scholarly journals Coordinated individual care planning and shared decision making: staff perspectives within the comorbidity field of practice

2021 ◽  
pp. 1-13
Author(s):  
Amanda Jones ◽  
Ola Knutsson ◽  
Ulla-Karin Schön
Keyword(s):  
Decision Making ◽  
Shared Decision Making ◽  
Care Planning ◽  
Shared Decision ◽  
Individual Care

scholarly journals SHARED DECISION MAKING IN DEMENTIA CARE PLANNING: INVOLVING FAMILY CAREGIVERS

2017 ◽  
Vol 1 (suppl_1) ◽  
pp. 667-667
Author(s):  
M. Vernooij-Dassen ◽  
E. Mariani ◽  
Y. Engels ◽  
R. Chattat
Keyword(s):  
Decision Making ◽  
Family Caregivers ◽  
Shared Decision Making ◽  
Dementia Care ◽  
Care Planning ◽  
Shared Decision

The Impact of a Shared Decision-Making Training Program on Dementia Care Planning in Long-Term Care

2018 ◽  
Vol 64 (4) ◽  
pp. 1123-1135 ◽  
Author(s):  
Elena Mariani ◽  
Rabih Chattat ◽  
Giovanni Ottoboni ◽  
Raymond Koopmans ◽  
Myrra Vernooij-Dassen ◽  
...  
Keyword(s):  
Decision Making ◽  
Training Program ◽  
Shared Decision Making ◽  
Long Term Care ◽  
Dementia Care ◽  
Care Planning ◽  
Shared Decision ◽  
Term Care ◽  
The Impact

scholarly journals Advance Care Planning (ACP) vs. Advance Serious Illness Preparations and Planning (ASIPP)

Healthcare ◽  
2020 ◽  
Vol 8 (3) ◽  
pp. 218 ◽  
Author(s):  
Daren K. Heyland
Keyword(s):  
Decision Making ◽  
Shared Decision Making ◽  
Advance Care Planning ◽  
Older Persons ◽  
Clinical Decision Making ◽  
Past Research ◽  
Care Planning ◽  
Shared Decision ◽  
Serious Illness ◽  
Advance Care

COVID-19 has highlighted the reality of an impending serious illness for many, particularly for older persons. Those faced with severe COVID-19 infection or other serious illness will be faced with decisions regarding admission to intensive care and use of mechanical ventilation. Past research has documented substantial medical errors regarding the use or non-use of life-sustaining treatments in older persons. While some experts advocate that advance care planning may be a solution to the problem, I argue that the prevailing understanding and current practice of advance care planning perpetuates the problem and results in patients not receiving optimal patient-centered care. Much of the problem centers on the framing of advance care planning around end of life care, the lack of use of decision support tools, and inadequate language that does not support shared decision-making. I posit that a new approach and new terminology is needed. Advance Serious Illness Preparations and Planning (ASIPP) consists of discrete steps using evidence-based tools to prepare people for future clinical decision-making in the context of shared decision-making and informed consent. Existing tools to support this approach have been developed and validated. Further dissemination of these tools is warranted.

Integrating Palliative Care in Ambulatory Care of Noncancer Serious Chronic Illness: A Systematic Review

2020 ◽  
Author(s):  
Sydney M. Dy ◽  
Julie M. Waldfogel ◽  
Danetta H. Sloan ◽  
Valerie Cotter ◽  
Susan Hannum ◽  
...  
Keyword(s):  
Decision Making ◽  
Palliative Care ◽  
Usual Care ◽  
Ambulatory Care ◽  
Shared Decision Making ◽  
Advance Care Planning ◽  
Advance Directive ◽  
Care Planning ◽  
Shared Decision ◽  
Advance Care

Objectives. To evaluate availability, effectiveness, and implementation of interventions for integrating palliative care into ambulatory care for U.S.-based adults with serious life-threatening chronic illness or conditions other than cancer and their caregivers We evaluated interventions addressing identification of patients, patient and caregiver education, shared decision-making tools, clinician education, and models of care. Data sources. We searched key U.S. national websites (March 2020) and PubMed®, CINAHL®, and the Cochrane Central Register of Controlled Trials (through May 2020). We also engaged Key Informants. Review methods. We completed a mixed-methods review; we sought, synthesized, and integrated Web resources; quantitative, qualitative and mixed-methods studies; and input from patient/caregiver and clinician/stakeholder Key Informants. Two reviewers screened websites and search results, abstracted data, assessed risk of bias or study quality, and graded strength of evidence (SOE) for key outcomes: health-related quality of life, patient overall symptom burden, patient depressive symptom scores, patient and caregiver satisfaction, and advance directive documentation. We performed meta-analyses when appropriate. Results. We included 46 Web resources, 20 quantitative effectiveness studies, and 16 qualitative implementation studies across primary care and specialty populations. Various prediction models, tools, and triggers to identify patients are available, but none were evaluated for effectiveness or implementation. Numerous patient and caregiver education tools are available, but none were evaluated for effectiveness or implementation. All of the shared decision-making tools addressed advance care planning; these tools may increase patient satisfaction and advance directive documentation compared with usual care (SOE: low). Patients and caregivers prefer advance care planning discussions grounded in patient and caregiver experiences with individualized timing. Although numerous education and training resources for nonpalliative care clinicians are available, we were unable to draw conclusions about implementation, and none have been evaluated for effectiveness. The models evaluated for integrating palliative care were not more effective than usual care for improving health-related quality of life or patient depressive symptom scores (SOE: moderate) and may have little to no effect on increasing patient satisfaction or decreasing overall symptom burden (SOE: low), but models for integrating palliative care were effective for increasing advance directive documentation (SOE: moderate). Multimodal interventions may have little to no effect on increasing advance directive documentation (SOE: low) and other graded outcomes were not assessed. For utilization, models for integrating palliative care were not found to be more effective than usual care for decreasing hospitalizations; we were unable to draw conclusions about most other aspects of utilization or cost and resource use. We were unable to draw conclusions about caregiver satisfaction or specific characteristics of models for integrating palliative care. Patient preferences for appropriate timing of palliative care varied; costs, additional visits, and travel were seen as barriers to implementation. Conclusions. For integrating palliative care into ambulatory care for serious illness and conditions other than cancer, advance care planning shared decision-making tools and palliative care models were the most widely evaluated interventions and may be effective for improving only a few outcomes. More research is needed, particularly on identification of patients for these interventions; education for patients, caregivers, and clinicians; shared decision-making tools beyond advance care planning and advance directive completion; and specific components, characteristics, and implementation factors in models for integrating palliative care into ambulatory care.

scholarly journals Understanding patients' and doctors' attitudes about shared decision making for advance care planning

2014 ◽  
Vol 18 (6) ◽  
pp. 2054-2065 ◽  
Author(s):  
Negin Hajizadeh ◽  
Lauren M. Uhler ◽  
Rafael E. Pérez Figueroa
Keyword(s):  
Decision Making ◽  
Shared Decision Making ◽  
Advance Care Planning ◽  
Care Planning ◽  
Shared Decision ◽  
Advance Care

scholarly journals Shared decision making and advance care planning-underpinnings, similarities and differences

2012 ◽  
Vol 2 (2) ◽  
pp. 173.1-173
Author(s):  
T Krones ◽  
N Biller Andorno ◽  
J in der Schmitten ◽  
C Mitchell ◽  
R Spirig ◽  
...  
Keyword(s):  
Decision Making ◽  
Shared Decision Making ◽  
Advance Care Planning ◽  
Care Planning ◽  
Shared Decision ◽  
Advance Care ◽  
Similarities And Differences
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