Review for "Health‐Related Quality of Life and Metabolic Control in Immigrant and Italian Children and Adolescents with Type 1 Diabetes and in their Parents"

2020 ◽  
Author(s):  
Giuseppe d'Annunzio
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Children And Adolescents ◽  
Metabolic Control ◽  
Health Related ◽  
Italian Children

Health‐related quality of life and metabolic control in immigrant and Italian children and adolescents with type 1 diabetes and in their parents

2020 ◽  
Vol 21 (6) ◽  
pp. 1031-1042
Author(s):  
Barbara Predieri ◽  
Patrizia Bruzzi ◽  
Elena Bigi ◽  
Alessandra Boncompagni ◽  
Federica Bocchi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Children And Adolescents ◽  
Metabolic Control ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Italian Children

scholarly journals Assessing Health-Related Quality of Life in Children and Adolescents with Diabetes: Development and Psychometrics of the Type 1 Diabetes and Life (T1DAL) Measures

2019 ◽  
Author(s):  
Marisa E Hilliard ◽  
Charles G Minard ◽  
David G Marrero ◽  
Maartje de Wit ◽  
Debbe Thompson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Clinical Research ◽  
Children And Adolescents ◽  
Cognitive Debriefing ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Abstract Objective To develop and validate new measures of diabetes-specific health-related quality of life (HRQOL) for people with type 1 diabetes (T1D) that are brief, developmentally appropriate, and usable in clinical research and care. Here we report on the phases of developing and validating the self-report Type 1 Diabetes and Life (T1DAL) measures for children (age 8–11) and adolescents (age 12–17). Methods Measure development included qualitative interviews with youth and parents (n = 16 dyads) followed by piloting draft measures and conducting cognitive debriefing with youth (n = 9) to refine the measures. To evaluate the psychometric properties, children (n = 194) and adolescents (n = 257) at three T1D Exchange Clinic Network sites completed the age-appropriate T1DAL measure and previously validated questionnaires measuring related constructs. Using psychometric data, the investigators reduced the length of each T1DAL measure to 21 and 23 items, respectively, and conducted a final round of cognitive debriefing with six children and adolescents. Results The T1DAL measures for children and adolescents demonstrated good internal consistency (α = 0.84 and 0.89, respectively) and test–retest reliability (r = 0.78 and 0.80, respectively). Significant correlations between the T1DAL scores and measures of general quality of life, generic and diabetes-specific HRQOL, diabetes burden, and diabetes strengths demonstrated construct validity. Correlations with measures of self-management (child and adolescent) and glycemic control (adolescent only) demonstrated criterion validity. Factor analyses indicated four developmentally specific subscales per measure. Participants reported satisfaction with the measures. Conclusions The new T1DAL measures for children and adolescents with T1D are reliable, valid, and suitable for use in care settings and clinical research.

Health-related quality of life in children and adolescents with type 1 diabetes mellitus from Montenegro: relationship to metabolic control

2016 ◽  
Vol 29 (6) ◽  
Author(s):  
Mira Samardzic ◽  
Husref Tahirovic ◽  
Natasa Popovic ◽  
Milena Popovic-Samardzic
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Children And Adolescents ◽  
Healthy Children ◽  
Health Related Quality ◽  
Proxy Report ◽  
Related Quality ◽  
Health Related

AbstractThe aim of this study was to evaluate health-related quality of life (HRQOL) in children and adolescents with type 1 diabetes (TIDM) in Montenegro compared with healthy controls and to estimate the effect of metabolic control on perceptions of HRQOL.This study involved children and adolescents with T1DM, age- and gender-matched healthy children and their parents. Children and adolescents with T1DM and their parents completed Peds QL 4.0 Generic Core Scales (GCS) and PedsQL 3.0 Diabetes Module. Healthy children and their parents completed self- and proxy-report of Peds QL 4.0 GCS.Our study (self- and proxy-report) showed that children and adolescents with T1DM had lower HRQOL on domain “Psychosocial health” and “School functioning” compared with healthy population (p=0.008; p≤0.001). Lower glycosylated hemoglobin (HbACompared with the healthy children, the HRQOL was lower among children and adolescents with T1DM. Lower HbA

scholarly journals The effect of free diabetes care on metabolic control and on health-related quality of life among youths with type 1 diabetes in Cameroon

2017 ◽  
Vol 5 (1) ◽  
pp. e000397 ◽  
Author(s):  
Eric Lontchi-Yimagou ◽  
Clarisse Mapa-Tassou ◽  
Mesmin Y Dehayem ◽  
Marie-José Essi ◽  
Jude Saji ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Metabolic Control ◽  
Diabetes Care ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Assessment of health-related quality of life in Egyptian adolescents with type 1 diabetes: DEMPU survey

2017 ◽  
Vol 30 (3) ◽  
Author(s):  
Mona Hassan ◽  
Noha Musa ◽  
Rehab Abdel Hai ◽  
Ashgan Fathy ◽  
Amany Ibrahim
Keyword(s):  
Quality Of Life ◽  
Type 1 Diabetes ◽  
Metabolic Control ◽  
Educational Level ◽  
Negative Impact ◽  
Age Groups ◽  
Related Quality ◽  
Health Related

AbstractBackground:Type 1 diabetes (T1D) is a serious chronic illness that imposes significant morbidity and mortality with a major impact on the quality of life (QoL) that became a core issue in diabetes care. Understanding the effect of diabetes on QoL is important for day-to-day clinical management and also for public health policy initiatives aiming at improving health outcomes for those with diabetes. The objective of the study was to assess the QoL in adolescents with T1D and assess the applicability of the use of the “Quality of Life for Youth” questionnaire at the Diabetes, Endocrine and Metabolism Pediatric Unit (DEMPU) clinic.Methods:One hundred and fifty adolescents (82 males and 68 females) (10–18 years), with T1D of at least 1 years’ duration, completed the questionnaire that evaluated symptoms related to diabetes, treatment, activities, parent issues, worries about diabetes and health perception. Higher scores indicated a more negative impact of diabetes and poorer QoL.Results:Males showed a significantly better mean QoL score than females (p=0.004). Different age groups showed different QoL scores (p=0.047). Urban adolescents had a better QoL than rural counterparts (p=0.02). Adolescents with poor QoL had generally lower educational level (p=0.02). Better metabolic control was associated with a better QoL (p=0.01). However, duration of diabetes and body mass index (BMI) had no statistically significant effect on QoL.Conclusions:QoL had a variable significant association with certain socio-demographic and clinical characteristics of diabetics (sex, residence, educational level as well as metabolic control).

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