Health Information Technology and the Idea of Informed Consent

2010 ◽  
Vol 38 (1) ◽  
pp. 27-35 ◽  
Author(s):  
Melissa M. Goldstein
Keyword(s):  
Health Care ◽  
Information Technology ◽  
Informed Consent ◽  
Health Information Technology ◽  
Health Information ◽  
Information Exchange ◽  
Health Care Quality ◽  
Early Stage ◽  
Care Quality ◽  
Health Care Environment

As policy makers place great hope in health information technology (HIT) as a means to lower costs and achieve improvements in health care quality, safety, and efficiency, organizations at the forefront of building health information exchange (HIE) networks attempt to weave the concept and function of informed consent into an evolving information-driven health care system. The vast amount of information that will become available to both health professionals and patients in the new HIT-driven environment can reasonably be expected to affect the relationship between them in many ways, particularly in the area of informed consent. During this early stage of HIT adoption, it is critical that we engage in discussions regarding informed consent’s proper role in a heretofore unknown health care environment — one in which electronic information sharing holds primary (and possibly rightful) importance. The central and largely unexamined question of whether and how the legal and ethical underpinnings of informed consent will fit into the context of HITenabled treatment is critical to both public policy and clinical practice.

scholarly journals Embedding the Pillars of Quality in Health Information Technology Solutions Using “Integrated Patient Journey Mapping” (IPJM): Case Study (Preprint)

2019 ◽  
Author(s):  
Stephen McCarthy ◽  
Paidi O'Raghallaigh ◽  
Simon Woodworth ◽  
Yoke Yin Lim ◽  
Louise C Kenny ◽  
...  
Keyword(s):  
Health Care ◽  
Information Technology ◽  
Health Service ◽  
Health Information ◽  
Health Care Quality ◽  
Care Quality ◽  
Multidisciplinary Teams ◽  
Patient Journey ◽  
Connected Health

BACKGROUND Health information technology (HIT) and associated data analytics offer significant opportunities for tackling some of the more complex challenges currently facing the health care sector. However, to deliver robust health care service improvements, it is essential that HIT solutions be designed by parallelly considering the 3 core pillars of health care quality: clinical effectiveness, patient safety, and patient experience. This requires multidisciplinary teams to design interventions that both adhere to medical protocols and achieve the tripartite goals of effectiveness, safety, and experience. OBJECTIVE In this paper, we present a design tool called <i>Integrated Patient Journey Mapping</i> (IPJM) that was developed to assist multidisciplinary teams in designing effective HIT solutions to address the 3 core pillars of health care quality. IPJM is intended to support the analysis of requirements as well as to promote empathy and the emergence of shared commitment and understanding among multidisciplinary teams. METHODS A 6-month, in-depth case study was conducted to derive findings on the use of IPJM during <i>Learning to Evaluate Blood Pressure at Home</i> (LEANBH), a connected health project that developed an HIT solution for the perinatal health context. Data were collected from over 700 hours of participant observations and 10 semistructured interviews. RESULTS The findings indicate that IPJM offered a constructive tool for multidisciplinary teams to work together in designing an HIT solution, through mapping the physical and emotional journey of patients for both the current service and the proposed connected health service. This allowed team members to consider the goals, tasks, constraints, and actors involved in the delivery of this journey and to capture requirements for the digital touchpoints of the connected health service. CONCLUSIONS Overall, IPJM facilitates the design and implementation of complex HITs that require multidisciplinary participation. CLINICALTRIAL

scholarly journals Embedding the Pillars of Quality in Health Information Technology Solutions Using “Integrated Patient Journey Mapping” (IPJM): Case Study

10.2196/17416 ◽  
2020 ◽  
Vol 7 (3) ◽  
pp. e17416
Author(s):  
Stephen McCarthy ◽  
Paidi O'Raghallaigh ◽  
Simon Woodworth ◽  
Yoke Yin Lim ◽  
Louise C Kenny ◽  
...  
Keyword(s):  
Health Care ◽  
Information Technology ◽  
Health Service ◽  
Health Information ◽  
Health Care Quality ◽  
Care Quality ◽  
Multidisciplinary Teams ◽  
Patient Journey ◽  
Connected Health

Background Health information technology (HIT) and associated data analytics offer significant opportunities for tackling some of the more complex challenges currently facing the health care sector. However, to deliver robust health care service improvements, it is essential that HIT solutions be designed by parallelly considering the 3 core pillars of health care quality: clinical effectiveness, patient safety, and patient experience. This requires multidisciplinary teams to design interventions that both adhere to medical protocols and achieve the tripartite goals of effectiveness, safety, and experience. Objective In this paper, we present a design tool called Integrated Patient Journey Mapping (IPJM) that was developed to assist multidisciplinary teams in designing effective HIT solutions to address the 3 core pillars of health care quality. IPJM is intended to support the analysis of requirements as well as to promote empathy and the emergence of shared commitment and understanding among multidisciplinary teams. Methods A 6-month, in-depth case study was conducted to derive findings on the use of IPJM during Learning to Evaluate Blood Pressure at Home (LEANBH), a connected health project that developed an HIT solution for the perinatal health context. Data were collected from over 700 hours of participant observations and 10 semistructured interviews. Results The findings indicate that IPJM offered a constructive tool for multidisciplinary teams to work together in designing an HIT solution, through mapping the physical and emotional journey of patients for both the current service and the proposed connected health service. This allowed team members to consider the goals, tasks, constraints, and actors involved in the delivery of this journey and to capture requirements for the digital touchpoints of the connected health service. Conclusions Overall, IPJM facilitates the design and implementation of complex HITs that require multidisciplinary participation.

Survey of Information Exchange and Advanced Use of Other Health Information Technology in Primary Care Settings

Medical Care ◽  
2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Dori A. Cross ◽  
Maria A. Stevens ◽  
Steven B. Spivack ◽  
Genevra F. Murray ◽  
Hector P. Rodriguez ◽  
...  
Keyword(s):  
Primary Care ◽  
Information Technology ◽  
Health Information Technology ◽  
Health Information ◽  
Information Exchange ◽  
Primary Care Settings
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