A scoping review and assessment of essential elements of shared decision-making of parent-involved interventions in child and adolescent mental health

Purpose Much of the existing literature on shared decision making (SDM) in mental health has focused on the use of decision aids (DAs). However, DAs tend to focus on information exchange and neglect other essential elements to SDM in mental health. The purpose of this paper is to expand the review of SDM interventions in mental health by identifying important components, in addition to information exchange, that may contribute to the SDM process in mental health. Design/methodology/approach The authors conducted a systematic literature search using the Ovid-Medline database with supplementary scoping search of the literature on SDM in mental health treatment. To be eligible for inclusion, studies needed to describe (in a conceptual work or development paper) or evaluate (in any type of research design) a SDM intervention in mental health. The authors included studies of participants with a mental illness facing a mental health care decision, their caregivers, and providers. Findings A final sample of 31 records was systematically selected. Most interventions were developed and/or piloted in the USA for adults in community psychiatric settings. Although information exchange was a central component of the identified studies, important additional elements were: eliciting patient preferences and values, providing patient communication skills training, eliciting shared care planning, facilitating patient motivation, and eliciting patient participation in goal setting. Originality/value The review indicates that additional elements, other than information exchange such as sufficient rapport and trusting relationships, are important and needed as part of SDM in mental health. Future SDM interventions in mental health could consider including techniques that aim to increase patient involvement in activities such as goal settings, values, and preference clarification, or facilitating patient motivation, before and after presenting treatment options.

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Occupational Therapy Shared Decision Making in Adolescent Mental Health

Occupational Therapy in Mental Health ◽

10.1080/0164212x.2015.1036194 ◽

2015 ◽

Vol 31 (2) ◽

pp. 168-186 ◽

Cited By ~ 5

Author(s):

Linna Tam-Seto ◽

Joan Versnel

Keyword(s):

Mental Health ◽

Decision Making ◽

Occupational Therapy ◽

Shared Decision Making ◽

Adolescent Mental Health ◽

Shared Decision

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A Caregiver Digital Intervention to Support Shared Decision Making in Child and Adolescent Mental Health Services: Development Process and Stakeholder Involvement Analysis

JMIR Formative Research ◽

10.2196/24896 ◽

2021 ◽

Vol 5 (6) ◽

pp. e24896

Author(s):

Shaun Liverpool ◽

Julian Edbrooke-Childs

Keyword(s):

Mental Health ◽

Decision Making ◽

Decision Support ◽

Development Process ◽

Adolescent Mental Health ◽

Child And Adolescent ◽

Shared Decision ◽

Support Intervention ◽

Decision Support Intervention ◽

Digital Interventions

Background Parents and caregivers are generally recognized by literature and the law as key to child and adolescent mental health decisions. Digital interventions are increasingly being used to support care and treatment in child and adolescent mental health services (CAMHS). However, evidence of the design and development process is generally not made available. Objective In light of calls for more transparency, this paper aims to describe the development of an evidence-based, theoretically informed digital decision support intervention for parents and caregivers of young people accessing CAMHS. Methods The intervention was developed in line with the UK Medical Research Council framework for developing complex interventions. The process incorporated the steps for developing patient decision aids, as follows: assessing need, assessing feasibility; defining objectives; identifying the framework of decision support; and selecting the methods, designs, and dissemination approach. We synthesized theory, research, international guidelines, and input from relevant stakeholders using an iterative design approach. Results The development steps resulted in Power Up for Parents, a decision support intervention, with five key features (ie, decisions, goals, journey, support, and resources). The intervention aims to encourage discussion, allow parents to ask questions during sessions or seek further information between sessions, and allow service providers to tailor the shared decision-making process to accommodate the needs of the parent and child. Conclusions We confirmed that it is possible to use input from end users—integrated with theory and evidence—to create digital interventions to be used in CAMHS. Key lessons with implications for practice, policy, and implementation science, along with preliminary findings, are presented. International Registered Report Identifier (IRRID) RR2-10.2196/14571

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What approaches for promoting shared decision-making are used in child mental health? A scoping review

Clinical Psychology & Psychotherapy ◽

10.1002/cpp.2106 ◽

2017 ◽

Vol 24 (6) ◽

pp. O1495-O1511 ◽

Cited By ~ 13

Author(s):

Helen Cheng ◽

Daniel Hayes ◽

Julian Edbrooke-Childs ◽

Kate Martin ◽

Louise Chapman ◽

...

