Translation, psychometric validation, and baseline results of the Patient-Reported Outcomes Measurement Information System (PROMIS) pediatric measures to assess health-related quality of life of patients with pediatric lymphoma in Malawi

2018 ◽  
Vol 65 (11) ◽  
pp. e27353 ◽  
Author(s):  
Katherine Westmoreland ◽  
Bryce B. Reeve ◽  
Amy Amuquandoh ◽  
Toon van der Gronde ◽  
Olivia Manthalu ◽  
...  
Keyword(s):  
Patient Reported Outcomes ◽  
Psychometric Validation ◽  
Measurement Information ◽  
Health Related Quality ◽  
Outcomes Measurement ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
Measurement Information System

scholarly journals Disablement Model and Health-Related Quality of Life Classification for Patient-Reported Outcomes Measurement Information System (PROMIS) Instruments

2018 ◽  
Vol 53 (12) ◽  
pp. 1206-1213 ◽  
Author(s):  
Alison R. Snyder Valier ◽  
Cailee E. Welch Bacon ◽  
Kenneth C. Lam
Keyword(s):  
Patient Reported Outcomes ◽  
Measurement Information ◽  
Health Related Quality ◽  
Outcomes Measurement ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
Measurement Information System ◽  
Pro Instruments

ContextThe National Institutes of Health created a medical research road map that included the development of the Patient-Reported Outcomes Measurement Information System (PROMIS). A key feature of PROMIS was the development of patient-reported outcome measures (PROs) addressing various aspects of health. Understanding disablement dimensions and health-related quality-of-life (HRQOL) domains captured through PROMIS measures will help with instrument selection.ObjectiveTo evaluate the pediatric PROMIS PROs and determine the areas of disablement and HRQOL captured within each instrument.DesignDescriptive laboratory study.SettingLaboratory.Patients or Other ParticipantsTwenty-two pediatric PROMIS instruments (19 short forms and 3 profiles).Main Outcome Measure(s)Three raters independently reviewed the PROMIS instruments and categorized each question on each instrument according to the World Health Organization's International Classification of Functioning, Disability, and Health disablement model domains (body functions and structures, activity, participation, environmental factors, personal factors) and HRQOL (psychological, physical, social, spiritual, economic) dimensions. A consensus process determined the final question category. The frequencies of disablement model domains and HRQOL dimensions captured by questions on PROMIS instruments were reported.ResultsThe most frequently reported disablement model domain was body function and structure, which was captured by questions in 16/22 (73%) pediatric PROMIS instruments, followed by activity (13/22 [59%] pediatric PROMIS instruments) and participation (9/22 [41%] pediatric PROMIS instruments). The most frequently captured HRQOL dimensions were physical and psychological health, both evaluated in 13/22 (59%) of the pediatric PROMIS instruments. The social dimension of HRQOL was assessed in 9/22 (41%) of the pediatric PROMIS instruments.ConclusionsPediatric PROMIS fixed-length instruments captured a variety of disablement domains and health dimensions, but, like most PRO instruments, no single PROMIS instrument captured them all. Clinicians and researchers must consider their goals when selecting PRO instruments, which may require implementing multiple instruments and those beyond PROMIS.

scholarly journals PMH45 Health-Related Quality of Life Patient-Reported Outcomes in Schizophrenia

2012 ◽  
Vol 15 (7) ◽  
pp. A342
Author(s):  
A. Millier ◽  
E. Clay ◽  
D. Chauhan ◽  
M. Toumi
Keyword(s):  
Quality Of Life ◽  
Patient Reported Outcomes ◽  
Health Related Quality ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related
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