Factor structure of the Child Health Questionnaire Parent Form-50 and predictors of health-related quality of life in children with epilepsy

2013 ◽  
Vol 22 (8) ◽  
pp. 2201-2211 ◽  
Author(s):  
Mark A. Ferro ◽  
Jeanne M. Landgraf ◽  
Kathy N. Speechley
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Factor Structure ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals Health Related Quality of Life in Adolescents with Bladder Exstrophy-Epispadias as Measured by the Child Health Questionnaire-Child Form 87

2012 ◽  
Vol 188 (5) ◽  
pp. 1924-1929 ◽  
Author(s):  
Anthony J. Schaeffer ◽  
Gayane Yenokyan ◽  
Kaitlyn Alcorn ◽  
Susan L. Furth ◽  
Marie Diener-West ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Bladder Exstrophy ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Health-related quality of life and orthosis use in a Swedish population with arthrogryposis

2018 ◽  
Vol 42 (4) ◽  
pp. 402-409 ◽  
Author(s):  
Marie Eriksson ◽  
Leena Jylli ◽  
Li Villard ◽  
Anna-Karin Kroksmark ◽  
Åsa Bartonek
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Arthrogryposis Multiplex Congenita ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Health Related Quality ◽  
Swedish Population ◽  
Related Quality ◽  
Health Related

Background: Joint contractures are the main characteristics for children with arthrogryposis multiplex congenita. Orthoses are often used to enable or facilitate walking. Objectives: To describe health-related quality of life in children with arthrogryposis multiplex congenita and satisfaction with orthoses in those using orthoses. Study design: Cross-sectional study. Methods: A total of 33 children with arthrogryposis multiplex congenita participated in the study. Questionnaires were used which measured health-related quality of life (Child Health Questionnaire–Parent Form and EQ-5D youth), mobility and self-care (Paediatric Evaluation of Disability Inventory) and satisfaction with orthoses (Quebec User Evaluation of Satisfaction with Assistive Technology 2.0). Children were divided into groups based on the use of orthoses: Ort-D were dependent on orthoses for walking, Ort-ND used orthoses but were not dependent on them for walking and Non-Ort did not use orthoses. Results: Children with arthrogryposis multiplex congenita had significantly lower Child Health Questionnaire scores in 9 of 12 subscales compared to healthy controls. The children’s reported perceived health with EQ-5D youth did not show any difference between children using orthoses or children using only shoes. Paediatric Evaluation of Disability Inventory showed less mobility in Ort-D than in Non-Ort. In total, both orthosis groups were ‘quite satisfied’ with their orthoses. Conclusion: Child Health Questionnaire–physical functioning was lowest in children who were dependent on orthoses (Ort-D) for walking. Both Ort-D and Ort-ND were similar satisfied with their orthoses. Clinical relevance This study contributes to knowledge about health-related quality of life in a group of ambulatory children with arthrogryposis multiplex congenita. For children using orthoses, it is relevant to capture their opinion about their orthoses but a questionnaire specifically for children should be developed.

scholarly journals Health-Related Quality of Life in Children With Sickle Cell Disease Using the Child Health Questionnaire

2014 ◽  
Vol 28 (1) ◽  
pp. 14-22 ◽  
Author(s):  
Brian H. Wrotniak ◽  
Joan I. Schall ◽  
Megan E. Brault ◽  
Dorene F. Balmer ◽  
Virginia A. Stallings
Keyword(s):  
Quality Of Life ◽  
Sickle Cell Disease ◽  
Child Health ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Health Related Quality ◽  
Cell Disease ◽  
Related Quality ◽  
Health Related

Health-related quality of life as measured by the child health questionnaire in adolescents with bipolar disorder treated with olanzapine

2012 ◽  
Vol 53 (7) ◽  
pp. 1000-1005 ◽  
Author(s):  
Brian T. Olsen ◽  
Stephen J. Ganocy ◽  
Samantha M. Bitter ◽  
Robert L. Findling ◽  
Michael Case ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Bipolar Disorder ◽  
Child Health ◽  
Child Health Questionnaire ◽  
Health Questionnaire ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

scholarly journals P139 What impact does JIA have on health-related quality of life over time and by gender?

Rheumatology ◽  
2020 ◽  
Vol 59 (Supplement_2) ◽  
Author(s):  
Andrew Smith ◽  
Bishma Saqib ◽  
Rebecca Lee ◽  
Wendy Thomson ◽  
Lis Cordingley
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Child Health ◽  
Reference Population ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Over Time ◽  
Domain Scores

Abstract Background Juvenile idiopathic arthritis (JIA) is a heterogeneous group of arthritic conditions presenting in children and young people, in which physical limitations and associated complications can have detrimental effects on physical and psychosocial wellbeing. This study aims to investigate the impact of living with JIA on different aspects of health-related quality of life (HRQoL) and to explore how this changes over time, using data from the Childhood Arthritis Prospective Study (CAPS). Methods Longitudinal data collected as part of CAPS were analysed. HRQoL was assessed at baseline, 1 year and 3 years’ post-diagnosis using the Child Health Questionnaire (CHQ), a parent-completed form for children from 5 years of age. The CHQ measures physical, emotional and social components of child health status. Raw domain scores were transformed via algorithm into values ranging from 0-100, with higher scores indicating better health status. Mean (standard deviation) and median (interquartile range) for each domain were determined, both for the full cohort and by gender. Differences between median scores at baseline and 3 years were assessed using the Wilcoxon signed-rank test. Mean scores of each domain were visually compared with a reference population sample of healthy children from the United States. Results 184 participants completed the questionnaire at all 3 time points. At baseline, compared to the reference population, children with JIA scored lower in every domain although scores were closer between the 2 groups at 3 years. Median scores improved over time, the exception being the general health perceptions domain which decreased after baseline. Domains with the greatest improvement were physical functioning,“bodily pain and social-physical. The largest changes occurred from baseline to 1 year. Statistically significant differences between baseline and 3-year scores were found for all domains. Domain scores for male and female participants were very similar at baseline, though scores for male participants indicated slightly better health at 1 and 3 years for both physical and psychosocial domains. Conclusion JIA has significant impact on HRQoL, which improves within 3 years of diagnosis with the greatest improvement occurring within the first year. Physical health domains show greater improvement over time than psychosocial domains, although psychosocial scores were generally higher throughout the study. Male participants tend to score slightly higher than female participants in both physical and psychosocial domains after baseline. Further research should explore measurable patient, age or disease-related drivers of HRQoL. Disclosures A. Smith None. B. Saqib None. R. Lee None. W. Thomson None. L. Cordingley None.

scholarly journals Assessing the Health-Related Quality of Life of Australian Adolescents: An Empirical Comparison of the Child Health Utility 9D and EQ-5D-Y Instruments

2015 ◽  
Vol 18 (4) ◽  
pp. 432-438 ◽  
Author(s):  
Gang Chen ◽  
Terry Flynn ◽  
Katherine Stevens ◽  
John Brazier ◽  
Elisabeth Huynh ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Child Health ◽  
Health Utility ◽  
Health Related Quality ◽  
Empirical Comparison ◽  
Related Quality ◽  
Health Related
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