Home Care of Children and Youth With Complex Health Care Needs and Technology Dependencies

2013 ◽  
pp. 529-540
Author(s):  
Ellen Roy Elias ◽  
Nancy A. Murphy
Keyword(s):  
Health Care ◽  
Home Care ◽  
Children And Youth ◽  
Health Care Needs ◽  
Care Needs

Home Care of Children and Youth with Complex Health Care Needs and Technology Dependencies

2014 ◽  
pp. 1036-1036
Author(s):  
Ellen Roy Elias ◽  
Nancy A. Murphy ◽  
Keyword(s):  
Health Care ◽  
Home Care ◽  
Children And Youth ◽  
Health Care Needs ◽  
Care Needs

scholarly journals Home Care of Children and Youth With Complex Health Care Needs and Technology Dependencies

PEDIATRICS ◽  
2012 ◽  
Vol 129 (5) ◽  
pp. 996-1005 ◽  
Author(s):  
E. R. Elias ◽  
N. A. Murphy ◽  
Keyword(s):  
Health Care ◽  
Home Care ◽  
Children And Youth ◽  
Health Care Needs ◽  
Care Needs

Identifying What Pediatric Residents Are Taught About Children and Youth With Special Health Care Needs and the Medical Home

PEDIATRICS ◽  
2010 ◽  
Vol 126 (Supplement 3) ◽  
pp. S183-S189 ◽  
Author(s):  
Beverly L. Nazarian ◽  
Laurie Glader ◽  
Roula Choueiri ◽  
Deborah L. Shipman ◽  
Matthew Sadof
Keyword(s):  
Health Care ◽  
Medical Home ◽  
Special Health Care Needs ◽  
Children And Youth ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Pediatric Residents ◽  
Special Health

scholarly journals The Experience of Latina Mothers of Children and Youth With Special Health Care Needs: A Qualitative Study

2019 ◽  
Vol 6 ◽  
pp. 2333794X1985139 ◽  
Author(s):  
Nicola Brodie ◽  
Bruce Bernstein ◽  
Francis McNesby ◽  
Renee Turchi
Keyword(s):  
Health Care ◽  
Medical Home ◽  
Special Health Care Needs ◽  
Children And Youth ◽  
Patient Centered Medical Home ◽  
Health Care Needs ◽  
Care Needs ◽  
Patient Centered ◽  
Special Health Care ◽  
Special Health

Children and youth with special health care needs (CYSHCN) comprise a growing proportion of the pediatric population; the patient- and family-centered medical home provides a comprehensive model for caring for these patients. Given the limited literature available as well as extreme patient vulnerability, we sought to understand the experience of Latino parents in caring for their CYSHCN within our patient-centered medical home in an urban neighborhood in North Philadelphia. A convenience sample of 14 mothers or grandmothers of CYSHCN participated in semistructured interviews, which were analyzed using a thematic, constant comparative approach to identify common themes. Themes identified included “Waiting,” “Communication/Trust,” “All-Consuming Requirements of Care/Sacrifice,” and “Fate/Faith/Blessings.” These themes corresponded with identified goals of the patient-centered medical home. Our findings suggest that the principles of the patient-centered medical home can be applied in unique ways to caring for this unique patient population.

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