Psychosocial Factors in Children and Youth with Special Health Care Needs and Their Families

2019 ◽  
pp. 419-432
Author(s):  
Gerri Mattson ◽  
Dennis Z. Kuo ◽  
Keyword(s):  
Health Care ◽  
Psychosocial Factors ◽  
Special Health Care Needs ◽  
Children And Youth ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Special Health

scholarly journals Psychosocial Factors in Children and Youth With Special Health Care Needs and Their Families

PEDIATRICS ◽  
2018 ◽  
Vol 143 (1) ◽  
pp. e20183171 ◽  
Author(s):  
Gerri Mattson ◽  
Dennis Z. Kuo ◽  
◽  
Keyword(s):  
Health Care ◽  
Psychosocial Factors ◽  
Special Health Care Needs ◽  
Children And Youth ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Special Health

Identifying What Pediatric Residents Are Taught About Children and Youth With Special Health Care Needs and the Medical Home

PEDIATRICS ◽  
2010 ◽  
Vol 126 (Supplement 3) ◽  
pp. S183-S189 ◽  
Author(s):  
Beverly L. Nazarian ◽  
Laurie Glader ◽  
Roula Choueiri ◽  
Deborah L. Shipman ◽  
Matthew Sadof
Keyword(s):  
Health Care ◽  
Medical Home ◽  
Special Health Care Needs ◽  
Children And Youth ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Pediatric Residents ◽  
Special Health

scholarly journals The Experience of Latina Mothers of Children and Youth With Special Health Care Needs: A Qualitative Study

2019 ◽  
Vol 6 ◽  
pp. 2333794X1985139 ◽  
Author(s):  
Nicola Brodie ◽  
Bruce Bernstein ◽  
Francis McNesby ◽  
Renee Turchi
Keyword(s):  
Health Care ◽  
Medical Home ◽  
Special Health Care Needs ◽  
Children And Youth ◽  
Patient Centered Medical Home ◽  
Health Care Needs ◽  
Care Needs ◽  
Patient Centered ◽  
Special Health Care ◽  
Special Health

Children and youth with special health care needs (CYSHCN) comprise a growing proportion of the pediatric population; the patient- and family-centered medical home provides a comprehensive model for caring for these patients. Given the limited literature available as well as extreme patient vulnerability, we sought to understand the experience of Latino parents in caring for their CYSHCN within our patient-centered medical home in an urban neighborhood in North Philadelphia. A convenience sample of 14 mothers or grandmothers of CYSHCN participated in semistructured interviews, which were analyzed using a thematic, constant comparative approach to identify common themes. Themes identified included “Waiting,” “Communication/Trust,” “All-Consuming Requirements of Care/Sacrifice,” and “Fate/Faith/Blessings.” These themes corresponded with identified goals of the patient-centered medical home. Our findings suggest that the principles of the patient-centered medical home can be applied in unique ways to caring for this unique patient population.

Barriers to Care for Children and Youth With Special Health Care Needs

2011 ◽  
Vol 51 (1) ◽  
pp. 39-45 ◽  
Author(s):  
Rishi Agrawal ◽  
Parag Shah ◽  
Kathy Zebracki ◽  
Kathy Sanabria ◽  
Claire Kohrman ◽  
...  
Keyword(s):  
Primary Care ◽  
Health Care ◽  
Special Health Care Needs ◽  
Children And Youth ◽  
Blood Glucose Monitoring ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Billing And Coding ◽  
Special Health

Objective. To assess primary care pediatricians’ (PCPs’) perceptions of caring for children and youth with special health care needs (CYSHCN). Methods. Cross-sectional survey of Illinois pediatricians. Results. Thirty-five percent of surveys were returned and 26% were analyzed. The top 3 perceived barriers were insufficient time (72%), insufficient reimbursement (68%), and lack of support services (59%). Insufficient interest was the least cited barrier (19%). Preparedness to perform tasks related to care of CYSHCN ranged from 89% for accessing early intervention services to 24% for billing and coding. The percentage of PCPs somewhat or very comfortable providing primary care to patients with technology dependence ranged from 75% for blood glucose monitoring to 12% for dialysis. Conclusions. The issues of time, reimbursement, billing, and coding are perceived as significant barriers to the care CYSHCN. There is substantial variation in PCPs’ comfort in the care of CYSHCN who require the assistance of medical technologies.

Oral Health Among Children and Youth With Special Health Care Needs

PEDIATRICS ◽  
2021 ◽  
pp. e2020025700
Author(s):  
Lydie A. Lebrun-Harris ◽  
María Teresa Canto ◽  
Pamella Vodicka ◽  
Marie Y. Mann ◽  
Sara B. Kinsman
Keyword(s):  
Health Care ◽  
Oral Health ◽  
Special Health Care Needs ◽  
Children And Youth ◽  
Health Care Needs ◽  
Care Needs ◽  
Special Health Care ◽  
Special Health
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