scholarly journals Correlation between sleep and quality of life in cerebral palsy

CoDAS ◽  
2014 ◽  
Vol 26 (6) ◽  
pp. 447-456 ◽  
Author(s):  
Gabriela Melloni Zuculo ◽  
Cintia Cristina Fadini Knap ◽  
Luciana Pinato
Keyword(s):  
Quality Of Life ◽  
Cerebral Palsy ◽  
Child Health ◽  
Sleep Diary ◽  
Control Group ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Sleep Habits ◽  
Quality Of Life Scale

PURPOSE: To investigate and correlate the sleep pattern and quality of life in individuals with cerebral palsy (CP) compared to healthy controls. METHODS: Seventy-eight subjects (aged 4-18 years, both genders) comprised two groups: CP, composed of 43 individuals with CP, and control, composed of 35 individuals without neurodevelopmental disorders. General Sleep Habits Questionnaire, Sleep Disturbance Scale for Children, sleep diary, Child Health Questionnaire, and Children's Quality of Life Scale were used. RESULTS: This study identified that 60.5% individuals with CP had sleep disorders. The respiratory disorders (25.6%) and the sleep hyperhidrosis (34.9%) were the most common disturbances in the group with CP. Moreover, 23.2% individuals of the group with CP reported awaking in the middle of the night and 37.2% of them snore, both percentages were higher than those in the control group. The sleep diary showed that individuals in the group with CP spend more time to initiate sleep (around 21 minutes). The group with CP also showed deficits in all parameters analyzed by the Child Health Questionnaire, except in family activity and the sleep-wake pattern, and quality of life showed negative correlation in several respects. CONCLUSION: The altered pattern of sleep in individuals with CP directly affects their physical and emotional well-being.

scholarly journals Tools used for evaluation of Brazilian children's quality of life

2014 ◽  
Vol 32 (2) ◽  
pp. 272-278 ◽  
Author(s):  
João Gabriel S. Souza ◽  
Marcela Antunes Pamponet ◽  
Tamirys Caroline S. Souza ◽  
Alessandra Ribeiro Pereira ◽  
Andrey George S. Souza ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Cultural Diversity ◽  
Qualité De Vie ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Language And Culture ◽  
Quality Of Life Inventory ◽  
Life Inventory

OBJECTIVE:To review the available tools to evaluate children's quality of life validated for Brazilian language and culture.DATA SOURCES: Search of scientific articles in Medline, Lilacs and SciELO databases using the combination of descriptors "quality of life", "child" and "questionnaires" in Portuguese and English.DATA SYNTHESIS: Among the tools designed to assess children's quality of life validated for the Brazilian language and culture, the Auto questionnaire Qualité de Vie Enfant Imagé (AUQEI), the Child Health Questionnaire - Parent Form 50 (CHQ-PF50), the Pediatric Quality of Life Inventory (PedsQL(tm))version 4.0 and the Kidscreen-52 are highlighted. Some tools do not include all range of ages and some lack domains that are currently considered relevant in the context of childhood, such as bullying. Moreover, due to the cultural diversity of Brazil, it may be necessary to adapt some instruments or to validate other tools.CONCLUSIONS: There are validated instruments to evaluate children's quality of life in Brazil. However, the validation or the adaptation of other international tools have to be considered in order to overcome current deficiencies

scholarly journals Health Related Quality of Life in Adolescents with Bladder Exstrophy-Epispadias as Measured by the Child Health Questionnaire-Child Form 87

2012 ◽  
Vol 188 (5) ◽  
pp. 1924-1929 ◽  
Author(s):  
Anthony J. Schaeffer ◽  
Gayane Yenokyan ◽  
Kaitlyn Alcorn ◽  
Susan L. Furth ◽  
Marie Diener-West ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Bladder Exstrophy ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Quality of life of patients treated during childhood for a bone tumor: Assessment by the Child Health Questionnaire

2005 ◽  
Vol 45 (2) ◽  
pp. 207-211 ◽  
Author(s):  
Marie-Dominique Tabone ◽  
Chantal Rodary ◽  
Odile Oberlin ◽  
Jean-Claude Gentet ◽  
Hélène Pacquement ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Bone Tumor ◽  
Child Health Questionnaire ◽  
Health Questionnaire

Health-related quality of life and orthosis use in a Swedish population with arthrogryposis

2018 ◽  
Vol 42 (4) ◽  
pp. 402-409 ◽  
Author(s):  
Marie Eriksson ◽  
Leena Jylli ◽  
Li Villard ◽  
Anna-Karin Kroksmark ◽  
Åsa Bartonek
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Arthrogryposis Multiplex Congenita ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Health Related Quality ◽  
Swedish Population ◽  
Related Quality ◽  
Health Related

Background: Joint contractures are the main characteristics for children with arthrogryposis multiplex congenita. Orthoses are often used to enable or facilitate walking. Objectives: To describe health-related quality of life in children with arthrogryposis multiplex congenita and satisfaction with orthoses in those using orthoses. Study design: Cross-sectional study. Methods: A total of 33 children with arthrogryposis multiplex congenita participated in the study. Questionnaires were used which measured health-related quality of life (Child Health Questionnaire–Parent Form and EQ-5D youth), mobility and self-care (Paediatric Evaluation of Disability Inventory) and satisfaction with orthoses (Quebec User Evaluation of Satisfaction with Assistive Technology 2.0). Children were divided into groups based on the use of orthoses: Ort-D were dependent on orthoses for walking, Ort-ND used orthoses but were not dependent on them for walking and Non-Ort did not use orthoses. Results: Children with arthrogryposis multiplex congenita had significantly lower Child Health Questionnaire scores in 9 of 12 subscales compared to healthy controls. The children’s reported perceived health with EQ-5D youth did not show any difference between children using orthoses or children using only shoes. Paediatric Evaluation of Disability Inventory showed less mobility in Ort-D than in Non-Ort. In total, both orthosis groups were ‘quite satisfied’ with their orthoses. Conclusion: Child Health Questionnaire–physical functioning was lowest in children who were dependent on orthoses (Ort-D) for walking. Both Ort-D and Ort-ND were similar satisfied with their orthoses. Clinical relevance This study contributes to knowledge about health-related quality of life in a group of ambulatory children with arthrogryposis multiplex congenita. For children using orthoses, it is relevant to capture their opinion about their orthoses but a questionnaire specifically for children should be developed.

scholarly journals Health-Related Quality of Life in Children With Sickle Cell Disease Using the Child Health Questionnaire

2014 ◽  
Vol 28 (1) ◽  
pp. 14-22 ◽  
Author(s):  
Brian H. Wrotniak ◽  
Joan I. Schall ◽  
Megan E. Brault ◽  
Dorene F. Balmer ◽  
Virginia A. Stallings
Keyword(s):  
Quality Of Life ◽  
Sickle Cell Disease ◽  
Child Health ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Health Related Quality ◽  
Cell Disease ◽  
Related Quality ◽  
Health Related
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