“At the extremities of life” – Service user experiences of helpful help in mental health crises

2017 ◽  
Vol 20 (2) ◽  
pp. 87-105 ◽  
Author(s):  
Trude Klevan ◽  
Bengt Karlsson ◽  
Torleif Ruud
2020 ◽  
Vol 25 (3) ◽  
pp. 197-213
Author(s):  
Ali Coles ◽  
Tom Elliott

Purpose This paper aims to describe service user experiences of an art psychotherapy group which drew on occupational therapy perspectives to help adults with severe and enduring mental health difficulties move forward in their recovery. Design/methodology/approach A case study approach incorporating outcome data was used. The data gathered comprised attendance, facilitators’ clinical notes, photographs of participant artworks, the Psychological Outcome Profiles questionnaire (PSYCHLOPS: www.psychlops.org), a post-therapy feedback form, discussion at post-therapy individual review sessions and participants’ achievements post-group. Findings All but one participant scored the group as “very helpful” or “helpful” and all felt that the group had helped them with the personal aims they had identified. The PSYCHLOPS questionnaire yielded a large average effect size, indicating positive change in terms of problems, functioning and well-being. Participants identified several ways in which the group was helpful, and their artwork and reflections indicate how they used the art making in the group to pursue their recovery goals. The service user experiences and outcomes suggest that this group was effective in facilitating recovery for these adults with severe and enduring mental health difficulties. Originality/value This group was innovative in integrating approaches from the different professional specialisms and the findings encourage further investigation into this way of working.


PLoS ONE ◽  
2021 ◽  
Vol 16 (4) ◽  
pp. e0248316
Author(s):  
Luke Sheridan Rains ◽  
Athena Echave ◽  
Jessica Rees ◽  
Hannah Rachel Scott ◽  
Billie Lever Taylor ◽  
...  

Background There is a recognised need to develop clear service models and pathways to provide high quality care in the community for people with complex emotional needs, who may have been given a “personality disorder” diagnosis. Services should be informed by the views of people with these experiences. Aims To identify and synthesise qualitative studies on service user experiences of community mental health care for Complex Emotional Needs. Methods We searched six bibliographic databases for papers published since 2003. We included peer reviewed studies reporting data on service user experiences and views about good care from community-based mental health services for adults with CEN, including generic mental health services and specialist “personality disorder” services. Studies using any qualitative method were included and thematic synthesis used to identify over-arching themes. Results Forty-seven papers were included. Main themes were: 1) The need for a long-term perspective on treatment journeys; 2) The need for individualised and holistic care; 3) Large variations in accessibility and quality of mental health services; 4) The centrality of therapeutic relationships; 5) Impacts of ‘personality disorder’ diagnosis. Themes tended to recur across studies from different countries and years. Discussion Recurrent major themes included wanting support that is individualised and holistic, provides continuity over long journeys towards recovery, and that is delivered by empathetic and well-informed clinicians who are hopeful but realistic about the prospects of treatment. Care that met these simple and clearly stated priorities tended to be restricted to often limited periods of treatment by specialist “personality disorder” services: generic and primary care services were often reported as far from adequate. There is an urgent need to co-design and test strategies for improving long-term support and treatment care for people with “personality disorders” throughout the mental health care system.


2010 ◽  
Vol 57 (5) ◽  
pp. 339-344 ◽  
Author(s):  
Christine Craik ◽  
Wendy Bryant ◽  
Amanda Ryan ◽  
Samantha Barclay ◽  
Nicole Brooke ◽  
...  

2017 ◽  
Vol 27 (2) ◽  
pp. 891-900 ◽  
Author(s):  
Denise Lamanna ◽  
Gilla K. Shapiro ◽  
Maritt Kirst ◽  
Flora I. Matheson ◽  
Arash Nakhost ◽  
...  

2020 ◽  
Author(s):  
Luke Sheridan Rains ◽  
Athena Echave ◽  
Jessica Rees ◽  
Hannah Rachel Scott ◽  
Billie Lever-Taylor ◽  
...  

AbstractBackgroundThere is a recognised need to develop clear service models and pathways to provide high quality care in the community for people with complex emotional needs, who may have been given a “personality disorder” diagnosis. Services should be informed by the views of people with these experiences.AimsTo systematically review and synthesise qualitative studies on service user experiences of community mental health care for Complex Emotional Needs.MethodsWe searched six bibliographic databases for papers published since 2003. We included peer reviewed studies reporting data on service user experiences and views about good care from community-based mental health services for adults with CEN, including generic mental health services and specialist “personality disorder” services. Studies using any qualitative method were included and thematic synthesis used to identify over-arching themes.ResultsForty-seven papers were included. Main themes were: 1) The need for a long-term perspective on treatment journeys; 2) The need for individualised and holistic care; 3) Large variations in accessibility and quality of mental health services; 4) The centrality of therapeutic relationships; 5) Impacts of ‘personality disorder’ diagnosis. Themes tended to recur across studies from different countries and years.DiscussionRecurrent major themes included wanting support that is individualised and holistic, provides continuity over long journeys towards recovery, and that is delivered by empathetic and well-informed clinicians who are hopeful but realistic about the prospects of treatment. Care that met these simple and clearly stated priorities tended to be restricted to often limited periods of treatment by specialist “personality disorder” services: generic and primary care services were often reported as far from adequate. There is an urgent need to co-design and test strategies for improving long-term support and treatment care for people with “personality disorders” throughout the mental health care system.


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