Long-term follow-up of children with confirmed newborn screening disorders using record linkage

2011 ◽  
Vol 13 (10) ◽  
pp. 881-886 ◽  
Author(s):  
Ying Wang ◽  
Michele Caggana ◽  
Marilyn Sango-Jordan ◽  
Mingzeng Sun ◽  
Charlotte M. Druschel
Keyword(s):  
Newborn Screening ◽  
Record Linkage ◽  
Long Term Follow Up

Long-term follow-up of newborn screening patients

2010 ◽  
Vol 12 ◽  
pp. S267-S268 ◽  
Author(s):  
Susan A. Berry ◽  
Michele A. Lloyd-Puryear ◽  
Michael S. Watson
Keyword(s):  
Newborn Screening ◽  
Long Term Follow Up

scholarly journals Long-term follow-up to ensure quality care of individuals diagnosed with newborn screening conditions: Early experience in New England

2010 ◽  
Vol 12 ◽  
pp. S220-S227 ◽  
Author(s):  
Inderneel Sahai ◽  
Roger B. Eaton ◽  
Jaime E. Hale ◽  
Eleanor A. Mulcahy ◽  
Anne Marie Comeau
Keyword(s):  
Newborn Screening ◽  
New England ◽  
Quality Care ◽  
Early Experience ◽  
Long Term Follow Up

scholarly journals Exploring barriers to long-term follow-up in newborn screening programs

2006 ◽  
Vol 8 (9) ◽  
pp. 563-570 ◽  
Author(s):  
Timothy Hoff ◽  
Adrienne Hoyt ◽  
Brad Therrell ◽  
Maria Ayoob
Keyword(s):  
Newborn Screening ◽  
Screening Programs ◽  
Long Term Follow Up

What questions should newborn screening long-term follow-up be able to answer? A statement of the US Secretary for Health and Human Servicesʼ Advisory Committee on Heritable Disorders in Newborns and Children

2011 ◽  
Vol 13 (10) ◽  
pp. 861-865 ◽  
Author(s):  
Cynthia F. Hinton ◽  
Lisa Feuchtbaum ◽  
Christopher A. Kus ◽  
Alex R. Kemper ◽  
Susan A. Berry ◽  
...  
Keyword(s):  
Newborn Screening ◽  
Advisory Committee ◽  
The Us ◽  
Long Term Follow Up
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