Dementia Care
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2021 ◽  
pp. 146879412110493
Helena Cleeve ◽  
Lena Borell ◽  
Lena Rosenberg

This article brings methodological insight into in-situ drawings as representations of daily life with dementia. As part of ethnographic fieldwork in dementia care units in a nursing home, drawings were made on site by a researcher. We suggest that the ambiguity of in-situ drawings, and the ensuing possibilities to disambiguate them, is valuable. Inspired by Asdal and Moser’s (2012) concept of “contexting,” we experimented with arranging the drawings with fieldnotes, discussing them with staff members, as well as with configuring multiple drawings and fieldnotes in sequences. This led to reflexive engagements with the drawings, creating space for discussing concerns in research practices and care practices. Switching between different forms of contexting produced tensions, revealing that what was cared for through the practices of researchers, staff members, and residents, diverged. In this way, we argue that contexting in-situ drawings may intervene in ways of knowing, caring for, and living with dementia.

Bram de Boer ◽  
Yvette Buist ◽  
Simone R. de Bruin ◽  
Ramona Backhaus ◽  
Hilde Verbeek

The culture change movement within long-term care in which radical changes in the physical, social and organizational care environments are being implemented provides opportunities for the development of innovative long-term care facilities. The aim of this study was to investigate which competencies care staff working at green care farms and other innovative types of small-scale long-term dementia care facilities require, according to care staff themselves and managers, and how these competencies were different from those of care staff working in more traditional large-scale long-term dementia care facilities. A qualitative descriptive research design was used. Interviews were conducted with care staff (n = 19) and managers (n = 23) across a diverse range of long-term facilities. Thematic content analysis was used. Two competencies were mainly mentioned by participants working in green care farms: (1) being able to integrate activities for residents into daily practice, and (2) being able to undertake multiple responsibilities. Two other competencies for working in long-term dementia care in general were identified: (3) having good communication skills, and (4) being able to provide medical and direct care activities. This study found unique competencies at green care farms, showing that providing care in innovative long-term care facilities requires looking further than the physical environment and the design of a care facility; it is crucial to look at the role of care staff and the competencies they require.

2021 ◽  
pp. 1-9
Emma Lindgren ◽  
Josephine Sörenson ◽  
Carina Wattmo ◽  
Ingemar Kreholt ◽  
Katarina Nägga

Background: With a growing elderly population worldwide, the prevalence of dementia is rapidly increasing. Studies from high income countries have shown that belonging to a minority ethnic group increases the risk of health disadvantages. Objective: The aim of the present registry-based study was to identify potential differences in diagnostics, treatment, and care of individuals with dementia focusing on foreign-born in Sweden and the impact of country level socioeconomic position (SEP). Methods: The study was based on a large dataset from the Swedish Dementia Registry (SveDem) and the Swedish Tax Agency’s population registry. Data on demographic variables, cognitive tests, clinical assessments, medication, diagnosis, and interventions initiated at diagnosis were collected. Country level SEP was determined by country of birth as classified by World Bank Country and Lending groups. Results: Of 57,982 patients with dementia registered in SveDem, 7,171 (12.4%) were foreign-born. The foreign-born were significantly younger at diagnosis (p <  0.001), had a lower MMSE score (p <  0.001), lower odds of receiving a specific dementia diagnosis (p <  0.001), lower use of acetylcholinesterase inhibitors (p <  0.001), and overall a higher use of neuroleptics compared with the Swedish-born group. The lower SEP, the greater differences to Swedish-born were seen in many of the examined variables. Conclusion: There were significant differences in dementia diagnostics, treatment, and care between foreign-born and Swedish-born, a lower SEP indicating greater differences. Further research should focus on various socioeconomic aspects and health care outcomes for a more profound analysis of equity in dementia care.

2021 ◽  
pp. 1-11
Jennifer Stargatt ◽  
Sunil Bhar ◽  
Tanya Petrovich ◽  
Jahar Bhowmik ◽  
David Sykes ◽  

Background: There is support for the effectiveness of virtual reality (VR) technology in dementia education. However, it is not yet known if VR is a useful tool for improving empathy and understanding of dementia care environments among dementia care workers. Objective: This study compared learning outcomes of VR versus non-VR (control) workshops for dementia care workers of different ages and English-speaking backgrounds. Methods: Dementia care workers enrolled in workshops on dementia care principles. Once participants were enrolled, workshops were assigned at random to deliver non-VR or VR-based education. Participants (N = 114, 91.8%female, mean age = 46.4; SD = 13.2; n = 60VR condition, 54control condition) completed self-report measures of empathy towards people living with dementia, understanding of dementia care environments, dementia knowledge, and attitudes towards dementia at pre- and post-workshop. Results: Significant pre-post main effects were observed for empathy, understanding of dementia care environments, and attitudes. Interaction effects were not found; improvements in outcomes were similar between conditions. However, interaction effects were observed for subgroups. Empathy improved significantly more in the VR condition for older participants. Understanding of dementia care environments improved more in the VR condition for younger and non-English-speaking background participants. Conclusion: Using VR may not augment teaching outcomes for all learners. VR may differentially assist leaners of different ages and English-speaking backgrounds. More research is needed to understand for which variables and for whom VR is a useful teaching tool.

