The Importance of Relationship Quality between Spouses in Advanced Parkinson's Disease from the Perspective of the Caregiving Partner in Palliative Care Needs of Patients and Family

2019 ◽  
Author(s):  
Rena Arshinoff
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Relationship Quality ◽  
Care Needs ◽  
Advanced Parkinson’S Disease ◽  
Palliative Care Needs

What Do Social Workers Think about the Palliative Care Needs of People with Parkinson's Disease?

2011 ◽  
Vol 43 (1) ◽  
pp. 81-98 ◽  
Author(s):  
M. Waldron ◽  
W. G. Kernohan ◽  
F. Hasson ◽  
S. Foster ◽  
B. Cochrane
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Social Workers ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals Survey of Health Care Workers Suggests Unmet Palliative Care Needs in Parkinson's Disease

2015 ◽  
Vol 2 (2) ◽  
pp. 142-148 ◽  
Author(s):  
Siobhan Fox ◽  
Elizabeth Gannon ◽  
Alison Cashell ◽  
W. George Kernohan ◽  
Marie Lynch ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Health Care ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Health Care Workers ◽  
Care Needs ◽  
Care Workers ◽  
Palliative Care Needs

scholarly journals RADPAC-PD: A tool to support healthcare professionals in timely identifying palliative care needs of people with Parkinson’s disease

PLoS ONE ◽  
2020 ◽  
Vol 15 (4) ◽  
pp. e0230611 ◽  
Author(s):  
Herma Lennaerts-Kats ◽  
Jenny T. van der Steen ◽  
Zefanja Vijftigschild ◽  
Maxime Steppe ◽  
Marjan J. Meinders ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Healthcare Professionals ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals Defining Palliative Care Needs in Parkinson's Disease

2018 ◽  
Vol 6 (2) ◽  
pp. 125-131 ◽  
Author(s):  
Benzi M. Kluger ◽  
Jo Shattuck ◽  
Julie Berk ◽  
Kelly Sebring ◽  
Wallace Jones ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Care Needs ◽  
Palliative Care Needs

scholarly journals Parkinson's Disease Personified: Patient and Caregiver Perspectives on Palliative Care Needs (FR438)

2020 ◽  
Vol 59 (2) ◽  
pp. 465-466
Author(s):  
Jessica M. Besbris ◽  
Christina L. Vaughan ◽  
Benzi Kluger ◽  
Judy Long ◽  
Arik Johnson ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Care Needs ◽  
Palliative Care Needs

Impact of specialist palliative care on coping with Parkinson’s disease: patients and carers

2018 ◽  
Vol 8 (2) ◽  
pp. 180-183 ◽  
Author(s):  
Nathan J Badger ◽  
Dorothy Frizelle ◽  
Debi Adams ◽  
Miriam J Johnson
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Interpretative Phenomenological Analysis ◽  
Specialist Palliative Care ◽  
Advanced Parkinson’S Disease ◽  
Care Access ◽  
North East ◽  
Palliative Care Services ◽  
Positive Outlook

ObjectivesUK guidelines recommend palliative care access for people with Parkinson’s disease; however, this remains sporadic, and it is unknown whether specialist palliative care helps patients and carers cope with this distressing condition. This study aimed to explore whether, and how, access to specialist palliative care services affected patients’ and carers’ coping with Parkinson’s disease.MethodsSemistructured interviews were conducted, audio-recorded and verbatim transcribed. Data were analysed using interpretative phenomenological analysis. Participants were patients with advanced idiopathic Parkinson’s disease (n=3), and carers of people with Parkinson’s disease (n=5, however, one diagnosis was reviewed) receiving care from an integrated specialist palliative care and Parkinson’s disease service in North East England.ResultsAccess to specialist palliative care helped participants cope with some aspects of advanced Parkinson’s disease. Three superordinate themes were developed:‘ managing uncertainty’, ‘impacts on the self’ and ‘specialist palliative care maintaining a positive outlook’.ConclusionsSpecialist palliative care helped patients and carers cope with advanced Parkinson’s disease. Specialist palliative care is a complex intervention that acknowledges the complex and holistic nature of Parkinson’s disease, enabling health in some domains despite continued presence of pathology. These exploratory findings support the utility of this approach for people living with Parkinson’s disease.

scholarly journals Allied health professional's views on palliative care for people with advanced Parkinson's disease

2011 ◽  
Vol 18 (1) ◽  
pp. 48-57 ◽  
Author(s):  
Mary Waldron ◽  
W George Kernohan ◽  
Felicity Hasson ◽  
Susan Foster ◽  
Barbara Cochrane ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Palliative Care ◽  
Parkinson's Disease ◽  
Allied Health ◽  
Advanced Parkinson’S Disease
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