scholarly journals Impact of provider specialty on the diagnosis and management of systemic lupus erythematosus in the American Indian/Alaska Native population

2014 ◽  
Vol 16 (Suppl 1) ◽  
pp. A12
Author(s):  
John A McDougall ◽  
Charles G Helmick ◽  
S Lim ◽  
Caroline Gordon ◽  
Elizabeth D Ferucci

2014 ◽  
Vol 66 (9) ◽  
pp. 2494-2502 ◽  
Author(s):  
Elizabeth D. Ferucci ◽  
Janet M. Johnston ◽  
Jasmine R. Gaddy ◽  
Lisa Sumner ◽  
James O. Posever ◽  
...  


Lupus ◽  
2018 ◽  
Vol 27 (7) ◽  
pp. 1169-1176 ◽  
Author(s):  
J A McDougall ◽  
C G Helmick ◽  
S S Lim ◽  
J M Johnston ◽  
J R Gaddy ◽  
...  

Objectives The objective of this study is to investigate differences in the diagnosis and management of systemic lupus erythematosus (SLE) by primary care and specialist physicians in a population-based registry. Methods This study includes individuals from the 2009 Indian Health Service lupus registry population with a diagnosis of SLE documented by either a primary care provider or specialist. SLE classification criteria, laboratory testing, and medication use at any time during the course of disease were determined by medical record abstraction. Results Of the 320 individuals with a diagnosis of SLE, 249 had the diagnosis documented by a specialist, with 71 documented by primary care. Individuals with a specialist diagnosis of SLE were more likely to have medical record documentation of meeting criteria for SLE by all criteria sets (American College of Rheumatology, 79% vs 22%; Boston Weighted, 82% vs 32%; and Systemic Lupus International Collaborating Clinics, 83% vs 35%; p < 0.001 for all comparisons). In addition, specialist diagnosis was associated with documentation of ever having been tested for anti-double-stranded DNA antibody and complement 3 and complement 4 ( p < 0.001). Documentation of ever receiving hydroxychloroquine was also more common with specialist diagnosis (86% vs 64%, p < 0.001). Conclusions Within the population studied, specialist diagnosis of SLE was associated with a higher likelihood of having SLE classification criteria documented, being tested for biomarkers of disease, and ever receiving treatment with hydroxychloroquine. These data support efforts both to increase specialist access for patients with suspected SLE and to provide lupus education to primary care providers.



1975 ◽  
Vol 34 (5) ◽  
pp. 438-443 ◽  
Author(s):  
J Holian ◽  
I D Griffiths ◽  
D N Glass ◽  
R N Maini ◽  
J T Scott


1989 ◽  
Vol 8 (1) ◽  
pp. 108-112 ◽  
Author(s):  
C. Tamburino ◽  
C. E. Fiore ◽  
R. Foti ◽  
E. Salomone ◽  
R. Di Paola ◽  
...  




Lupus ◽  
2016 ◽  
Vol 26 (6) ◽  
pp. 664-669 ◽  
Author(s):  
A M Al Dhanhani ◽  
M Agarwal ◽  
Y S Othman ◽  
O Bakoush

Background and objectives There is a paucity of information about the epidemiology of systemic lupus erythematosus (SLE) amongst Arabs. The objective of this study was to determine the incidence and prevalence of SLE among the native Arab population of United Arab Emirates (UAE). Methods Patients with SLE were identified from three sources: medical records of two local tertiary hospitals (four years; 2009 to 2012), laboratory requests for serum double stranded deoxyribonucleic acid and serum anti-nuclear antibody and confirmed histopathologic diagnosis of SLE (skin and kidney biopsy specimens). All the patients identified with SLE met the criteria of the American College of Rheumatology. Incidence and prevalence were calculated using the state records of the UAE native population as the denominator. The age-adjusted incidence was calculated by direct standardization using the World Health Organization world standard population 2000–2025. Results Sixteen new cases (13 females and three males) fulfilled the American College of Rheumatology SLE criteria. The mean (±SD) age at time of diagnosis was 28.6 ± 12.4 years. The crude incidence ratio (per 100,000 population) was 3.5, 1.1, 2.1 and 2.1 in years 2009, 2010, 2011, 2012, respectively. The age-standardized incidence per 100,000 population for the four years was 8.6 (95% confidence interval 4.2–15.9). The age-standardized prevalence of SLE among the native population according to the 2012 population consensus was 103/100,000 population (95% confidence interval 84.5–124.4). Conclusion The age-adjusted incidence and prevalence among UAE Arabs is higher than has been reported among most other Caucasian populations. Furthermore, the prevalence of SLE in UAE seems much higher than other similar Arab countries in the Gulf region.



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