scholarly journals Cancer experiences and health-related quality of life among racial and ethnic minority survivors of young adult cancer: a mixed methods study

2016 ◽  
Vol 24 (12) ◽  
pp. 4861-4870 ◽  
Author(s):  
Alexis R. Munoz ◽  
Karen Kaiser ◽  
Betina Yanez ◽  
David Victorson ◽  
Sofia F. Garcia ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Young Adult ◽  
Mixed Methods Study ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Cancer ◽  
Racial And Ethnic Minority

Health-related quality of life in adult CHD surgical patients in a low middle-income country: a mixed-methods study

2020 ◽  
Vol 30 (8) ◽  
pp. 1126-1137
Author(s):  
Laila A. Ladak ◽  
Robyn Gallagher ◽  
Babar S. Hasan ◽  
Khadija Awais ◽  
Ahmed Abdullah ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Income Country ◽  
Surgical Patients ◽  
Health Related Quality ◽  
Middle Income ◽  
Related Quality ◽  
Health Related

AbstractBackground and objectives:This mixed-methods study aimed to assess health-related quality of life in young adults with CHD following surgery in a low middle-income country, Pakistan. Despite the knowledge that geographic, cultural and socio-economic factors may shape the way health and illness is experienced and managed and consequently determine a person’s health-related quality of life, few health-related quality of life studies are conducted in low middle-income countries. This deficit is pronounced in CHD, so there is little guidance for patient care.Methods:The study utilised concurrent, mixed methods. Adults with CHD (n = 59) completed health-related quality of life surveys (PedsQLTM 4.0 Generic Core Scale, PedsQLTM Cognitive Functioning Scale and PedsQLTM 3.0 Cardiac Module). Semi-structured interview data were collected from a nested sub-sample of 17 participants and analysed using qualitative content analysis, guided by the revised Wilson–Cleary model of health-related quality of life.Results:The lowest health-related quality of life domain was emotional with the mean score (71.61 ± 20.6), followed by physical (78.81 ± 21.18) and heart problem (79.41 ± 18.05). There was no statistical difference in general or cardiac-specific health-related quality of life between mild, moderate or complex CHD. Qualitative findings suggested low health-related quality of life arose from a reduced capacity to contribute to family life including family income and gender. A sense of reduced marriageability and fear of dependency were important socio-cultural considerations.Conclusions:CHD surgical patients in this low-income country experience poor health-related quality of life, and contributing factors differ to those reported for high-income countries. Socio-cultural understandings should underpin assessment, management and care-partnering with young adults with CHD following surgical correction.

scholarly journals Preference-based disease-specific health-related quality of life instrument for glaucoma: a mixed methods study protocol

BMJ Open ◽  
2016 ◽  
Vol 6 (11) ◽  
pp. e012732 ◽  
Author(s):  
Sergei Muratov ◽  
Dominik W Podbielski ◽  
Susan M Jack ◽  
Iqbal Ike K Ahmed ◽  
Levine A H Mitchell ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mixed Methods ◽  
Mixed Methods Study ◽  
Health Related Quality ◽  
Life Instrument ◽  
Related Quality ◽  
Health Related ◽  
Disease Specific ◽  
Specific Health
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