Priorities for caregiver research in cancer care: an international Delphi survey of caregivers, clinicians, managers, and researchers

Sylvie D. Lambert; Lydia Ould Brahim; Marjorie Morrison; Afaf Girgis; Mark Yaffe; Eric Belzile; Karissa Clayberg; John Robinson; Sally Thorne; Joan L. Bottorff; Wendy Duggleby; Heather Campbell-Enns; Youngmee Kim; Carmen G. Loiselle

doi:10.1007/s00520-018-4314-y

Priorities for caregiver research in cancer care: an international Delphi survey of caregivers, clinicians, managers, and researchers

Supportive Care in Cancer ◽

10.1007/s00520-018-4314-y ◽

2018 ◽

Vol 27 (3) ◽

pp. 805-817 ◽

Cited By ~ 10

Author(s):

Sylvie D. Lambert ◽

Lydia Ould Brahim ◽

Marjorie Morrison ◽

Afaf Girgis ◽

Mark Yaffe ◽

...

Keyword(s):

Cancer Care ◽

Delphi Survey

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Proposed Consensus-Based Canadian Integrative Oncology Research Priorities

International Journal of Whole Person Care ◽

10.26443/ijwpc.v1i1.70 ◽

2014 ◽

Vol 1 (1) ◽

Author(s):

Laura Weeks ◽

Dugald Seely ◽

Lynda Balneaves ◽

Heather Boon ◽

Anne Leis ◽

...

Keyword(s):

Cancer Care ◽

Research Agenda ◽

Research Priorities ◽

Delphi Survey ◽

Integrative Oncology ◽

Stakeholder Consultation ◽

Research Areas ◽

Oncology Research ◽

Oncology Practice ◽

Canadian Research

Objectives: An increasing number of integrative oncology programs are being established across Canada that offer a combination of complementary and conventional medical treatments in a shift towards whole-person cancer care. It was our objective to identify consensus-based research priorities within a coherent research agenda to guide Canadian integrative oncology practice and policy moving forward.Methods: Members of the Integrative Canadian Oncology Research Initiative and the Ottawa Integrative Cancer Centre organized a 2-day consensus workshop, which was preceded by a Delphi survey and stakeholder interviews.Results: Eighty-one participants took part in Round 1 of the Delphi survey, 52 in Round 2 (66.2%) and 45 (86.5%) in Round 3. Nineteen invited stakeholders participated in the 2-day workshop held in Ottawa, Canada. Five inter-related priority research areas emerged as a foundation for a Canadian research agenda: Effectiveness; Safety; Resource and Health Services Utilization; Knowledge Translation; and Developing Integrative Oncology Models. Research is needed within each priority area from a range of different perspectives (e.g., patient, practitioner, health system) and that reflects a continuum of integration from the addition of a single complementary intervention within conventional cancer care to systemic change. Participants brainstormed strategic directions to implement the developing research agenda and identified related opportunities within Canada. A voting process helped to identify working groups to pursue strategic directions within the interest and expertise of meeting participants.Conclusion: The identified research priorities reflect the needs and perspectives of a spectrum of integrative oncology stakeholders. Ongoing stakeholder consultation, including engagement from new stakeholders, is needed to ensure appropriate uptake and implementation of the Canadian research agenda.

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