scholarly journals Qualidade de vida em crianças e adolescentes com doenças neuromusculares e validação de dois questionários para o português: Life Satisfaction Index for Adolescents - LSI-A e Pediatric Quality of Life Inventory Duchenne Muscular Dystrophy Module

2016 ◽  
Author(s):  
Valdecir Antonio Simon
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Satisfaction Index ◽  
Quality Of Life Inventory ◽  
Life Inventory ◽  
Life Satisfaction Index

scholarly journals Duchenne muscular dystrophy: quality of life among 95 patients evaluated using the Life Satisfaction Index for Adolescents

2011 ◽  
Vol 69 (1) ◽  
pp. 19-22 ◽  
Author(s):  
Valdecir A. Simon ◽  
Maria Bernardete Dutra Resende ◽  
Margarete A.V.P. Simon ◽  
Edmar Zanoteli ◽  
Umbertina Conti Reed
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Age Groups ◽  
Good Alternative ◽  
Clinical Aspects ◽  
Satisfaction Index ◽  
Life Satisfaction Index

The purpose of this study was to evaluate the quality of life (QoL) of patients with Duchenne muscular dystrophy (DMD) in different stages of the disease, by means of the Life Satisfaction Index for Adolescents (LSI-A). The practicality of this scale was also verified. The LSI-A was applied four times to 95 patients with DMD who were undergoing steroid therapy, at three-month intervals. The patients were divided into four groups according to age. The results from the four applications and the inter and intra-examiner concordance were treated statistically. Comparing the different age groups, patients with DMD did not lose QoL, even with disease progression. We concluded that, in spite of the progressive course of the disease, the QoL in patients with DMD does not get worse. The use of a scale that embraces a great diversity of circumstances in patients' lives, without considering clinical aspects excessively, is a good alternative for assessing the QoL of these patients.

Rasch Analysis of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales Administered to Patients With Duchenne Muscular Dystrophy

2021 ◽  
Vol 24 (10) ◽  
pp. 1490-1498
Author(s):  
Erik Landfeldt ◽  
Joel Iff ◽  
Erik Henricson ◽  
V. Vishwanathan ◽  
S. Chidambaranathan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Rasch Analysis ◽  
Quality Of Life Inventory ◽  
Life Inventory

Life Satisfaction of Parents of Adolescents with Duchenne Muscular Dystrophy: Validation of a New Instrument

1992 ◽  
Vol 12 (5) ◽  
pp. 296-312 ◽  
Author(s):  
Rebecca M. Renwick ◽  
Denise T. Reid
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Discriminant Validity ◽  
Generation Process ◽  
Satisfaction Index ◽  
Care Givers ◽  
New Instrument

Individuals with Duchenne muscular dystrophy typically experience some of the most severe physical effects of this chronic, progressive disorder during their teenage years. This can impact significantly on their quality of life, particularly because they are simultaneously grappling with the complex, identity-related developmental tasks associated with this stage in life. In turn, these circumstances are very likely to affect the quality of life of their parents, who are also usually their care givers. To date, no attempt has been made to actually measure the quality of life of these parents, perhaps due in part to the lack of instruments designed to do this. Accordingly, this paper outlines the conceptual basis, the item generation process, and the content validation of a new instrument, the Life Satisfaction Index for Parents (LSI-P), developed to assess one aspect of quality of life, namely, life satisfaction, in this population. The results of a study examining construct, concurrent, and discriminant validity and internal consistency of the LSI-P are also presented. Potential applications of the instrument and future directions for research are discussed.

scholarly journals Translation and validation of the Life Satisfaction Index for Adolescents scale with neuromuscular disorders: LSI-A Brazil

2017 ◽  
Vol 75 (8) ◽  
pp. 553-562 ◽  
Author(s):  
Valdecir Antonio Simon ◽  
Edmar Zanoteli ◽  
Margarete Andreozzi Vaz Pereira Simon ◽  
Maria Bernadete Dutra de Resende ◽  
Umbertina Conti Reed
Keyword(s):  
Life Satisfaction ◽  
Muscular Dystrophy ◽  
Muscular Atrophy ◽  
Neuromuscular Disorders ◽  
Patient Version ◽  
Satisfaction Index ◽  
Assess Quality ◽  
Parent Version ◽  
Life Satisfaction Index