2021 ◽  
pp. 030631272110488
Marianne de Laet ◽  
Annelieke Driessen ◽  
Else Vogel

Much current work in Science and Technology Studies inflects knowing with care. Analyses of the ethos of objectivity, and of the practices by which objectivity is crafted, have shown that knowing and caring cannot be thought apart from each other. Using case studies from our own work we analyse how, in the sociotechnical relationships that we study, knowing and caring are entangled through ‘attachments’. We appreciate – both in the sense of valuing or respecting and in the sense of evaluating or assessing – how the notion of ‘attachment’ invites re-imagining relations between the social and the technical, between knowers and objects known, and between sociotechnical work and the affective sensibilities that enable, and are brought to life by, such work. Our respective ethnographic engagements with dog-human relations, obesity surgery and dementia care demonstrate that it is agents’ diverse and shifting attachments to technologies and techniques that shape the ways in which bodies, knowledge and practices form. The affects that arise in this process, or so we claim in neo-pragmatist fashion, are not preconditions to, but rather the result of such practices of attachment; rather than a prerequisite, they are an effect of the work of attaching itself. Thinking with attachments recognizes how techno-scientific work builds and shapes passions, aesthetics and sensory experience, allowing us to trace how varied sensibilities to what constitutes ‘the good’ come to be and come to matter in practices of relating between humans, animals and things.

Laura Cole ◽  
Alessandra Bisquera ◽  
Kritika Samsi ◽  
Jill Manthorpe

Younhee Kang ◽  
Yujin Hur

The behavioral and psychological symptoms of dementia (BPSD), which appear in all dementia patients, demand sizable commitments of time and effort from nurses. This study aims to identify issues related to the workloads of nurses who provide care for dementia patients via qualitative meta-synthesis. Eleven articles were selected using a systematic review flowchart, which were then evaluated for their quality using the Critical Appraisal Skills Program checklist. Collected data were analyzed using a line-of-argument method. Theme clusters were “increased workload due to characteristics of dementia”, “increased mental stress”, “difficulty associated with playing a mediator role in addition to nursing duties”, and “lacking systematic support for dementia patient care”. To reduce the workload and mental stress of nurses in dementia care, supportive measures appropriate for their occupational characteristics should be developed, based on workload estimates that account for the attributes of dementia patients.

Bioethics ◽  
2021 ◽  
Matthew Tieu

2021 ◽  
Vol 22 (10) ◽  
pp. 2036-2038
Joseph E. Gaugler ◽  
Laura N. Gitlin ◽  
Sheryl Zimmerman

Pflege ◽  
2021 ◽  
Vol 34 (5) ◽  
pp. 275-284
Stephanie Heinrich ◽  
Christine Schiller ◽  
Manuela Grünzig ◽  
Thomas Klatt ◽  
Jennifer Geyer ◽  

Zusammenfassung. Hintergrund: Case Management bei Demenz wird in der Nationalen Demenzstrategie Deutschlands gefordert. Dessen Wirksamkeit ist vielfach untersucht, die Ergebnisse sind widersprüchlich. Demgegenüber sind Umsetzungsprozesse von Case Management-Konzepten bislang kaum beschrieben. Ziele: Ziel der Machbarkeitsstudie war es, die Umsetzung einer aufsuchenden Hilfe für Menschen mit Demenz zu analysieren sowie Veränderungen in der Versorgung, Akzeptanz sowie förderliche und hemmende Faktoren der Umsetzung zu explorieren. Methoden: Die aufsuchende Hilfe für Menschen mit Demenz wurde im Zeitraum 08 / 2018 bis 07 / 2019 umgesetzt. Einbezogen wurden Menschen mit Demenz und pflegende Angehörige. Es erfolgte eine prospektive Erfassung quantitativer und qualitativer Daten anhand von halbstandardisierten Interviews im Rahmen der aufsuchenden Hilfe. Ergebnisse: Die aufsuchende Hilfe konnte bei 113 Menschen mit Demenz umgesetzt werden und größtenteils konnten pflegende Angehörige einbezogen werden. Im Mittel fanden acht Kontakte im Zeitraum von 74 Tagen statt. Die Bedarfs- und Unterstützungsbereiche waren vielfältig. Die Inanspruchnahme von Unterstützungsangeboten steigerte sich nach Interventionsabschluss um 19 %. Schlussfolgerungen: Die Umsetzung einer kontinuierlichen und prozesshaften Begleitung von Menschen mit Demenz und Angehörigen ist möglich, wobei Struktur und Prozedere transparent sein sollten. Förderlich ist eine umfangreiche Ausrichtung und vernetzte Arbeit. Die Wirksamkeit der Intervention bleibt in einer kontrollierten Studie zu untersuchen.

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