scholarly journals Health-related quality of life in Dutch adult survivors of childhood cancer: A nation-wide cohort study

2021 ◽  
Vol 152 ◽  
pp. 204-214
Author(s):  
L.M.E. van Erp ◽  
H. Maurice-Stam ◽  
L.C.M. Kremer ◽  
W.J.E. Tissing ◽  
H.J.H. van der Pal ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cohort Study ◽  
Childhood Cancer ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Survivors Of Childhood Cancer

scholarly journals Lifestyle factors and health-related quality of life in adult survivors of childhood cancer: A report from the St. Jude Lifetime Cohort Study

Cancer ◽  
2018 ◽  
Vol 124 (19) ◽  
pp. 3918-3923 ◽  
Author(s):  
Fang Fang Zhang ◽  
Melissa M. Hudson ◽  
I-Chan Huang ◽  
Nickhill Bhakta ◽  
Kirsten K. Ness ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cohort Study ◽  
Childhood Cancer ◽  
Adult Survivors ◽  
Lifestyle Factors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Survivors Of Childhood Cancer

scholarly journals Association Between the Prevalence of Symptoms and Health-Related Quality of Life in Adult Survivors of Childhood Cancer: A Report From the St Jude Lifetime Cohort Study

2013 ◽  
Vol 31 (33) ◽  
pp. 4242-4251 ◽  
Author(s):  
I-Chan Huang ◽  
Tara M. Brinkman ◽  
Kelly Kenzik ◽  
James G. Gurney ◽  
Kirsten K. Ness ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cohort Study ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Survivors Of Childhood Cancer ◽  
Head Neck ◽  
Cumulative Prevalence

Purpose We investigated the association between prevalence of symptoms and health-related quality of life (HRQOL) in adult survivors of childhood cancer enrolled in the St Jude Lifetime Cohort study. Methods Eligibility criteria include childhood malignancy treated at St Jude, survival ≥ 10 years from diagnosis, and current age ≥ 18 years. Study participants were 1,667 survivors (response rate = 65%). Symptoms were self-reported by using a comprehensive health questionnaire and categorized into 12 classes: cardiac; pulmonary; motor/movement; pain in head; pain in back/neck; pain involving sites other than head, neck, and back; sensation abnormalities; disfigurement; learning/memory; anxiety; depression; and somatization. HRQOL was measured by using physical/mental component summary (PCS/MCS) and six domain scores of the Medical Outcomes Study 36-Item Short-Form Health Survey. Multivariable regression analysis was performed to investigate associations between symptom classes and HRQOL. Cumulative prevalence of symptom classes in relation to time from diagnosis was estimated. Results Pain involving sites other than head, neck and back, and disfigurement represented the most frequent symptom classes, endorsed by 58.7% and 56.3% of survivors, respectively. Approximately 87% of survivors reported multiple symptom classes. Greater symptom prevalence was associated with poorer HRQOL. In multivariable analysis, symptom classes explained up to 60% of the variance in PCS and 56% of the variance in MCS; demographic and clinical variables explained up to 15% of the variance in PCS and 10% of the variance in MCS. Longer time since diagnosis was associated with higher cumulative prevalence in all symptom classes. Conclusion A large proportion of survivors suffered from many symptom classes, which was associated with HRQOL impairment.

scholarly journals Health-Related Quality of Life of Young Adult Survivors of Childhood Cancer: A Review of Qualitative Studies

2011 ◽  
Vol 1 (3) ◽  
pp. 124-132 ◽  
Author(s):  
Chandylen L. Nightingale ◽  
Gwendolyn P. Quinn ◽  
Elizabeth A. Shenkman ◽  
Barbara A. Curbow ◽  
Bradley J. Zebrack ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adult ◽  
Childhood Cancer ◽  
Adult Survivors ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Adult Survivors ◽  
Survivors Of Childhood Cancer

scholarly journals Association of Exercise Intolerance With Emotional Distress, Attainment of Social Roles, and Health-Related Quality of Life Among Adult Survivors of Childhood Cancer

JAMA Oncology ◽  
2020 ◽  
Vol 6 (8) ◽  
pp. 1194 ◽  
Author(s):  
Samah Hayek ◽  
Tara M. Brinkman ◽  
Juan C. Plana ◽  
Vijaya M. Joshi ◽  
Russell V. Leupker ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Childhood Cancer ◽  
Emotional Distress ◽  
Adult Survivors ◽  
Exercise Intolerance ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Survivors Of Childhood Cancer

Physical Impairment and Social Life, Goals among Adult Long-term Survivors of Childhood Cancer: A Population-based Study from the Childhood Cancer Registry of Piedmont, Italy

2001 ◽  
Vol 87 (6) ◽  
pp. 372-378 ◽  
Author(s):  
Guido Pastore ◽  
Maria Luisa Mosso ◽  
Corrado Magnani ◽  
Lia Luzzatto ◽  
Maurizio Bianchi ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Central Nervous System ◽  
Childhood Cancer ◽  
Adult Survivors ◽  
Life Goals ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Survivors Of Childhood Cancer

Aims and Background The study describes the health status and the attainment of life goals in the adult survivors of childhood cancer recorded at the Childhood Cancer Registry of Piedmont. Methods and Study Design A postal questionnaire was sent to the general practitioner of the 690 cases born before 1976 and alive in 1991 after at least 5 years from diagnosis. The answer was received for 485 (72.9%) included in the analyses. Items in the questionnaire were: sequelae related to cancer and its treatment, health-related quality of life (according to Bloom's criteria), educational level attained, and employment status. Results Vital and marital status were obtained for all 690 cases at the offices of the town of residence. No medical condition was reported for 309 cases (63.7%). The overall proportion with a high school or university education was compared to corresponding figures for Piedmont in 1991, adjusted by age, and was as high as in the general population. Similar results are observed for occupation. Patients of both genders were married less than expected. Patients with leukemia (112 cases), non-Hodgkin's lymphoma (34) or Hodgkin's lymphoma (52) were reported to have the highest quality of life. In contrast, patients with tumors of the central nervous system (151) had the highest frequency of sequelae and the lowest score for health-related quality of life. They also presented the lowest educational achievement, the lowest proportion of employment and, among males, the lowest frequency of marriage. Conclusions Our study shows a good social adjustment of adult survivors from childhood cancer, with the exception of central nervous system tumors. From the methodologic point of view, the present study shows the feasibility of surveillance surveys on health-related quality of life with the contribution of general practitioners.

scholarly journals Health-related quality of life in young survivors of childhood cancer

2015 ◽  
Vol 24 (9) ◽  
pp. 2151-2161 ◽  
Author(s):  
L. Wengenroth ◽  
M. E. Gianinazzi ◽  
C. S. Rueegg ◽  
S. Lüer ◽  
E. Bergstraesser ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Childhood Cancer ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Young Survivors ◽  
Survivors Of Childhood Cancer

Unique influences of pain frequency and pain-related worry on health-related quality of life in survivors of childhood cancer

2021 ◽  
Vol 22 (5) ◽  
pp. 592-593
Author(s):  
Sarah J. Cunningham ◽  
Michaela Patton ◽  
Fiona Schulte ◽  
Patricia A. Richardson ◽  
Lauren C. Heathcote
Keyword(s):  
Quality Of Life ◽  
Childhood Cancer ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Pain Frequency ◽  
Survivors Of Childhood Cancer
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