Enhancements to the Rare Diseases Clinical Research Network Contact Registry

2018 ◽  
Vol 123 (2) ◽  
pp. S148
Author(s):  
Miranda N. Williams ◽  
Jeffrey P. Kirscher
Keyword(s):  
Clinical Research ◽  
Rare Diseases ◽  
Research Network ◽  
Clinical Research Network

scholarly journals The Rare Diseases Clinical Research Network Contact Registry update: Features and functionality

2012 ◽  
Vol 33 (4) ◽  
pp. 647-656 ◽  
Author(s):  
Rachel L. Richesson ◽  
Rebecca Sutphen ◽  
Denise Shereff ◽  
Jeffrey P. Krischer
Keyword(s):  
Clinical Research ◽  
Rare Diseases ◽  
Research Network ◽  
Clinical Research Network

An overview of the rare diseases clinical research network

2013 ◽  
Vol 108 (2) ◽  
pp. S59
Author(s):  
Renee Leduc ◽  
Callyn Hall ◽  
Denise Shereff ◽  
Jennifer Lloyd ◽  
Kenneth Young ◽  
...  
Keyword(s):  
Clinical Research ◽  
Rare Diseases ◽  
Research Network ◽  
Clinical Research Network

Patient Registries to Support Research in Rare Diseases – Experience from the Rare Diseases Clinical Research Network

2012 ◽  
Vol 105 (2) ◽  
pp. S54
Author(s):  
Rachel Richesson ◽  
Denise Shereff ◽  
Rebecca Sutphen ◽  
Heather Guillette ◽  
Kate Paulus ◽  
...  
Keyword(s):  
Clinical Research ◽  
Rare Diseases ◽  
Research Network ◽  
Patient Registries ◽  
Clinical Research Network ◽  
Support Research

scholarly journals Use of the Asthma Control Questionnaire by the Asthma Clinical Research Network

2011 ◽  
Vol 38 (5) ◽  
pp. 1242-1242
Author(s):  
M. J. Walter ◽  
M. Castro ◽  
E. Israel ◽  
C. A. Sorkness ◽  
Keyword(s):  
Clinical Research ◽  
Asthma Control ◽  
Research Network ◽  
Asthma Control Questionnaire ◽  
Clinical Research Network
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