Foster Care for Children with Medical Complexity: Rarely a Short-term Solution*

Author(s):  
Rebecca R. Seltzer ◽  
Sara Johnson ◽  
Renee Boss ◽  
Cynthia Minkovitz
Author(s):  
Reid Parks ◽  
Nadia Doutcheva ◽  
Dhivya Umachandran ◽  
Nawang Singhe ◽  
Sofia Noejovich ◽  
...  

Family caregivers use tools and technology to provide care for children with medical complexity (CMC) in the home. It is unclear what barriers families experience when using the tools and technology integral to the care and wellbeing of CMC. Our objective was to identify the barriers family caregivers experience in using tools and technology to provide care to CMC in the home. We used contextual inquiry to interview 30 caregivers in their homes and analyzed our data using a deductive content analysis informed by the patient work system (PWS) model and an inductive content analysis to identify emergent barriers. Through these combined analyses, we identified four categories of barriers families experienced using tools and technology to care for CMC: 1) Access and Cost; 2) Usability, which includes the subcategories Functionality, Tool design, Ease of use, and Reliability; 3) Short-term tool impact; and 4) Long-term tool impact. Our results point to the need for further interventions to reduce or mitigate tools and technology barriers to the in-home care for CMC.


2015 ◽  
Vol 79 (1-2) ◽  
pp. 191-196 ◽  
Author(s):  
Rebecca R. Seltzer ◽  
Carrie M. Henderson ◽  
Renee D. Boss

2020 ◽  
Vol 20 (3) ◽  
pp. 333-340
Author(s):  
Rebecca R. Seltzer ◽  
Jessica C. Raisanen ◽  
Trisha da Silva ◽  
Pamela K. Donohue ◽  
Erin P. Williams ◽  
...  

2019 ◽  
Vol 9 (9) ◽  
pp. 697-706 ◽  
Author(s):  
Rebecca R. Seltzer ◽  
Jessica C. Raisanen ◽  
Erin P. Williams ◽  
Trisha Da Silva ◽  
Pamela K. Donohue ◽  
...  

2021 ◽  
Author(s):  
Alessandro Onofri ◽  
Martino Pavone ◽  
Simone De Santis ◽  
Elisabetta Verrillo ◽  
Serena Caggiano ◽  
...  

Author(s):  
M Salama ◽  
RK Shanahan ◽  
EZA Bassett ◽  
MR Kelly ◽  
KJ Ellicott ◽  
...  

Author(s):  
Hanna Barton ◽  
Ryan Coller ◽  
Sara Finesilver ◽  
Christopher Lunsford ◽  
Rupa S. Valdez ◽  
...  

For vulnerable patient populations, such as children with medical complexity (CMC), the patient journey is fraught with challenges. By providing a range of perspectives including clinicians, a family caregiver, and Human Factors/Ergonomics (HF/E) experts, the present panel will describe the unique opportunities for HF/E to design jointly optimized systems for CMC and their family caregivers, including an explication of some of the specific challenges and complexities related to studying the work of and designing systems for this population. We will also highlight the ways in which HF/E could help in the design of solutions to improve outcomes for families.


2014 ◽  
Vol 18 (1) ◽  
pp. 97-113 ◽  
Author(s):  
Frank Van Holen ◽  
Johan Vanderfaeillie ◽  
Femke Vanschoonlandt ◽  
Skrällan De Maeyer ◽  
Tim Stroobants

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