scholarly journals Practice-Based Research Priorities for Palliative Care: Results From a Research-to-Practice Consensus Workshop

2015 ◽  
Vol 105 (11) ◽  
pp. 2237-2244 ◽  
Author(s):  
Karl Pillemer ◽  
Emily K. Chen ◽  
Catherine Riffin ◽  
Holly Prigerson ◽  
M. C. Reid
Keyword(s):  
Palliative Care ◽  
Research Priorities ◽  
Research To Practice ◽  
Practice Based Research

scholarly journals Academic Palliative Care Research in Portugal: Are We on the Right Track?

Healthcare ◽  
2018 ◽  
Vol 6 (3) ◽  
pp. 97 ◽  
Author(s):  
Alexandra Pereira ◽  
Amélia Ferreira ◽  
José Martins
Keyword(s):  
Palliative Care ◽  
Underserved Populations ◽  
Research Priorities ◽  
Care Research ◽  
Academic Production ◽  
Practice Based Research ◽  
Academic Publications ◽  
Number Of Publications ◽  
The Right ◽  
Care Development

Background: The narrow link between practice, education, and research is essential to palliative care development. In Portugal, academic postgraduate publications are the main booster for palliative care research. Methods: This is a bibliometric study that aims to identify Portuguese palliative care postgraduate academic work published in electronic academic repositories between 2000 and 2015. Results: 488 publications were identified. The number of publications has increased, especially in the last five years. The most frequently used method was quantitative, healthcare professionals were the most studied participants, and psychological and psychiatric aspects of care comprised the most current theme. Practice-based priorities are financial costs and benefits of palliative care, awareness and understanding of palliative care, underserved populations, best practices, communication, and palliative care in nonhospital settings. Conclusion: The number of palliative care postgraduate academic publications has increased in Portugal in the past few years. There is academic production in the eight domains of quality palliative care and on the three levels of recommendation for practice-based research priorities. The major research gaps in Portugal are at the system and societal context levels.

Palliative Care Research Priorities Survey

2011 ◽  
Author(s):  
Peter L. Hudson ◽  
Rachel Zordan ◽  
Tom Trauer
Keyword(s):  
Palliative Care ◽  
Research Priorities ◽  
Care Research

scholarly journals International palliative care research priorities: A systematic review

2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Felicity Hasson ◽  
Emma Nicholson ◽  
Deborah Muldrew ◽  
Olufikayo Bamidele ◽  
Sheila Payne ◽  
...  
Keyword(s):  
Systematic Review ◽  
Palliative Care ◽  
Research Priorities ◽  
Care Research

scholarly journals Research Priorities in Pediatric Palliative Care: A Delphi Study

2008 ◽  
Vol 24 (4) ◽  
pp. 229-239 ◽  
Author(s):  
Rose Steele ◽  
Harvey Bosma ◽  
Meaghen Fletcher Johnston ◽  
Susan Cadell ◽  
Betty Davies ◽  
...  
Keyword(s):  
Palliative Care ◽  
Delphi Study ◽  
Research Priorities ◽  
Pediatric Palliative Care

scholarly journals Research Priorities in Geriatric Palliative Care: Nonpain Symptoms

2013 ◽  
Vol 16 (9) ◽  
pp. 1001-1007 ◽  
Author(s):  
Sara Combs ◽  
Benzi M. Kluger ◽  
Jean S. Kutner
Keyword(s):  
Palliative Care ◽  
Research Priorities

scholarly journals Neuropalliative care

Neurology ◽  
2018 ◽  
Vol 91 (5) ◽  
pp. 217-226 ◽  
Author(s):  
Claire J. Creutzfeldt ◽  
Benzi Kluger ◽  
Adam G. Kelly ◽  
Monica Lemmon ◽  
David Y. Hwang ◽  
...  
Keyword(s):  
Palliative Care ◽  
Early Stage ◽  
Research Priorities ◽  
Evidence Base ◽  
Models Of Care ◽  
Decision Quality ◽  
Management Communication ◽  
Palliative Care Education ◽  
Mind And Body ◽  
Effective Models

