The surprise question in gynecologic oncology: An analysis looking at end-of-life care in patients with gynecologic cancer

2020 ◽  
Vol 159 ◽  
pp. 313
Author(s):  
W. Barton ◽  
M. Cohen ◽  
C. Raker ◽  
C. Luis ◽  
R. Cram ◽  
...  
2014 ◽  
Vol 32 (31_suppl) ◽  
pp. 47-47
Author(s):  
Carolyn Lefkowits ◽  
Dio Kavalieratos ◽  
Janet Arida ◽  
Winifred Teuteberg ◽  
Heidi Donovan ◽  
...  

47 Background: Our objective was to describe gynecologic oncology (GO) providers’ and patients’ knowledge, attitudes and preferences related to utilization of specialist palliative care (SPC) for symptom management. Methods: Semi-structured qualitative interviews with 19 GO providers (7 physicians, 7 advanced practice providers, 5 nurses) and 30 patients with advanced or recurrent gynecologic cancer from an academic medical center. Key interview domains include: patient symptoms, perceived role of oncology team regarding symptom management, familiarity with SPC, and barriers and facilitators to utilization of SPC for symptom management. Qualitative analysis is underway. Results: 19 provider interviews and 29 patient interviews were completed. Preliminary findings indicate shared beliefs between providers and patients, including an overall willingness to involve SPC in symptom management. Although providers felt comfortable initially managing common symptoms, they expressed interest in involving SPC for complex or multiple symptoms. Patients do not expect their GO providers to manage severe symptoms, noting concerns of complex symptom management as burdensome to the GO team. Barriers to involving SPC in symptom management included: patients’ perceptions of SPC as synonymous with end-of-life care, and logistical issues (e.g., scheduling and transportation). When a distinction was drawn between SPC for symptom management and end-of-life care, patients were uniformly open to seeing SPC for symptom management. Conclusions: GO patients’ and providers’ perception of the role of oncology providers in symptom management is consistent with the concept of a primary palliative care provider, delivering initial management of common symptoms. Specialty palliative care services are seen as complementary to the GO providers’ skillset and particularly useful for severe or multiple symptoms. Implications include the importance of ensuring that oncology provider training includes dedicated attention to symptom management to enable them to fulfill the role of primary palliative care provider.


2012 ◽  
Vol 30 (1) ◽  
pp. 59-67 ◽  
Author(s):  
Teresa P. Díaz-Montes ◽  
Megan K. Johnson ◽  
Robert L. Giuntoli ◽  
Alaina J. Brown

Objectives: To assess the importance and desired timing of end-of-life care (EOLC) discussions among women with gynecologic cancer. Methods: A questionnaire related to EOLC issues was distributed to patients with gynecologic cancer. Answers were analyzed via SPSS using descriptive statistics. Contingency analysis was done to evaluate for differences among disease status and age regarding preferences for timing of discussions. Results: Patients expressed that addressing EOLC is an important part of their treatment. Most patients were familiar with advanced directives (73.0%), do not resuscitate/do not intubate (88.5%), and hospice (97.5%). Designating someone to make decisions was significantly related to disease status ( P = .03) and age ( P = 0.02). Conclusions: Patients are familiar with basic EOLC with optimal timing for discussions at disease progression or when treatment is no longer available.


2017 ◽  
Vol 145 ◽  
pp. 23
Author(s):  
M.M. Mullen ◽  
L.M. Divine ◽  
B. Porcelli ◽  
I. Wilkinson-Ryan ◽  
M. Dans ◽  
...  

2014 ◽  
Vol 24 (8) ◽  
pp. 1521-1526 ◽  
Author(s):  
Alaina J. Brown ◽  
Megan J. Shen ◽  
Lois M. Ramondetta ◽  
Diane C. Bodurka ◽  
Robert L. Giuntoli ◽  
...  

ObjectivesThe aim of this study was to determine if a gynecologic cancer patient’s comfort level discussing end-of-life care issues with her caregivers is related to her death anxiety level.Materials/MethodsGynecologic oncology clinic patients were asked to rate their degree of agreeability with 4 statements regarding comfort level discussing end-of-life care issues. Participants also completed the Hoge’s Intrinsic Religiosity Scale and Templer’s Death Anxiety Scale.ResultsFour hundred one surveys were distributed. One hundred twenty-nine patients participated, with a response rate of 32.2%. The median age of the sample was 55 years. Most patients were white (72.9%), married (58.9%), and Christian (85.3%). Most patients had ovarian cancer (40.4%). Of the 74 patients who knew their cancer stage, 59% had been diagnosed with advanced (stage III-IV) disease. Thirty-three percent were currently in remission, and 17% had recurrent disease. Of all patients surveyed, 32.6% were currently receiving treatment. Chemotherapy was the most common treatment (62% of those being treated). Higher level of comfort discussing end-of-life care topics such as do-not-resuscitate orders with family members was significantly associated with decreased death anxiety (P = 0.008 and P = 0.001). There was no significant association between comfort level when patients discussed do-not-resuscitate orders with physicians and patients’ death anxiety (P = 0.14). After controlling for age, race, marital status, education level, current treatment status, and religiosity, linear regression analysis demonstrated that the relationship between a patient’s increased comfort level when discussing end-of-life care topics with family members and decreased death anxiety remained statistically significant (P = 0.005 and P = 0.001).ConclusionsConversations regarding goals of treatment are an important component of caring for cancer patients. Death anxiety may contribute to decreased communication between patients and their family members regarding the patient’s end-of-life care wishes. Obtaining a better understanding of the role death anxiety plays in end-of-life care discussions may help patients receive the end-of-life care they desire.


2017 ◽  
Vol 147 (2) ◽  
pp. 460-464 ◽  
Author(s):  
Mary M. Mullen ◽  
Laura M. Divine ◽  
Bree P. Porcelli ◽  
Ivy Wilkinson-Ryan ◽  
Maria C. Dans ◽  
...  

2015 ◽  
Vol 137 ◽  
pp. 194-195
Author(s):  
J.S. Taylor ◽  
A.J. Brown ◽  
L.S. Prescott ◽  
C.C.L. Sun ◽  
L.M. Ramondetta ◽  
...  

2016 ◽  
Vol 140 (2) ◽  
pp. 295-300 ◽  
Author(s):  
Jolyn S. Taylor ◽  
Alaina J. Brown ◽  
Lauren S. Prescott ◽  
Charlotte C. Sun ◽  
Lois M. Ramondetta ◽  
...  

2013 ◽  
Vol 24 ◽  
pp. ix84
Author(s):  
Y. Hasumi ◽  
A. Numata ◽  
K. Kubota ◽  
T. Tsukazaki ◽  
K. Hashimoto ◽  
...  

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