scholarly journals European clinical guidelines for Tourette syndrome and other tic disorders—version 2.0. Part I: assessment

Author(s):  
Natalia Szejko ◽  
Sally Robinson ◽  
Andreas Hartmann ◽  
Christos Ganos ◽  
Nanette M. Debes ◽  
...  

AbstractIn 2011 a working group of the European Society for the Study of Tourette Syndrome (ESSTS) has developed the first European assessment guidelines for Tourette syndrome (TS). Now, we present an updated version 2.0 of these European clinical guidelines for Tourette syndrome and other tic disorders, part I: assessment. Therefore, the available literature has been thoroughly screened, supplemented with national guidelines across countries and discussions among ESSTS experts. Diagnostic changes between DSM-IV and DSM-5 classifications were taken into account and new information has been added regarding differential diagnoses, with an emphasis on functional movement disorders in both children and adults. Further, recommendations regarding rating scales to evaluate tics, comorbidities, and neuropsychological status are provided. Finally, results from a recently performed survey among ESSTS members on assessment in TS are described. We acknowledge that the Yale Global Tic Severity Scale (YGTSS) is still the gold standard for assessing tics. Recommendations are provided for scales for the assessment of tics and psychiatric comorbidities in patients with TS not only in routine clinical practice, but also in the context of clinical research. Furthermore, assessments supporting the differential diagnosis process are given as well as tests to analyse cognitive abilities, emotional functions and motor skills.

2011 ◽  
Vol 20 (4) ◽  
pp. 155-171 ◽  
Author(s):  
Danielle C. Cath ◽  
◽  
Tammy Hedderly ◽  
Andrea G. Ludolph ◽  
Jeremy S. Stern ◽  
...  

2011 ◽  
Vol 20 (4) ◽  
pp. 209-217 ◽  
Author(s):  
Kirsten R. Müller-Vahl ◽  
◽  
Danielle C. Cath ◽  
Andrea E. Cavanna ◽  
Sandra Dehning ◽  
...  

Author(s):  
Natalia Szejko ◽  
Yulia Worbe ◽  
Andreas Hartmann ◽  
Veerle Visser-Vandewalle ◽  
Linda Ackermans ◽  
...  

AbstractIn 2011 the European Society for the Study of Tourette Syndrome (ESSTS) published its first European clinical guidelines for the treatment of Tourette Syndrome (TS) with part IV on deep brain stimulation (DBS). Here, we present a revised version of these guidelines with updated recommendations based on the current literature covering the last decade as well as a survey among ESSTS experts. Currently, data from the International Tourette DBS Registry and Database, two meta-analyses, and eight randomized controlled trials (RCTs) are available. Interpretation of outcomes is limited by small sample sizes and short follow-up periods. Compared to open uncontrolled case studies, RCTs report less favorable outcomes with conflicting results. This could be related to several different aspects including methodological issues, but also substantial placebo effects. These guidelines, therefore, not only present currently available data from open and controlled studies, but also include expert knowledge. Although the overall database has increased in size since 2011, definite conclusions regarding the efficacy and tolerability of DBS in TS are still open to debate. Therefore, we continue to consider DBS for TS as an experimental treatment that should be used only in carefully selected, severely affected and otherwise treatment-resistant patients.


2011 ◽  
Vol 20 (4) ◽  
pp. 173-196 ◽  
Author(s):  
Veit Roessner ◽  
◽  
Kerstin J. Plessen ◽  
Aribert Rothenberger ◽  
Andrea G. Ludolph ◽  
...  

Author(s):  
Per Andrén ◽  
Ewgeni Jakubovski ◽  
Tara L. Murphy ◽  
Katrin Woitecki ◽  
Zsanett Tarnok ◽  
...  

AbstractPart II of the European clinical guidelines for Tourette syndrome and other tic disorders (ECAP journal, 2011) provides updated information and recommendations for psychological interventions for individuals with tic disorders, created by a working group of the European Society for the Study of Tourette Syndrome (ESSTS). A systematic literature search was conducted to obtain original studies of psychological interventions for tic disorders, published since the initial European clinical guidelines were issued. Relevant studies were identified using computerized searches of the MEDLINE and PsycINFO databases for the years 2011–2019 and a manual search for the years 2019–2021. Based on clinical consensus, psychoeducation is recommended as an initial intervention regardless of symptom severity. According to a systematic literature search, most evidence was found for Habit Reversal Training (HRT), primarily the expanded package Comprehensive Behavioral Intervention for Tics (CBIT). Evidence was also found for Exposure and Response Prevention (ERP), but to a lesser degree of certainty than HRT/CBIT due to fewer studies. Currently, cognitive interventions and third-wave interventions are not recommended as stand-alone treatments for tic disorders. Several novel treatment delivery formats are currently being evaluated, of which videoconference delivery of HRT/CBIT has the most evidence to date. To summarize, when psychoeducation alone is insufficient, both HRT/CBIT and ERP are recommended as first-line interventions for tic disorders. As part of the development of the clinical guidelines, a survey is reported from ESSTS members and other tic disorder experts on preference, use and availability of psychological interventions for tic disorders.


2011 ◽  
Vol 20 (4) ◽  
pp. 153-154 ◽  
Author(s):  
Veit Roessner ◽  
Aribert Rothenberger ◽  
Hugh Rickards ◽  
Pieter J. Hoekstra

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