ABSTRACT Objective To validate the Life Satisfaction Index for Adolescents (LSI-A) scale, parent version and patient version, for Duchenne muscular dystrophy (DMD), spinal muscular atrophy (SMA) and limb-girdle muscular dystrophy (LGMD). Methods The parent version of the instrument was divided into Groups A, B, C and D; and the patient version, divided into B, C and D. For the statistical calculation, the following tests were used: Cronbach’s α, ICC, Pearson and the ROC Curve. Results The parent and patient versions of the instrument are presented, with the following results in the overall score, respectively: Cronbach’s α, 0.87 and 0.89; reliability, r 0.98 and 0.97; reproducibility, ICC 0.69 and 0.80; sensitivity, 0.78 and 0.72; specificity, 0.5 and 0.69; and accuracy, 64% and 70.4%. Conclusion According to the validity and reproducibility values, the LSI-A Brazil parent and patient versions, are clinically useful to assess quality of life in DMD, SMA or LGMD and may also be useful for other neuromuscular disorders.

Predictive and Treatment Validity of Life Satisfaction and the Quality of Life Inventory

Assessment ◽  
2005 ◽  
Vol 12 (1) ◽  
pp. 66-78 ◽  
Author(s):  
Michael B. Frisch ◽  
Michelle P. Clark ◽  
Steven V. Rouse ◽  
M. David Rudd ◽  
Jennifer K. Paweleck ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Quality Of Life Inventory ◽  
Treatment Validity ◽  
Life Inventory

scholarly journals The Satisfaction of Small Russian Cities’ Residents with the Quality of Their Lives: A Case Study of Perm Krai

2020 ◽  
pp. 110-115
Author(s):  
Nataliya V. Kulagina ◽  
Keyword(s):  
Quality Of Life ◽  
Life Satisfaction ◽  
Social Policy ◽  
Age Groups ◽  
General Level ◽  
Subjective Perception ◽  
Satisfaction Index ◽  
Perm Krai ◽  
Life Satisfaction Index

The problem of population satisfaction with the quality of life is considered. The subjective perception by a person of the quality of his life is an important internal factor that affects his social well-being, satisfaction with his position, prospects, and individual spheres of society. Improving the quality of life of the population is one of the primary tasks of the authorities. Therefore, the analysis of the population’s assessment of the quality of certain aspects of their lives is important for federal and local authorities to determine priority areas of social policy, develop strategies and work plans of state institutions of various departments, etc. The article presents the results of a comparative study of differences in the subjective perception of various indicators of quality of life and satisfaction with various areas of life of people of different age groups. N.V. Panina’s “Life Satisfaction Index”, I. Karler’s technique to study the degree of satisfaction with one’s functioning in various fields, the Russified version of “MOS SF-36” for assessing the quality of life were used as research tools. The study was conducted in the cities of the Upper Kama region (the north of Perm Krai). The sample size was 600 people. Respondents are representatives of three age groups. Men and women are in equal proportions. Group distribution was carried out on the basis of the age classification proposed by the Institute of Age Physiology of the Academy of Pedagogical Sciences of the USSR: adolescence (17- to 21-year-olds); maturity (middle age (36- to 55-year-olds); elderly age (56-to 75-year-olds). Groups were equalized in quantitative composition. It has been revealed that among the residents of small regional cities, regardless of age, the general level of satisfaction with the quality of life is at an average level, among older people there is a tendency to a lower level. Life satisfaction and quality of life indicators decline with age. There are no statistically significant differences in the general life satisfaction index for people of different age groups. However, some indicators of quality of life revealed significant differences. In each age group, there is a certain resource sphere of life, the successful functioning of which is the basis of satisfaction, stability, and success. It is a marital relationship for the elderly, a professional sphere for middle-aged people, a social sphere for young people. The data obtained can help to define the priorities of social policy in regions, can be used in the development of socially-oriented technologies and programs aimed at improving of the living conditions of people.

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