Palliative, End-of-Life, and Psychiatric Care of Patients with Advanced Renal Disease

2022 ◽  
pp. 269-287
Author(s):  
Margaret Leung ◽  
April Zehm
2018 ◽  
Vol 178 (6) ◽  
pp. 799 ◽  
Author(s):  
Margaret L. Schwarze ◽  
Kate Schueller ◽  
R. Allan Jhagroo

2012 ◽  
Vol 27 (3) ◽  
pp. 879-881 ◽  
Author(s):  
N. Arulkumaran ◽  
P. Szawarski ◽  
B. J. Philips

2020 ◽  
Vol 18 (2) ◽  
Author(s):  
Nur Raziana Rozi ◽  
Wan Ahmad Syahril Rozli Wan Ali ◽  
Che Rosle Draman ◽  
Hafizah Pasi

Introduction: There has been an increasing awareness on the end of life care for end stage renal disease (ESRD) patients and patients’ factors have been identified as pivotal elements in directing its implementation. Questionnaire has been a useful tool by researchers to assess on patients’ knowledge, perceptions and preferences on end of life care. However, up to date, there is no validated questionnaire developed in Malaysia for such purposes. Thus, this study aims to develop and validate questionnaires on end of life care knowledge, perceptions and preferences among ESRD patients in Kuantan. Materials and method: A cross-sectional study among haemodialysis (HD) patients aged 18 and above from 14 out-patient HD centres was performed. This study was divided into 4 phases i) developing the questionnaire involving related specialists and pre testing, ii) improving and editing the questionnaire and redistribution to 50 respondents for the pilot study, iii) factor analysis and iv) internal consistency reliability testing of the questionnaire.  Results:  The result of Factor analysis with Varimax rotation performed identified 3 domains for the 41 items, with 10 to 20 items in each domain. All the 41 analyzed items had a good factor loading of more than 0.4 with the lowest value of 0.421 and were nicely fit into 3 respective domains; knowledge, perception and preference. Internal consistency reliability analysis performed indicates that Cronbach’s α was between 0.5 to 0.7 for all factors which were higher than the level set for this study which is 0.5. Conclusion: The questionnaire is successfully validated and considered as a useful tool to be used. Nonetheless, improvement will still be necessary from time to time to ensure its relevance especially if it is to be used by different populations or countries of different background than Malaysia.


Author(s):  
Cara L. McDermott ◽  
Ruth A. Engelberg ◽  
Nita Khandelwal ◽  
Jill M. Steiner ◽  
Laura C. Feemster ◽  
...  

Purpose: Multimorbidity is associated with increased intensity of end-of-life healthcare. This association has been examined by number but not type of conditions. Our purpose was to understand how intensity of care is influenced by multimorbidity within specific chronic conditions to provide guidance for interventions to improve end-of-life care for these patients. Methods: We identified adults cared for in a multihospital healthcare system who died between 2010–2017. We categorized patients by 4 primary chronic conditions: heart failure, pulmonary disease, renal disease, or dementia. Within each condition, we examined the effect of multimorbidity (presence of 4 or more chronic conditions) on hospital and ICU admission in the last 30 days of life, in-hospital death, and advance care planning (ACP) documentation >30 days before death. We performed logistic regression to estimate associations between multimorbidity and end-of-life care utilization, stratified by the presence or absence of ACP documentation. Results: ACP documentation >30 days before death was associated with lower odds of in-hospital death for all 4 conditions both in patients with and without multimorbidity. With the exception of patients with renal disease without multimorbidity, we observed lower odds of hospitalization and ICU admission for all patients with ACP >30 days before death. Conclusions: Patients with dementia and multimorbidity had the highest odds of high-intensity end-of-life care. For patients with dementia, heart failure, or pulmonary disease, ACP documentation >30 days before death was associated with lower likelihood of in-hospital death, hospitalization, and ICU use at end-of-life, regardless of multimorbidity.


2017 ◽  
Vol 18 (1) ◽  
Author(s):  
Karla Gonzalez ◽  
Jesus G. Ulloa ◽  
Gerardo Moreno ◽  
Oscar Echeverría ◽  
Keith Norris ◽  
...  

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