scholarly journals A personalized approach to non-invasive ventilation masks in amyotrophic lateral sclerosis using facial scanning and 3D-printing

2021 ◽  
pp. 100027
Author(s):  
Stephen A. Goutman ◽  
Lei Chen ◽  
Jeffrey S. Plott ◽  
Kyle K. Vankoevering ◽  
Armando Kurili ◽  
...  
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
3D Printing ◽  
Invasive Ventilation ◽  
Non Invasive ◽  
Non Invasive Ventilation ◽  
Personalized Approach ◽  
Facial Scanning ◽  
Lateral Sclerosis

Randomized cross-over trial of ventilator modes during non-invasive ventilation titration in amyotrophic lateral sclerosis

Respirology ◽  
2017 ◽  
Vol 22 (6) ◽  
pp. 1212-1218 ◽  
Author(s):  
Bart Vrijsen ◽  
Bertien Buyse ◽  
Catharina Belge ◽  
Goele Vanpee ◽  
Philip Van Damme ◽  
...  
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Invasive Ventilation ◽  
Non Invasive ◽  
Non Invasive Ventilation ◽  
Lateral Sclerosis

scholarly journals Patterns of Non-Invasive Ventilation in Amyotrophic Lateral Sclerosis

2018 ◽  
Vol 45 (4) ◽  
pp. 445-450
Author(s):  
Nevena Markovic ◽  
Marcus Povitz ◽  
Joanne Smith ◽  
David Leasa ◽  
Christen Shoesmith ◽  
...  
Keyword(s):  
Decision Making ◽  
Amyotrophic Lateral Sclerosis ◽  
End Of Life ◽  
Invasive Ventilation ◽  
Non Invasive ◽  
Non Invasive Ventilation ◽  
End Of Life Decision ◽  
Life Decision ◽  
Lateral Sclerosis ◽  
Over Time

AbstractBackground: Non-invasive ventilation (NIV) improves quality of life and survival in patients with amyotrophic lateral sclerosis (ALS) and respiratory symptoms. Little is known about the patterns of NIV use over time and the impact of NIV on end-of-life decision-making in ALS. Objective: This study assessed the pattern of NIV use over the course of the disease and the timing of end-of-life discussions in people living with ALS. Method: A retrospective single-center cohort study was performed at London Health Sciences Centre. Daily NIV duration of use was evaluated at 3-month intervals. The timing of diagnosis, NIV initiation, discussions relating to do-not-attempt-resuscitation (DNAR) and death were examined. Results: In total, 48 patients were included in the analysis. Duration of NIV use increased over time, and tolerance to NIV was observed to be better than expected in patients with bulbar-onset ALS. There was a high degree of variability in the timing of end-of-life discussions in patients with ALS (356±451 days from diagnosis). In this cohort, there was a strong association between the timing of discussions regarding code status and establishment of a DNAR order (r2=0.93). Conclusion: This retrospective cohort study suggests that the use of NIV in ALS increases over time and that there remains a great deal of variability in the timing of end-of-life discussions in people living with ALS. Future prospective studies exploring the use NIV over the disease trajectory and how NIV affects end-of-life decision-making in people with ALS are needed.

NIV (Non Invasive Ventilation) criteria and Amyotrophic Lateral Sclerosis (ALS) Survival

2017 ◽  
Author(s):  
Cristina Ciorba ◽  
Maria Luz Alonso Alvarez ◽  
Estrella Ordax Carbajo ◽  
Rodrigo delaRosa Giménez ◽  
Lourdes Martin Viñe ◽  
...  
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Invasive Ventilation ◽  
Non Invasive ◽  
Non Invasive Ventilation ◽  
Lateral Sclerosis

Percutaneous Endoscopic Gastostomy and Non Invasive Ventilation in Amyotrophic Lateral Sclerosis: Interest of a Combined Approach (P01.103)

Neurology ◽  
2012 ◽  
Vol 78 (Meeting Abstracts 1) ◽  
pp. P01.103-P01.103
Author(s):  
N. Vitello ◽  
N. Guy Renouil ◽  
A. Greil ◽  
C. Bouteloup ◽  
S. Rouvet ◽  
...  
Keyword(s):  
Amyotrophic Lateral Sclerosis ◽  
Combined Approach ◽  
Invasive Ventilation ◽  
Non Invasive ◽  
Non Invasive Ventilation ◽  
Lateral Sclerosis
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