Living with chronic illness scale in Parkinson's disease: Longitudinal metric properties and meaningful change

Author(s):  
Carmen Rodriguez-Blazquez ◽  
Mayela Rodriguez Violante ◽  
Tomoko Arakaki ◽  
Nelida Susana Garretto ◽  
Marcos Serrano-Dueñas ◽  
...  
2007 ◽  
Vol 22 (13) ◽  
pp. 1901-1911 ◽  
Author(s):  
Kallol Ray Chaudhuri ◽  
Pablo Martinez-Martin ◽  
Richard G. Brown ◽  
Kapil Sethi ◽  
Fabrizio Stocchi ◽  
...  

2013 ◽  
Vol 19 (2) ◽  
pp. 363-379 ◽  
Author(s):  
Catherine S. Hurt ◽  
David J. Burn ◽  
John Hindle ◽  
Mike Samuel ◽  
Ken Wilson ◽  
...  

2010 ◽  
Vol 25 (15) ◽  
pp. 2555-2562 ◽  
Author(s):  
Marcos Serrano-Dueñas ◽  
Belén Calero ◽  
Soledad Serrano ◽  
Maite Serrano ◽  
Paulina Coronel

2006 ◽  
Vol 9 (6) ◽  
pp. 386-393 ◽  
Author(s):  
Pablo Martinez-Martin ◽  
Luis Prieto ◽  
Maria João Forjaz

BMC Neurology ◽  
2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Leire Ambrosio ◽  
Carmen Rodriguez-Blazquez ◽  
Alba Ayala ◽  
Maria João Forjaz

Abstract Background Neurologists play an essential role in facilitating the patient’s process of living with Parkinson’s disease (PD). The Living with Chronic Illness Scale-PD (LW-CI-PD) is a unique available clinical tool that evaluates how the patient is living with PD. The objective of the study was to analyse the LW-CI-PD properties according to the Rasch model. Methods An open, international, cross-sectional study was carried out in 324 patients with Parkinson’s disease from four Latin American countries and Spain. Psychometric properties of the LW-CI-PD were tested using Rasch analysis: fit to the Rasch model, item local independency, unidimensionality, reliability, and differential item functioning by age and gender. Results Original LW-CI-PD do not fit Rasch model. Modifications emerged included simplifying the response scale and deleting misfit items, the dimensions Acceptance, Coping and Integration showed a satisfactory fit to the Rasch model, with reliability indices greater than 0.70. The dimensions Self-management and Adjustment to the disease did not reach fit to the Rasch model. Conclusion Suggestions for improving the LW-CI-PD include a multidimensional and shorter scale with 12 items grouped in three subscales with a simpler response scheme. The final LW-CI-PD Scale version is a reliable scale, with good internal construct validity, that provides Rasch transformed results on linear metric scale.


Author(s):  
Allan Hugh Cole

Counseling Persons with Parkinson’s Disease offers a distinctive, practical, philosophically grounded, and person-centered approach to counseling those living with Parkinson’s disease and other chronic illnesses. As a seasoned teacher of professional counselors who also lives with Parkinson’s, the author demonstrates that chronic illness requires accepting and living with profound loss, but that this loss may lead to personal transformation and constructive ends, wherein one finds new hope, meaning, purpose, happiness, and passion for living. Equal parts memoir and professional resource, this book guides clinicians who give counsel, educators who teach counseling, and anyone wanting to know more about Parkinson’s disease and provide support for those who live with it.


Neurology ◽  
1997 ◽  
Vol 49 (6) ◽  
pp. 1580-1587 ◽  
Author(s):  
D. A. Bennett ◽  
K. M. Shannon ◽  
L. A. Beckett ◽  
C. G. Goetz ◽  
R. S. Wilson

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