Keyword(s):

Mental Health ◽

Decision Making ◽

Shared Decision Making ◽

Scoping Review ◽

Child Mental Health ◽

Shared Decision

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A Caregiver Digital Intervention to Support Shared Decision Making in Child and Adolescent Mental Health Services: Development Process and Stakeholder Involvement Analysis (Preprint)

10.2196/preprints.24896 ◽

2020 ◽

Author(s):

Shaun Liverpool ◽

Julian Edbrooke-Childs

Keyword(s):

Mental Health ◽

Decision Making ◽

Decision Support ◽

Development Process ◽

Adolescent Mental Health ◽

Child And Adolescent ◽

Shared Decision ◽

Support Intervention ◽

Decision Support Intervention ◽

Digital Interventions

BACKGROUND Parents and caregivers are generally recognized by literature and the law as key to child and adolescent mental health decisions. Digital interventions are increasingly being used to support care and treatment in child and adolescent mental health services (CAMHS). However, evidence of the design and development process is generally not made available. OBJECTIVE In light of calls for more transparency, this paper aims to describe the development of an evidence-based, theoretically informed digital decision support intervention for parents and caregivers of young people accessing CAMHS. METHODS The intervention was developed in line with the UK Medical Research Council framework for developing complex interventions. The process incorporated the steps for developing patient decision aids, as follows: assessing need, assessing feasibility; defining objectives; identifying the framework of decision support; and selecting the methods, designs, and dissemination approach. We synthesized theory, research, international guidelines, and input from relevant stakeholders using an iterative design approach. RESULTS The development steps resulted in Power Up for Parents, a decision support intervention, with five key features (ie, decisions, goals, journey, support, and resources). The intervention aims to encourage discussion, allow parents to ask questions during sessions or seek further information between sessions, and allow service providers to tailor the shared decision-making process to accommodate the needs of the parent and child. CONCLUSIONS We confirmed that it is possible to use input from end users—integrated with theory and evidence—to create digital interventions to be used in CAMHS. Key lessons with implications for practice, policy, and implementation science, along with preliminary findings, are presented. INTERNATIONAL REGISTERED REPORT RR2-10.2196/14571

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Current Status and Future Prospects for Shared Decision Making before and after Total Knee Replacement Surgery—A Scoping Review

International Journal of Environmental Research and Public Health ◽

10.3390/ijerph18020668 ◽

2021 ◽

Vol 18 (2) ◽

pp. 668

Author(s):

Geert van der Sluis ◽

Jelmer Jager ◽

Ilona Punt ◽

Alexandra Goldbohm ◽

Marjan J. Meinders ◽

...

Keyword(s):

Decision Making ◽

Decision Support ◽

Total Knee Replacement ◽

Shared Decision Making ◽

Knee Replacement ◽

Study Design ◽

Scoping Review ◽

Decision Aids ◽

Shared Decision ◽

Total Knee

Background. To gain insight into the current state-of-the-art of shared decision making (SDM) during decisions related to pre and postoperative care process regarding primary total knee replacement (TKR). Methods. A scoping review was performed to synthesize existing scientific research regarding (1) decisional needs and preferences of patients preparing for, undergoing and recovering from TKR surgery, (2) the relation between TKR decision-support interventions and SDM elements (i.e., team talk, option talk, and decision talk), (3) the extent to which TKR decision-support interventions address patients’ decisional needs and preferences. Results. 2526 articles were identified, of which 17 articles met the inclusion criteria. Of the 17 articles, ten had a qualitative study design and seven had a quantitative study design. All included articles focused on the decision whether to undergo TKR surgery or not. Ten articles (all qualitative) examined patients’ decisional needs and preferences. From these, we identified four domains that affected the patients’ decision to undergo TKR: (1) personal factors, (2) external factors, (3) information sources and (4) preferences towards outcome prediction. Seven studies (5) randomized controlled trials and 2 cohort studies) used quantitative analyses to probe the effect of decision aids on SDM and/or clinical outcomes. In general, existing decision aids did not appear to be tailored to patient needs and preferences, nor were the principles of SDM well-articulated in the design of decision aids. Conclusions. SDM in TKR care is understudied; existing research appears to be narrow in scope with limited relevance to established SDM principles and the decisional needs of patients undertaking TKR surgery.

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