Validating that palliative care giving is a stressful occupation: the case of the Kanye community home-based care programme, Botswana

2010 ◽  
Vol 52 (6) ◽  
pp. 548-556 ◽  
Author(s):  
SM Kang'ethe
2021 ◽  
Vol 25 (7) ◽  
pp. 587-589
Author(s):  
B. Douglas-Jones ◽  
E. Mohr-Holland ◽  
N. Mema ◽  
S. Mathee ◽  
G. Mathews ◽  
...  

2014 ◽  
Vol 35 (7) ◽  
pp. 1410-1428 ◽  
Author(s):  
MARY ELLEN PURKIS ◽  
CHRISTINE CECI

ABSTRACTIn this paper we use Alvesson and Sandberg's strategy of problematisation to analyse the assumptions embedded in the development and use of the concept of ‘care-giver burden’. We do this in order to develop an explanation as to why decades of research into the experience of providing home-based care to a family member with dementia has had little effect in relieving or reducing the ‘burden’ of that care. Though some part of this is undoubtedly political, our analysis suggests that key assumptions of the research limit both knowledge development and intervention effectiveness. Especially problematic are first, an overriding focus on the isolated care-giver–recipient dyad as the appropriate object of inquiry and target of intervention, and second, an absence of an analysis of the materiality of care and care-giving practices. The heterogeneity of care situations, including interrelations among people, technologies, objects, spaces and other organisational worlds, appear in much of the research primarily as methodological problems, variables to be subdued through a more rigorous application of method. The high volume of research and acknowledged low impact of interventions, however, suggests that rethinking the nature of care practices, and how we come to know about them, is necessary if we are to develop and implement strategies that will contribute to better outcomes for people.


2010 ◽  
Vol 17 (1) ◽  
pp. 39-50 ◽  
Author(s):  
Eva Erichsen ◽  
Elisabeth Hadd Danielsson ◽  
Maria Friedrichsen

Honesty is essential for the care of seriously ill and dying patients. The current study aimed to describe how nurses experience honesty in their work with patients receiving palliative care at home. The interviews in this phenomenological study were conducted with 16 nurses working with children and adults in palliative home-based care. Three categories emerged from analyses of the interviews: the meaning of honesty, the reason for being honest and, finally, moral conflict when dealing with honesty. The essence of these descriptions was that honesty is seen as a virtue, a good quality that a nurse should have. The nurses’ ethical standpoint was shown in the moral character they show in their work and in their intention to do good. This study could help nurses to identify different ways of looking at honesty to promote more consciousness and openness in ethical discussions between colleagues and other staff members.


2020 ◽  
pp. bmjspcare-2019-002145
Author(s):  
Michelle Jessica Pereira ◽  
Ri Yin Tay ◽  
Woan Shin Tan ◽  
Joseph Antonio De Castro Molina ◽  
Noorhazlina Binte Ali ◽  
...  

ObjectivesTo determine the economic benefit of an integrated home-based palliative care programme for advanced dementia (Programme Dignity), evaluation is required. This study aimed to estimate Programme Dignity’s average monthly cost from a provider’s perspective; and compare healthcare utilisation and costs of programme patients with controls, accounting for enrolment duration.MethodsThis was a retrospective cohort study. Home-dwelling patients with advanced dementia (stage 7 on the functional assessment staging in Alzheimer’s disease) with a history of pneumonia, albumin <35 g/L or tube-feeding and known to be deceased were analysed (Programme Dignity=184, controls=139). One-year programme operational costs were apportioned on a per patient-month basis. Cumulative healthcare utilisation and costs were examined at 1, 3 and 6 months look-back from death. Between-group comparisons used Poisson, zero-inflated Poisson regressions and generalised linear models.ResultsThe average monthly programme cost was SGD$1311 (SGD-Pounds exchange rate: 0.481) per patient. Fully enrolled programme patients were less likely to visit the emergency department (incidence rate ratios (IRRs): 1 month=0.56; 3 months=0.19; 6 months=0.10; all p<0.001), be admitted to hospital (IRRs: 1 month=0.60; 3 months=0.19; 6 months=0.15; all p<0.001), had a lower cumulative length of stay (IRRs: 1 month=0.78; 3 months=0.49; 6 months=0.24; all p<0.001) and incurred lesser healthcare utilisation costs (β-coefficients: 1 month=0.70; 3 months=0.40; 6 months=0.43; all p<0.01) at all time-points examined.ConclusionProgramme Dignity for advanced dementia reduces healthcare utilisation and costs. If scalable, it may benefit more patients wishing to remain at home at the end-of-life, allowing for a potentially sustainable care model to cope with rapid population ageing. It contributes to the evidence base of advanced dementia palliative care and informs healthcare policy making. Future studies should estimate informal caregiving costs for comprehensive economic evaluation.


Open Journal Systems Journal Help User You are logged in as... wynlib My Journals My Profile Log Out About The Authors Valerie Møller Institute of Social and Economic Research, Rhodes University South Africa Ayanda Sotshongaye Department of Labour, Pietermaritzburg South Africa Information For Readers For Authors For Librarians Font Size Make font size smaller Make font size default Make font size larger Journal Content Search Search Scope Browse By Issue By Author By Title Other Journals Article Tools Print this article Indexing metadata How to cite item Finding References Email this article Email the author Popular Articles »Generational interdependence: living arrangements and housing programmes 31 views since: »The growing problem of violence against older persons in Africa 25 views since: 2006-10-01 »Risk profile for chronic diseases of life-style in older black South Africans. The BRISK Study 24 views since: »The role of gender in gait analysis in the elderly 21 views since: »Research for practice and development in Africa 15 views since: 2006-10-01 »AIDS and older Zimbabweans: who will care for the carers? 15 views since: 1997-03-17 »The contribution of older people to society: evaluation of participatory research methodology employed in studies in Ghana and South Africa 14 views since: 2006-10-01 »Effects of the AIDS epidemic and the Community Home-Based Care programme on the health of older Batswana 13 views since: 2016-03-29 »Victimisation and killing of older women: witchcraft in Magu district, Tanzania 13 views since: 2006-10-01 »Caregiving on the edge: the situation of family caregivers to older persons in Botswana 13 views since: 2016-03-29 Home About User Home Search Current Archives Rhodes Library Services Home > Vol 8, No 2 (1999) > Møller “They don’t listen”: contemporary respect relations between Zulu grandmothers and granddaughters/-sons

1999 ◽  
Vol 8 (2) ◽  
pp. 18-27 ◽  
Author(s):  
Valerie Møller ◽  
Ayanda Sotshongaye

2013 ◽  
Vol 2 (5) ◽  
pp. 407-416 ◽  
Author(s):  
Hsien Seow ◽  
Daryl Bainbridge ◽  
Deanna Bryant

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