COVID‐19 pandemic and inflammatory bowel disease from patients' perspective: A survey from COVID epicenter in India

Abstract Background The coronavirus disease 2019 [COVID-19] pandemic is affecting lives worldwide. The influence of inflammatory bowel disease [IBD] medication and IBD itself on COVID-19 is controversial. Additionally, IBD-focused guidance is scarce. Objective Our aims were to determine COVID-19 prevalence/exposure, perception and information sources, medication compliance, patient behaviour and physician contact among patients with IBD compared with non-IBD controls. Methods A cross-sectional anonymous survey of patients with IBD [N = 415] at one university IBD clinic and one gastroenterology practice, matched 4:1 with control participants [N = 116], was performed. Results Patients with IBD had a high fear of infection. This was more pronounced in patients taking immunosuppressants and it extended to hospitals, private practices and public places, such as supermarkets. IBD patients reported leaving their homes less frequently than their peers without IBD. A total of 90% of patients with IBD reported washing their hands more frequently. Patients taking immunosuppressants were concerned about interactions between medication and COVID-19, whereas patients taking 5-aminosalicylates were not. Nonetheless, 96.4% of patients adhered to continuing their medication. Patients sought guidance primarily from television and internet news sites. Video consultations were found to be a suitable solution for a subset of patients who are young, have a high level of fear and leave their home less frequently than their peers, whereas overall acceptance of video consultations was limited. Conclusion Patients with IBD are significantly more affected by the COVID-19 pandemic than their non-IBD peers, but they continue to adhere to their medication regimens. IBD-focused COVID-19 information should be actively conveyed.

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Pregnancy related issues in inflammatory bowel disease: Evidence base and patients' perspective

World Journal of Gastroenterology ◽

10.3748/wjg.v18.i21.2600 ◽

2012 ◽

Vol 18 (21) ◽

pp. 2600 ◽

Cited By ~ 31

Author(s):

Christian P Selinger

Keyword(s):

Inflammatory Bowel Disease ◽

Bowel Disease ◽

Evidence Base ◽

Inflammatory Bowel ◽

Patients Perspective

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Letter: role of diet in the onset and relapse of inflammatory bowel disease from the patients’ perspective - authors’ reply

Alimentary Pharmacology & Therapeutics ◽

10.1111/apt.12586 ◽

2014 ◽

Vol 39 (3) ◽

pp. 340-341

Author(s):

C. E. G. M. Spooren ◽

M. J. Pierik ◽

M. P. Zeegers ◽

E. J. M. Feskens ◽

A. A. M. Masclee ◽

...

Keyword(s):

Inflammatory Bowel Disease ◽

Bowel Disease ◽

Inflammatory Bowel ◽

Patients Perspective

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PWE-058 Co-designing inflammatory bowel disease (ibd) services in scotland: the patients perspective

Gut ◽

10.1136/gutjnl-2015-309861.507 ◽

2015 ◽

Vol 64 (Suppl 1) ◽

pp. A237.1-A237

Author(s):

M Schoultz ◽

L Macaden ◽

A Watson

Keyword(s):

Inflammatory Bowel Disease ◽

Bowel Disease ◽

Inflammatory Bowel ◽

Patients Perspective

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Barriers to clinical research in children with inflammatory bowel disease: The patients' perspective

PLoS ONE ◽

10.1371/journal.pone.0206965 ◽

2018 ◽

Vol 13 (11) ◽

pp. e0206965

Author(s):

Wael El-Matary ◽

Vini Deora ◽

Kanika Grover

Keyword(s):

Inflammatory Bowel Disease ◽

Clinical Research ◽

Bowel Disease ◽

Inflammatory Bowel ◽

Patients Perspective

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Letter: role of diet in the onset and relapse of inflammatory bowel disease from the patients’ perspective

Alimentary Pharmacology & Therapeutics ◽

10.1111/apt.12554 ◽

2014 ◽

Vol 39 (3) ◽

pp. 340-340

Author(s):

K. Farkas ◽

Z. Szepes ◽

F. Nagy ◽

A. Bálint ◽

R. Bor ◽

...

Keyword(s):

Inflammatory Bowel Disease ◽

Bowel Disease ◽

Inflammatory Bowel ◽

Patients Perspective

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P450 Vaccination strategies in Inflammatory Bowel Disease patients: perspective of physicians and patients

Journal of Crohn s and Colitis ◽

10.1093/ecco-jcc/jjab076.574 ◽

2021 ◽

Vol 15 (Supplement_1) ◽

pp. S446-S446

Author(s):

R Ferreiro Iglesias ◽

A Hernández Camba ◽

R Saldaña ◽

I Rodríguez-Lago ◽

Y Zabana ◽

...

Keyword(s):

Inflammatory Bowel Disease ◽

Clinical Practice ◽

Bowel Disease ◽

First Year ◽

Live Vaccines ◽

Immunization Rates ◽

National Patient ◽

Inflammatory Bowel ◽

First Year Of Life ◽

Patients Perspective

Abstract Background Despite the existence of specific recommendations, patients with Inflammatory Bowel Disease (IBD) have shown low immunization rates. The aim of this study was to evaluate the management of vaccines in clinical practice in IBD from the perspective of physicians and patients. Methods An online anonymous survey was sent to 8000 patients from a national patient association (ACCU-Spain) and 1000 members of the Spanish IBD Working Group (GETECCU). Three invitations were sent between October-December 2020. Forty questions were jointly designed by ACCU and GETECCU in two different surveys for physicians and patients. Descriptive analyses were performed, comparing physician’s and patient’s responses by standard statistical analyses Results 144 physicians and 1302 patients responded to the surveys (overall mean age of 43 years (SD 9.5). 65% of physicians managed more than 200 patients and 80% had >5 years of experience. Most physicians (99%) were concerned about vaccines in IBD patients in their clinical practice, and 63% of them considered vaccines very important. Only 3.5% of physicians recommended live vaccines for their IBD patients with immunosuppressive treatments. One third of physicians did not recommend HPV vaccine. In spite of 69% of physicians recommending influenza vaccine during pregnancy, only 7.2% of pregnant patients indicated that they had received advice on influenza vaccination on their pregnancy (p<0.001). Only 16.6% of physicians recommended live vaccines during the first year of life in children born to mothers exposed to biologics, and 4.4% did not recommend inactive vaccines. Moreover, patients treated with biologics considered that physicians were well trained in vaccines, compared to those treated with other drugs. Table 1 summarizes the perspective of physicians and patients. Conclusion Deficiencies in knowledge regarding vaccination of IBD patients can be frequent. The perspective of physicians and patients is different, with physicians perceiving more recommendations related to vaccines than patients were recommended.

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