSE/FIRES or their physicians can enter data in a systematic and rigorous research study from anywhere in the world where internet is available; and (2) to examine past medical history, outcomes, and quality of life for people affected by NORSE/FIRES.

scholarly journals Resolution of cryptogenic new onset refractory status epilepticus with tocilizumab

2021 ◽  
Vol 15 ◽  
pp. 100431
Author(s):  
Jonathan P. Donnelly ◽  
Nidhi Kasatwar ◽  
Shaheryar Hafeez ◽  
Ali Seifi ◽  
Andrea Gilbert ◽  
...  
Keyword(s):  
Status Epilepticus ◽  
Refractory Status Epilepticus ◽  
Refractory Status ◽  
New Onset

scholarly journals New-onset super refractory status epilepticus: A case-series

Seizure ◽  
2020 ◽  
Vol 75 ◽  
pp. 174-184 ◽  
Author(s):  
Sidra Aurangzeb ◽  
Lara Prisco ◽  
Jane Adcock ◽  
Mahiri Speirs ◽  
Simon Raby ◽  
...  
Keyword(s):  
Status Epilepticus ◽  
Case Series ◽  
Refractory Status Epilepticus ◽  
Refractory Status ◽  
New Onset

New Onset Refractory Status Epilepticus (NORSE)

2009 ◽  
Vol 284 (1-2) ◽  
pp. 220 ◽  
Author(s):  
Rahul Rathakrishnan ◽  
Einar P. Wilder-Smith
Keyword(s):  
Status Epilepticus ◽  
Refractory Status Epilepticus ◽  
Refractory Status ◽  
New Onset

New-Onset Refractory Status Epilepticus (NORSE): The Queen Square Neuro-ICU experience

2021 ◽  
Vol 125 ◽  
pp. 108387
Author(s):  
Aidan Neligan ◽  
Bellami Kerin ◽  
Matthew C Walker ◽  
Sanjeev Rajakulendran
Keyword(s):  
Status Epilepticus ◽  
Refractory Status Epilepticus ◽  
Refractory Status ◽  
New Onset

A case of very prolonged new onset refractory status epilepticus (NORSE) with no evidence of autoimmune activation and a good neurological recovery

2020 ◽  
Vol 41 (10) ◽  
pp. 3003-3006 ◽  
Author(s):  
Monica Ferlisi ◽  
Elena Greco ◽  
Tiziano Zanoni ◽  
Monica Zamagni ◽  
Marilena Casartelli Liviero ◽  
...  
Keyword(s):  
Status Epilepticus ◽  
Refractory Status Epilepticus ◽  
Neurological Recovery ◽  
Refractory Status ◽  
New Onset
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