Data sharing and privacy issues arising with COVID-19 data and applications

2022 ◽  
pp. 61-75
Author(s):  
Z. Müftüoğlu ◽  
M.A. Kızrak ◽  
T. Yıldırım
Keyword(s):  
Author(s):  
Fulayjan Alanazi ◽  
Ahmed Elhadad ◽  
Safwat Hamad ◽  
A Ghareeb

Sensors are the modules or electronic devices that are used to measure and get environmental events and send the captured data to other devices, usually computer processors allocated on the cloud. One of the most recent challenges is to protect and save the privacy issues of those sensors data on the cloud sharing. In this paper, sensors data collection framework is proposed using mobile identification and proxy re-encryption model for data sharing. The proposed framework includes: identity broker server, sensors managing and monitoring applications, messages queuing sever and data repository server. Finally, the experimental results show that the proposed proxy re-encryption model can work in real time.


Author(s):  
Timo Minssen ◽  
Neethu Rajam ◽  
Marcel Bogers

Abstract Recent European Union (EU) initiatives and legislation have considerably increased public access to clinical trials data (CTD). These developments are generally much welcomed for the enhancement of science, trust, and open innovation. However, they also raise many questions and concerns, not least at the interface between CTD transparency and other areas of evolving EU law on the protection of trade secrets, IPRs, and privacy. This article focuses on privacy issues and on the interrelation between developments in transparency and the EU’s new General Data Protection Regulation 2016/679 (GDPR). More specifically, this article examines: (1) the origins and rationales of EU transparency regulations, including the incidents and concerns that have shaped them; (2) the features and implications of the GDPR which are relevant in the context of clinical trials; and (3) the risk for tensions between the GDPR and the policy goals of CTD transparency, as well as implications for data sharing and open innovation. Ultimately, we elaborate on factors that should be carefully considered and addressed to reap the full benefits of CTD transparency.


Author(s):  
Shailesh Pancham Khapre ◽  
Chandramohan Dhasarathan ◽  
Puviyarasi T. ◽  
Sam Goundar

In the internet era, incalculable data is generated every day. In the process of data sharing, complex issues such as data privacy and ownership are emerging. Blockchain is a decentralized distributed data storage technology. The introduction of blockchain can eliminate the disadvantages of the centralized data market, but at the same time, distributed data markets have created security and privacy issues. It summarizes the industry status and research progress of the domestic and foreign big data trading markets and refines the nature of the blockchain-based big data sharing and circulation platform. Based on these properties, a blockchain-based data market (BCBDM) framework is proposed, and the security and privacy issues as well as corresponding solutions in this framework are analyzed and discussed. Based on this framework, a data market testing system was implemented, and the feasibility and security of the framework were confirmed.


2019 ◽  
Vol 16 (5) ◽  
pp. 539-546 ◽  
Author(s):  
Frank Rockhold ◽  
Christina Bromley ◽  
Erin K Wagner ◽  
Marc Buyse

Open data sharing and access has the potential to promote transparency and reproducibility in research, contribute to education and training, and prompt innovative secondary research. Yet, there are many reasons why researchers don’t share their data. These include, among others, time and resource constraints, patient data privacy issues, lack of access to appropriate funding, insufficient recognition of the data originators’ contribution, and the concern that commercial or academic competitors may benefit from analyses based on shared data. Nevertheless, there is a positive interest within and across the research and patient communities to create shared data resources. In this perspective, we will try to highlight the spectrum of “openness” and “data access” that exists at present and highlight the strengths and weakness of current data access platforms, present current examples of data sharing platforms, and propose guidelines to revise current data sharing practices going forward.


EP Europace ◽  
2021 ◽  
Vol 23 (Supplement_3) ◽  
Author(s):  
F Guerra ◽  
D Linz ◽  
R Garcia ◽  
B Kommata ◽  
J Kosiuk ◽  
...  

Abstract Funding Acknowledgements Type of funding sources: None. Background Nowadays, instant messaging (IM) provides fast and widespread communication. These platforms and apps enable the physicians to quickly share and send clinical data to their peers, to send information to their patients regarding their illnesses and to be reached for counselling and advise. Nevertheless, the use of IM has never been assessed in the cardiology community up until now. Purpose To assess the habits of cardiologists related to modern communication tools, their primary and secondary uses in clinical practice and the potential differences and preferences between different media in terms of ease of access, usefulness and trustworthiness. Methods An online survey was promoted by the EHRA e-Communication Committee and the EHRA Scientific Initiative Committee during the ESC Digital Health Week. All cardiologists were invited to participate via Twitter, LinkedIn, Facebook and other dedicated channels. The survey consisted of 22 questions and was made anonymous. The questions were made on an individual-basis and collected on SurveyMonkey. Results 287 physicians from 33 countries responded to the survey. The mean age of the respondents was 43.4 ± 11.5 years, and 74.8% of them were male. 88.3% of all respondents routinely sends and 90.3% receives clinical data through IM. IM is used at least once a week (36.4%) or even once or more a day (40.4%) for sharing clinical data. WhatsApp is the most used IM app to share clinical data (79.4%). On a scale of 1 to 5, IM was second only to face-to-face contact (average 4.46) as the preferred method for sharing clinical data (average 3.69) and was considered better than phone calls (average 3.34) and e-mails (average 3.21). Twelve-lead ECGs (88.6%), medical history (61.4%) and echo loops (55.7%) are the data shared most often. Among potential pros of IM, the respondents listed being a fast way of communication (82.0%) and making it easy to contact colleagues (76.7%), while privacy issues regarding IM apps providers (62.7%) and other colleagues (45.6%) were commonly perceived as drawbacks. Only 57.4% of all respondents anonymize clinical data before sharing them through IM, and only 44.0% of the data received are reported to be anonymized. Of note, 29.3% of the respondents were not aware of the European General Data Protection Regulation (GDPR) on data protection at the time of the survey, and 29.8% do not know if their institution has a specific policy regarding the use of IM for professional use. Conclusions IM apps are used by cardiologists worldwide to share and discuss clinical data and are preferred to many other methods of data sharing, being second only to face-to-face contact. IM are often used and to share many different types of clinical data, being perceived as a fast and easy way of communication. Cardiologists should be sensitised to appropriate use of IM in accordance to GDPR and local policies in order to prevent legal and privacy issues.


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