Neuropalliative care is an emerging subspecialty in neurology and palliative care. On April 26, 2017, we convened a Neuropalliative Care Summit with national and international experts in the field to develop a clinical, educational, and research agenda to move the field forward. Clinical priorities included the need to develop and implement effective models to integrate palliative care into neurology and to develop and implement informative quality measures to evaluate and compare palliative approaches. Educational priorities included the need to improve the messaging of palliative care and to create standards for palliative care education for neurologists and neurology education for palliative specialists. Research priorities included the need to improve the evidence base across the entire research spectrum from early-stage interventional research to implementation science. Highest priority areas include focusing on outcomes important to patients and families, developing serious conversation triggers, and developing novel approaches to patient and family engagement, including improvements to decision quality. As we continue to make remarkable advances in the prevention, diagnosis, and treatment of neurologic illness, neurologists will face an increasing need to guide and support patients and families through complex choices involving immense uncertainty and intensely important outcomes of mind and body. This article outlines opportunities to improve the quality of care for all patients with neurologic illness and their families through a broad range of clinical, educational, and investigative efforts that include complex symptom management, communication skills, and models of care.

scholarly journals Practitioners' Views on Elder Mistreatment Research Priorities: Recommendations From a Research-to-Practice Consensus Conference

2011 ◽  
Vol 23 (2) ◽  
pp. 115-126 ◽  
Author(s):  
Karl Pillemer ◽  
Risa Breckman ◽  
Charlotte D. Sweeney ◽  
Patricia Brownell ◽  
Terry Fulmer ◽  
...  
Keyword(s):  
Research Priorities ◽  
Consensus Conference ◽  
Research To Practice ◽  
Elder Mistreatment

scholarly journals An examination of the research priorities for a hospice service in New Zealand: A Delphi study

2015 ◽  
Vol 14 (3) ◽  
pp. 232-240 ◽  
Author(s):  
Kay de Vries ◽  
Jo Walton ◽  
Katherine Nelson ◽  
Rhondda Knox
Keyword(s):  
Decision Making ◽  
Palliative Care ◽  
New Zealand ◽  
Symptom Management ◽  
Care Service ◽  
Research Priorities ◽  
Palliative Care Service ◽  
Family Carers ◽  
Research Topics ◽  
Research Themes

AbstractObjectives:Palliative care research is relatively diverse and prioritizing research in this field is dependent on multiple factors such as complex ethical decisions in designing and conducting the research; access to participants who may be deemed “vulnerable” and an increasingly medically focused approach to care. The aim of this study was to inform organizational decision-making and policy development regarding future research priorities for a hospice service in New Zealand.Methods:A modified three-round Delphi technique was employed. Participants were drawn from one dedicated specialist palliative care service that delivers care in the community, day-care, hospice inpatient, aged residential care, and acute hospital palliative care service. A purposive sample included palliative care staff (n = 10, 18, 9, for rounds 1–3, respectively) volunteers (n = 10, 12, 11); and patients and family carers (n = 6, 8, for rounds 1 and 2). Patients and family carers were not involved in the third round.Results:At final ranking of six research themes encompassing 23 research topics were identified by staff and volunteers. These were: symptom management; aged care; education; community; patient and family; and bereavement support and young people. Patients and family carers agreed on four themes, made up of 10 research topics. These were: decision-making, bereavement and loss, symptom management; and recognition of need and response of service.Significance of results:The study generated a rich set of research themes and specific research topics. The perspectives of staff and volunteers are significantly different from those of patients and family members, in spite of the recognition by all concerned that palliative care services work within a philosophy of patient-centered care. Open discussion of ideas has the potential to engage both staff and patients and carers in quality improvement initiatives, and to reinforce the value of research for patient care.

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