Effective Practice and Decision-Making for Parents of Children with Autism Spectrum Disorder

2016 ◽  
pp. 3-7
Author(s):  
Amanda Webster ◽  
Joy Cumming ◽  
Susannah Rowland
Keyword(s):  
Decision Making ◽  
Autism Spectrum Disorder ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Effective Practice

Parent and Child Factors Predicting Early Intervention Choices of Australian Parents of Children With Autism Spectrum Disorder

2019 ◽  
Vol 43 (2) ◽  
pp. 83-101
Author(s):  
Sarah Carlon ◽  
Mark Carter ◽  
Jennifer Stephenson ◽  
Naomi Sweller
Keyword(s):  
Decision Making ◽  
Autism Spectrum Disorder ◽  
Parent Education ◽  
Family Income ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Future Research ◽  
Factors Affecting ◽  
Child Factors

AbstractExtant research addressing implicit factors related to intervention decisions made by parents of children with autism spectrum disorder (ASD) is limited and findings have been inconsistent. In the present study, 74 parents of preschoolers with ASD were surveyed regarding intervention use. The possible relationships between implicit parent factors (education level, age, causal beliefs about ASD, complementary and alternative medicine [CAM] use, and family income) and child factors (time since diagnosis, and perceived severity of ASD), and the number and type of interventions used were examined. Consistent with previous research, only a small number of significant relationships were found, including that family income, parent use of CAM, mother’s education, parent belief in an unknown aetiology of ASD, and time since child’s diagnosis were all related to the number of interventions used. Some specific findings of previous research were not replicated in the present study (e.g., neither beliefs in environmental aetiology of ASD nor parent education levels were related to the use of specific CAM interventions), indicating that factors affecting decision-making may not be consistent across samples. Nevertheless, future research including an expanded range of possible implicit factors with more diverse samples may provide a more accurate predictive model of parent decision-making.

Shared Decision Making: Improving Care for Children with Autism

2012 ◽  
Vol 50 (4) ◽  
pp. 322-331 ◽  
Author(s):  
Allison Golnik ◽  
Nadia Maccabee-Ryaboy ◽  
Peter Scal ◽  
Andrew Wey ◽  
Philippe Gaillard
Keyword(s):  
Decision Making ◽  
Autism Spectrum Disorder ◽  
Shared Decision Making ◽  
Treatment Options ◽  
Children With Autism ◽  
Parent Satisfaction ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Controversial Issues ◽  
Shared Decision

Abstract We assessed the extent to which parents of children with autism spectrum disorder report that they are engaged in shared decision making. We measured the association between shared decision making and (a) satisfaction with care, (b) perceived guidance regarding controversial issues in autism spectrum disorder, and (c) perceived assistance navigating the multitude of treatment options. Surveys assessing primary medical care and decision-making processes were developed on the basis of the U.S. Department of Health and Human Service's Consumer Assessment of Healthcare Providers and Systems survey. In May 2009, after pilot testing, we sent surveys to 203 parents of children from ages 3 to 18 with International Classification of Diseases–9 and parent-confirmed autism spectrum disorder diagnoses. The response rate was 64%. Controlling for key demographic variables, parents of children with autism spectrum disorder reporting higher levels of shared decision making reported significantly greater satisfaction with the overall quality of their child's health care (p ≤ .0001). Parents reporting higher levels of shared decision making were also significantly more likely to report receiving guidance on the many treatment options (p  =  .0002) and controversial issues related to autism spectrum disorder (p  =  .0322). In this study, shared decision making was associated with higher parent satisfaction and improved guidance regarding treatments and controversial issues within primary care for children with autism spectrum disorder.

Pilot Study of a Parent Guided Website Access Package for Early Intervention Decision-Making for Autism Spectrum Disorder

2017 ◽  
Vol 41 (2) ◽  
pp. 141-156 ◽  
Author(s):  
Sarah Carlon ◽  
Mark Carter ◽  
Jennifer Stephenson
Keyword(s):  
Decision Making ◽  
Autism Spectrum Disorder ◽  
Pilot Study ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Future Research ◽  
Research Support ◽  
Raising Children ◽  
Children With Asd

A pilot study of the effectiveness of guided access to websites that provide information on intervention options for children with autism spectrum disorder (ASD) was conducted with 12 parents of preschool-aged children with ASD. Guided access to reliable websites that included information about the efficacy of interventions for ASD (Raising Children Network, 2006–2014; Research Autism, 2006–2014) was provided in the format of a DVD presentation. The guidelines for choosing interventions provided on the Raising Children Network (2009) website were reiterated and assistance was provided with navigation and interpretation of the sites. Participants reported the guided access to reliable websites as useful and also reported an increased level of confidence in making intervention decisions after using the package. However, the guided access did not appear to influence the factors that parents considered important in decision-making, their understanding of the level of research support for interventions, nor their desire to use different interventions. Implications for future research and attempts to disseminate information to parents are discussed.

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