Advocacy has a critical role in advancing the maternal health agenda. Patient advocacy groups can hold governments and other stakeholders accountable and ensure that commitments are translated into concrete action. This article highlights the advocacy efforts of the Preeclampsia Foundation, a patient advocacy organisation that aims to improve the diagnosis, management, and prevention of pre-eclampsia through research and improved healthcare practices. A number of challenges continue to face maternal health advocacy especially in low- and middle-income countries. Future directions include developing a strategic focus for advocacy, effectively engaging citizens to build a culture of accountability, and monitoring and evaluation of advocacy efforts.
The Critical Role of Patient Advocacy Groups in the Development of Rare Disease Gene Therapies
